My Journey Through Addison's Disease

Hello, my name is Jessica Enriquez. I am 29 years old and this is my journey through Addison's disease.
I was diagnose at age 14. Still in middle school, I was unaware of what was happening to my body, and in many ways, I still am.
I felt free yet restricted in so many ways. I was rebellious, obstinate, outspoken and never wanted to do what I was told. I felt very angry many times, irritated and I did not know why. I was angry at my mother a lot. I felt she wanted to control me. What I did not know was that part of why I felt so anxious was that I was on the verge of an Adrenal Crisis. Of course, no one in my family had previous knowledge of autoimmune diseases and how these can strangely and silently (sometimes) affect your body and even your mind.
My mother was desperate. She could no longer handle my irrational behavior and was beginning to think something was wrong with me. Not medically, but in the way that mothers sometimes think something is wrong with their adolescent children. "Maybe she is doing drugs" she thought. But I wasn't. I was sleeping more, lacked energy and was moody all the time.
That was not all. My body was also acting in peculiar ways. My skin turned two shades darker. I was very thin and was not eating sufficiently. I craved salt excessively.
My parents were worried about my degrading physical condition, but my primary doctor insisted that it was all due to a mononucleosis infection I had surely caught at school. I needed rest and time to recover.
It was the summer of 2009. We were vacationing in Mexico City. I clearly remember walking half-way down my grandparents' staircase and sitting on the stone stair to catch my breath. I could barely take a few steps before I felt excruciatingly tired.
Of course, my parents took me to several doctors, there were many misdiagnosis. Cancer was even thrown in.
It was not until we came back home that my primary doctor, whom I am forever indebted to, decided to run other blood tests.
We got a phone call late at night. My mother picked up. I did not know at the moment, but my doctor had order the hospital to prepare a room for me. I would be staying. She thought she knew what I had but did not want to diagnose me without further, more precise analysis.
My first days at the hospital are still a blur.
I was diagnosed with Adrenal insufficiency the morning after my arrival. None of us were prepared for this diagnosis and none of us understood exactly what it was about and the repercussions it would have on my life.
After my initial diagnosis, I started following up with a pediatric endocrinologist - our visits were brief and our questions were seldom answered. As a child, I did not have a lot of questions. I had been diagnosed, I knew I had to take pills for the rest of my life and there was nothing more to it. My mother, on the other hand, was reluctant to accept such faith for her daughter. She could not accept that I had developed a chronic condition at such a young age. She wanted to understand why, how this had happened. Those questions were never answered.
Adolescence with Addison's disease was unconventional and not fun. I constantly fell "unwell" - too unwell to go to school, too unwell to get involved in after school activities, too unwell for friends. I had odd symptoms that I was unsure if related to my condition or not but that altered my daily activities and decisions. For instance, I woke up most of the days feeling nauseous. A part from that, I still lacked energy. I did not feel like my old self.
A few years later, I found that my body would never function in quite the same way. After a few visits to my primary doctor regarding irregular menses, I was diagnosed with premature ovarian failure. At 18, this devasted me because it meant there was little to none probability of becoming a mother in the future.
Ten years later, I decided to return to college to obtain my teacher certification. Currently, I work with kids ages 6-8 and I love my job. However, my condition is ever present. Last year, in the span of 3 months, I got Covid, Strep and Flu. A doctor I met at a local CVS told me that this phenomenon was probably due to my weakend immune system and that I would probably face this every winter.
This does not discourage me.
However, as a patient with Addison's disease, I would like doctor's to have a more holistic approach. To answer our questions when we have them and not simply brush them away or make us feel stupid. I have lived with this illness most of my life now, and I still have a hard time understanding it because no one ever took the time to properly explain anything to me. I think this is a right a patient has.
As an adult, this is something I still seek. Right now, I am suffering from bone pain that I have no idea if is a result of my condition, my steroid intake or my premature ovarian failure. Just as I don't completely understand the relationship between my Addison's disease and my POF or any other of my ailments.
A more informed medical practice is what I would like to advocate in this, my initial post.

Greetings to everyone!