My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Hi @katgob Merry Christmas to you as well! As a fellow transplant survivor I know how much each holiday, each opportunity to be with loved ones means to us! We were given a 2nd chance and understand how precious it is to live each day.
It’s a shame that your siblings weren’t able to celebrate together with you…even if it’s not celebrating the holiday, just being together can be so meaningful. I’d say it’s their loss as you’d bring sunshine into any conversation!
Wishing you a Happy and Healthy New Year, my friend! 🥰

For those who celebrate Christmas, I hope this year is special for you. In treatment or out a year or too. My family of my older sister and younger brother are not celebrating with me or with each other. As we have aged, things are not as they were with my mom or Dad here. Just last year i celebrated with few as i was in my 1st year past transplant.

I am so happy for you for the amazing humans who have made it to transplant and survived to share with us ! My 31 year old son was just diagnosed 10/3/25 with AML we eventually got worse news that he has AMoL and has a mutation KMT2A rearrangements . He was first diagnosed and treated at Unity Point IA Methodist hospital in Des Moines IA treated there then sent to mayo . This is scary it seems like every step forward it’s one or two steps back! He’s at mayo in remission getting HIDAC chemo and targeted drugs for his mutation until we can find him a stem bone marrow donor. Congratulations like to read the positive outcomes so i can concentrate on him and not worry every second of every day

@loribmt
Good morning the lady with beautiful heart❤️
My husband is doing absolutely fine . Thanks so much for asking and remembering us.
"I'm so grateful for your support," "Thank you for your time and effort," and "I can't thank you enough for your help; you've made a real difference".
He has no signs of Covid anymore in his body now , but precautionary We are keeping him on resting mode safely inside the house for few more days . His other tests are also looking good , its just that his Hemoglobin is not showing going up and also his weight seems just stuck with 68 kg. Is There anything his weight can be increased ????His appearance overall is better and I am hoping it might goes well now onwards . My In-laws are here till January mid ,they are playing a good role here in his Sons recovery. I am so grateful to God for giving his another life . My Son will be going University next year preparing for another big change in Life . Overall going smooth , Life is having ups and down but We need to go get up every time whenever its low . Life is beautiful I pray to God everyone lives a good life .
You have always been my biggest cheerleaders. Thanks for your Support @loribmt
May God shower happiness and beautiful life ahead.

@katgob you continue to inspire. My husband is now 15 months after SCT for high risk MDS. We had a bone marrow biopsy this month showing 100% remission and 100% donor chimerism. Some GVHD but very grateful this Thanksgiving. Be well!

Slow posting. Well, I had my 6-month CT scan last month. My nurse was out on vacation, and the doctor did not have anyone upload the report to the portal. He has never called or reported any results like that. His staff does. My nurse answered my question in the portal when she returned the 27th. She said the results are good. What is good? Might i see the report??? It was posted the next morning. What was good was the thyroid to the lungs, no new growths and what is in my lungs is lessening. I had not been worried, and it was a reminder to not worry. What is there will hopefully stay as is. I feel good when i walk, jog and sometimes run. Frankly as i have said, some days it is hard to believe I had a transplant.
Taking Gerontology classes in 2020, I took a class on death and dying and was tasked to write my own obituary. Since then, I always read them in the LA Times. Over the weekend I read two that made me stop and think. Both accomplished men and both having had BMT's as that was the solution for their AML. Three years was the extra time they got. It made me think how each of us has different factors. I had MDS and did not follow a watch and wait to see if mine progressed to AML. The stars aligned once i found my caregiver to house me for 70 days. Having my BMT at City of Hope was a blessing. My younger sister goes to see a new Dr. at her cancer hospital in Western NY. They are starting a new division focusing on genetics and treatments. My sister sent me his name, and I looked him up. I am letting my sister know what symptoms I had and how i got to a BMT.
TP53 mutation, 5 Q deletion, chronic low white cells and platelets. Getting worse and not better. My bone marrow biopsy showed these results and the fact my blasts were less than 3% at this time. This was 2 years ago. Crazy. I said to my sister when the results came in for the BMB and the Dr. said MDS, I thought he was wrong. No way. Then i looked at the official results he showed that were confirmed by labs. It was my official blood results. Not ones he made up. Today I know if i have a yearly visit with this office, I will keep in mind my health is what i do for my body.
So, for today, I still walk, most days, 6 miles a day and drink half my body weight in oz. of water.