My mom has recurrent UTIs.

Posted by angierivas1 @angierivas1, Mar 29 9:48am

My mom was diagnosed with uterine cancer in 2018 after experiencing postmenopausal bleeding in her late 60s. She underwent a complete hysterectomy and was staged 1B. Following the surgery, she had several sessions of radiation therapy.
A couple of months later, she began complaining of extreme pain in her coccyx. Her oncologist attributed the pain to arthritis and suggested that she use a patch for back pain. However, in December, I took her to the emergency room because she was in so much pain that she was crying. A CT scan revealed a large tumor in her coccyx, and the oncologist informed us that she was now stage 4 and would require additional radiation.
Mom was doing so poorly that we feared for her life, so we transferred her care to City of Hope. She began treatment with Keytruda and experienced significant improvement. Now, years later, her kidney and liver test levels have not been good, but her tumor has remained stable, which led her current oncologist to give her a break from treatment, stating that she was stable.
Since December 2024, she has been experiencing recurrent UTIs, with intense burning and pain when urinating.
Her primary doctor has been prescribing antibiotics and some vaginal cream since she may be experiencing dryness.
Recently, my mom noticed some pink discharge, which caused her to panic and worry, and we are all concerned.
The hospital where her oncologist practices is aware of this, and she has been asked to undergo a CT scan immediately.
I feel so guilty because, all this time, she hasn't had a pelvic exam, and I overlooked requesting one for her.
Although I'm grateful for all these years she has been with us, I can't help but wonder if she was misdiagnosed and was more advanced on the cancer than what they told us. Perhaps then she could have better treatment and could be cancer-free.
This cancer journey is so emotional, painful, and sad, 😔

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Good morning, Hellen,

I wanted to provide you with an update on my follow-up and also ask how your appointment went.

A week ago, my oncologist graduated me to annual surveillance appointments. During my visit, she performed a pelvic exam, and when I mentioned the pain in the center of my rib cage along with a lump I feel on my sternum, she advised me to see my primary doctor. I have an appointment scheduled with him next week.
I’m feeling frustrated about having to visit multiple specialists for this ongoing pain and discomfort, which I initially thought was related to my digestive tract. Although I’m no longer losing weight, the pain persists every single day. I was also disappointed that integrative medicine didn't provide much help in my case.
While I am grateful that my oncology appointment went well and I should be feeling relieved, I don't feel well overall. I look forward to hearing what my new primary doctor has to say.

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@angierivas1 Good morning. I’m pleased with your news about moving—graduating” is a good word— to annual surveillance appointments. Thank you for asking about my appointments.

All of my tests and exams were negative for disease. Nothing new showed up. I’ve had GI problems off and on for about a year and at my appointments I talked with both my Integrative Medicine physician and my Gyn nurse practitioner. Omeprazole helps if I take the GI medication before going to bed. The GI problems include nausea, sometimes vomiting and diarrhea and occur in the morning. And no, since I’m since 73-years-old no one suggested a pregnancy test. 😳.

I don’t have the painful lump that you described. With these new symptoms that pop up of course I worry that this is a recurrence or a new cancer. In your place I would very much want more answers about the ongoing sternum pain. Here is what my nurse practitioner told me about any new pains. I’m supposed to pay attention over time whether a new pain gets worse and unrelenting. I’ve also had this discussion with my primary care physician and she says the same. The pains I’ve developed have come from physical activity and have gone away.

I do wish your specialists on your visit had been more helpful especially since you do not feel well. I hope your primary care physician will spend the time with you to help you get this solved.

Let me know what your primary care physician suggests?

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