My Life Depends on Using Enbrel

Posted by phxbarb @phxbarb, 4 days ago

So, I had sinus surgery with terrible congestion and infection. I was counseled to stop Enbrel while it healed. So I did. Missed about 6 injections of 50mg Sureclick. On December 3rd I could not use my hands or wrists. My back was just unrelenting pain and my neck the same. I got the Enbrel out and injected it. By the next day, I was ok. This is how fast it works on my system. Maybe it can also help someone else on here too.

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@phxbarb
Hi, This is a good explanation for why meds can help us have a better quality of life. I could feel my hands, wrists and neck too! I am on Medicare so there's no Enbrel , or any injectable, in my future. But they will cover the medications given in a medical infusion center. I have come to see the week or two weeks before my appointment as time I will be coping with the chronic pain and fatigue of RA.
I hope your sinuses have healed and you don't have to go off of Enbrel anytime soon. It is not an exaggeration to say your "life depends on Enbrel."

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Profile picture for jw9 @jw9

@phxbarb
Hi, This is a good explanation for why meds can help us have a better quality of life. I could feel my hands, wrists and neck too! I am on Medicare so there's no Enbrel , or any injectable, in my future. But they will cover the medications given in a medical infusion center. I have come to see the week or two weeks before my appointment as time I will be coping with the chronic pain and fatigue of RA.
I hope your sinuses have healed and you don't have to go off of Enbrel anytime soon. It is not an exaggeration to say your "life depends on Enbrel."

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@jw9 I am on Medicare too and Enbrel is covered for me. So you have to get an infusion ? I thought all Medicare was the same rules and laws but guess I am wrong. I actually got Enbrel free from the Amgen Foundation due to low income. This lasted for 2 years but now I am on my own with my Advantage insurance. United Health Care says it will be $35 a month, which should cover 3 injections. I am ok with that.

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Profile picture for phxbarb @phxbarb

@jw9 I am on Medicare too and Enbrel is covered for me. So you have to get an infusion ? I thought all Medicare was the same rules and laws but guess I am wrong. I actually got Enbrel free from the Amgen Foundation due to low income. This lasted for 2 years but now I am on my own with my Advantage insurance. United Health Care says it will be $35 a month, which should cover 3 injections. I am ok with that.

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@phxbarb
Thank you for taking the time to reply. Wow, I have to have a talk with my rheumatologist in January! It might be different state-by-state? But that doesn't make sense because we all know Medicare is a federal program. Unless states have payments that supplement.... I intend to get some answers. I have a friend who was covered under her husband's plan when we were both in our 30's. She got Humira injections, at the time I didn't have treatment. She went into remission and by 45 started a second career. It can't hurt for me to find out if something else is available but infusion therapy. I really appreciate your post!

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My wife has to go back on biologics after an upcoming heart procedure but we just saw a newly approved device from Setpoint Medical. It attaches to the Vegas nerve behind the neck and sends out an electrical signal once a day. The randomized trial showed at least a 20% decrease in joint inflammation. I saw that Northshore hospital was part of the initial trials while the list of other hospitals involved, at the moment, seem to be a secret.

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This is from AI. The short version is to make sure you pick a part D plan or advantage plan that lists enbrel on its formulary. This is easy to do on Medicare.com website. Also remember that with part D, medication costs are capped at $2000 per year.

Yes, Enbrel is often covered by Medicare, but only through certain types of plans and under specific conditions.[singlecare +2]
How Medicare Can Cover Enbrel
• Original Medicare (Parts A and B) by itself does not cover self-injected drugs like Enbrel; you generally need prescription drug coverage through either a standalone Part D plan or a Medicare Advantage plan that includes drug coverage.[oakstreethealth +1]
• Many Part D and Medicare Advantage plans do list Enbrel on their formularies, but coverage, prior authorization requirements, and out-of-pocket costs vary by plan and location.[medicalnewstoday +2]
Typical Requirements and Costs
• Plans usually require that Enbrel be prescribed for an FDA‑approved indication such as rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, or plaque psoriasis, and may require step therapy or prior authorization.[healthline +1]
• Enbrel is treated as a “specialty” drug, so coinsurance or copays can be high, but starting in 2025, annual Part D out‑of‑pocket spending on covered drugs is capped (around $2,000), after which the plan pays the rest for that year.[medicalnewstoday]
Help With Costs
• Some people qualify for Medicare’s Extra Help program or state pharmaceutical assistance programs, which can greatly reduce copays for Part D drugs like Enbrel.[singlecare +1]
• The manufacturer (Amgen) also offers financial support resources, though some copay programs may not apply to people with government insurance, so eligibility details matter.[enbrelpro +2]
What You Should Do Next
• Check your plan’s formulary (or use the Medicare Plan Finder) to see if Enbrel is listed, what tier it is, and what your expected copay or coinsurance would be.
• Ask your prescriber’s office and your specialty pharmacy to help with prior authorization and to screen you for Extra Help or manufacturer assistance based on your income and resources

REPLY
Profile picture for laura1970 @laura1970

This is from AI. The short version is to make sure you pick a part D plan or advantage plan that lists enbrel on its formulary. This is easy to do on Medicare.com website. Also remember that with part D, medication costs are capped at $2000 per year.

Yes, Enbrel is often covered by Medicare, but only through certain types of plans and under specific conditions.[singlecare +2]
How Medicare Can Cover Enbrel
• Original Medicare (Parts A and B) by itself does not cover self-injected drugs like Enbrel; you generally need prescription drug coverage through either a standalone Part D plan or a Medicare Advantage plan that includes drug coverage.[oakstreethealth +1]
• Many Part D and Medicare Advantage plans do list Enbrel on their formularies, but coverage, prior authorization requirements, and out-of-pocket costs vary by plan and location.[medicalnewstoday +2]
Typical Requirements and Costs
• Plans usually require that Enbrel be prescribed for an FDA‑approved indication such as rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, or plaque psoriasis, and may require step therapy or prior authorization.[healthline +1]
• Enbrel is treated as a “specialty” drug, so coinsurance or copays can be high, but starting in 2025, annual Part D out‑of‑pocket spending on covered drugs is capped (around $2,000), after which the plan pays the rest for that year.[medicalnewstoday]
Help With Costs
• Some people qualify for Medicare’s Extra Help program or state pharmaceutical assistance programs, which can greatly reduce copays for Part D drugs like Enbrel.[singlecare +1]
• The manufacturer (Amgen) also offers financial support resources, though some copay programs may not apply to people with government insurance, so eligibility details matter.[enbrelpro +2]
What You Should Do Next
• Check your plan’s formulary (or use the Medicare Plan Finder) to see if Enbrel is listed, what tier it is, and what your expected copay or coinsurance would be.
• Ask your prescriber’s office and your specialty pharmacy to help with prior authorization and to screen you for Extra Help or manufacturer assistance based on your income and resources

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@laura1970 So, did you sign up for Medicare part D?

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@laura1970 So, did you sign up for Medicare part D?

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@becsbuddy No, I have Medicare Advantage which covers drugs.

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