My life is getting to be useless

Posted by kazeiler @kazeiler, 2 days ago

I am a 51 year old who has had everything go wrong with my body. When I was younger it was for severe migraines, then a large golf ball cyst in my right breast. Then PID which was so painful. Then endometriosis twice in 10 years and now again the pain. My abdomen started degrading to where there is almost nothing now. Just fat and skin no muscle. I’ve had atleast 30 surgeries. Including 3 pelvic prolapse surgeries. I then had been suffering for 15 years of Pheochromocytoma and diagnosed myself and was correct even though they said it wasn’t. I’ve always been correct when it comes to my body. A hysterectomy actually 2 times second to remove my cervix . So many surgeries and before each thing went wrong there was pain. I constantly begged for help. My body has been degenerating this whole time. I have issues with my feet and spine, neck and back. I’ve had to move quite a bit and some doctors were great but then we’d have to move. When I had Pheo I was treated like a dog and a drug seeker. The headaches were deadly. My heart rate would t go up in the hospital and I had no clue it was my blood pressure. Just thought hot flashes. Tremors, sweating. Hospital after hospital. Maybe 50 times or more. 15 years of it. I have PTSD from doctors. I miss my old ones but have to be where my husbands job is. I’ve been suffering with chronic pain all of my life. I’m in Michigan now where I’ve been doing everything they said paid for everything they did but still won’t put me back on my medication. I am now at home I do nothing. I can barely walk, sleep, sit. Anything. I can’t go anywhere or do anything I use to when I was being treated. When I was treated I had a job, did everything by myself. No I’m nothing! I’m literally dying in my house day by day. Has this world come to this, where my dog can get medication but I can’t. I have a psychiatrist but even she won’t give me clonazepam. I was on oxycodone and clonazepam. And other things I needed. I need a chance to be human again. Live without extreme pain. Cortisone shots, antidepressants and buprenorphine which doesn’t work at all. Or maybe a tiny bit. I cry everyday. Why? I have a prolapse again no pain treatment. Hernias, no pain treatment. My stomach muscle severe pain. When I was treated o never asked for more. I stayed on my same regimen day to day. Life was good I was still in pain but my doctors were good. I shouldn’t have to suffer this way. I’m writing this and I’ve never done this before but I wish a doctor could see me. A grown adult. I know my body better than anyone. I’ve tried everything in 30 or more years. I know what works. I pray for a humane doctor. I have just given up. Waiting or looking or even thinking there is one who cares about me. I can’t even shower. Takes me 3 weeks. But they don’t care. Please send me someone who will. pleas tell me what to do? Abby

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Abby, my heart breaks for what you are going thru. I too have pain and I am caretaking my spouse who is slowly dying. What keeps me going is my hope in a better future that is coming. It is promised in Revelation 21:3,4. It talks of a time with no more pain. I hope this brings you some comfort to know this is all temporary. For more encouragement please see jw.org

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Abby,
Tears came as I read your post. It just doesn’t seem right that you can’t get what you need to help you. As you say, even our pets can get medications for their pain.
Hoping that you will find a way forward.

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My goodness my heart goes out to you. You are not alone in suffering. It's very depressing and frustrating to say the least. I pray in the name of Jesus you be healed. May God bless you and keep you 🙏
Sincerely Joanna

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Hello @kazeiler, welcome. Thank you for pouring your heart out and explaining your health history. I'm sorry for your struggles. It definitely is not easy being in the position you are in physically and emotionally, but rest assured there is hope. I'm 52 and have been through my share as well. There were times when I felt less than, depleted and no sense of who I was, but I'm doing better now and it took a lot of work and determination. Sometimes hope lurks in small places you may have not have discovered yet, and sometimes that means being incredibly brave to conquer thinking outside of the box and making small changes one moment, one step, one day, at a time.

It's obvious you want to feel human again or you would not have come to Connect asking for help. We aren't doctors but we sure can share our experiences and offer positive, encouraging support to you. Who is your support system currently? Are there friends and family that you depend on?

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Take yourself to the Mayo Clinic and see someone you have to show up in person with your medical records and make a lot of noise if you have to
I bet they can and will help they need to see you in person to help you it won’t be a cheap or easy trip but after 30 years of spending your time and money it’s got to be cheaper if you can’t try a Reiki healer

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@jlf2 , @keona619. @tngrandma, @shannongail

When first responding to a new discussion – @mentioning" the member, for example "@kazeiler", ensures that the member gets notification of your reply as long as their notifications are turned on. I wouldn't want Abby to miss the wonderful support she received.

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@jlf2

Take yourself to the Mayo Clinic and see someone you have to show up in person with your medical records and make a lot of noise if you have to
I bet they can and will help they need to see you in person to help you it won’t be a cheap or easy trip but after 30 years of spending your time and money it’s got to be cheaper if you can’t try a Reiki healer

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@kazeiler
Abby, have you considered reaching out to Mayo Clinic like @jlf2 suggests?

Here is a link for more information about applying to Mayo:

http://mayocl.in/1mtmR63

Surely, jlf2 is right about it not being a cheap or easy trip, but may be worth checking into nonetheless.

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God Bless you. I am so sorry for your health issues. I know personally how tough it is.

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I am so sorry. I found a great holistic clinic in Burnsville, Minnesota. Are you near there?

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@rwinney

@jlf2 , @keona619. @tngrandma, @shannongail

When first responding to a new discussion – @mentioning" the member, for example "@kazeiler", ensures that the member gets notification of your reply as long as their notifications are turned on. I wouldn't want Abby to miss the wonderful support she received.

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Ok thankx I’m new here

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