My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Happy Birthday @katgob !
A momentous day in your new life! Congratulations on your 500 day post transplant milestone too.
So happy you are feeling well and making plans for the beautiful Fall ahead.
So great to hear a positive update from you.

We just received favorable results on my husband’s most recent BMB. We are riding the waves of joy and anxiety as these biopsies are done every 3 months for his original high risk AML. Also 100% chimerism, stable labs, tolerating monthly maintenance therapy, and proceeding with all his vaccinations too. He also just received his second shingles shot, Amen!
He is closing in on 1.25 years post stem cell transplant anniversary! We literally say a prayer out loud every day together, thanking God for another day. We’re right there with you!

Keep drinking lots of water, enjoy your meaningful work, and have fun!

Mary

Quiet. On Monday the 25th i turned 65 yrs old. Crazy. At my 6-week follow-up my dang creatinine was off. I knew it as i did not drink enough water at work. Everything else was good. I hit 500 days past transplant then. I also got 2 vaccines. One was the 1st of 2 shingles. Yea i said to the NP. I had wanted it. My nurse who gave me the vaccines told me her dad had shingles on his back. The Mom had to help him with ointment, but their fighting took over. The nurse said neither will get the vaccine. Her parents live in Japan.
I had applied for Medicare, although i put in i still have medical until i retire. My NP had asked me if i applied and she suggested i go speak to the financial lady to make sure i am squared away before i turn 25. Well miss Maddie was able to look in Social Security to see i had the medical assigned and would be paying starting Sept 1st!!
I went in Monday the 25th, filled out the form needed to cancel the Part B, made the appointment they requested and headed out on my Monday funday. I have some weekends planned in September, and every day i thank God I got a transplant that has worked. I look forward to seeing when my blood changes to O from A. That had not happened. The 100% chimerism did, so the COH was happy. This reminded me of the lady i met at the celebration for donors earlier this year. She works in the lab that comes up with those chimerism numbers. She was happy to hear of mine as she said they are thrilled when the magic 100% arrives.
It is a team effort when treating us.

What a wonderful update! It is so good he has you to advocate for him too. I was often asked if i had itching. I did for a short time i remembered but with my breast cancer not my BMT. Our bodies react and we often do not know of a problem until our body tells us.
A positive attitude and living each day as morning comes. No worries. Lori always says we are patients for life after a transplant. Anything we are worried about we tell our transplant team.
I hope there is more consistent good days every day.
Good health and peace in your days.

I love you found out your donor is from Poland. With Be a Match, that only share age!!

Oh happy day!! @anitasharma, this was such a wonderful message! I’m so thrilled to see that your husband is home already and doing so well after his bone marrow transplant.

I know how concerned you and your family were for your husband with his challenging chemo treatments for ALL and then finding out he’d need a BMT to help keep him in remission. So it’s with enormous relief and happiness for your husband and your entire family that this has been a positive experience.
His parents had to be overjoyed to see him again after the 3 years apart and not quite knowing what to expect. And your children! Aww, seeing their dad again through eyes of hope instead of despair is moment they’ll remember forever. I can feel your enormous, loving sense of pride for your son stepping up to the plate to give his dad this amazing gift of life with his stem cells.

Anita, you have a strong, beautiful family and you fought hard to keep everyone together! I’m so glad you found Connect and that we members who have had BMTs were here to help you navigate this uncertain journey. Please give your husband a hug…yes, from a complete stranger…but I’m old enough to be his mom. ☺️ I share in your joy!!
I will echo what you wrote…stay happy, healthy…and live life to the fullest!

Hello Beautiful People
Just praying for healthy life for everyone .
Hey @loribmt ,It feels immense pleasure to announce my husband is back home Post Allogenic Transplant on Day+85 which was July 27,2025. Yes I must say he is recovering better ,I cant be thankful enough to God and beautiful people just like you who came forward to motivate personally or side by side . All of your advise, Suggestion, Stories, and other perspective are really worthful in his transplant journey . I am really thankful from bottom of my Heart to all the people reading this.
As usual in the starting he was having appetite issues like feeling full or not much hungry but gradually its improving day by day . also he is having sometimes itchy forehead n body parts and its better these days .
My husband is so happy met with their parents after 3 years ,spending a good quality time all together now . My kids were happy to see his cheerful face after this horrible things .My Son suddenly behaving so responsible and big as a family member touchwood .
its a hard though Positive attitude and will power always win at the end.
So I'm hoping everything gonna work slowly . One day I will share this story with others and tell them you will surely Win the Game .
Finger crossed , stay happy and Healthy you all Strong people . Enjoy your time and live your life to the fullest .
See you for the time being!

Good morning @loribmt
I want to share a very helpful education resource from LLS and an expert from Stanford. Since my husband’s AML diagnosis and transplant last year I have read a lot, researched to the best of my ability. This session really impressed me as being easy to understand, and hopeful! It’s free to access as well.

It’s one of the most comprehensive overviews of AML and treatments, including news on research for exciting emerging treatments.
https://www.lls.org/patient-education-webcasts/breakthroughs-and-progress-acute-myeloid-leukemia-aml
Wishing everyone good health, and peaceful days!

Mary

Thanks guys! I feel like you are all here with me!

Good hygiene, covid style. My cats have been my buddies. Take it a day at a time. We are here to support.

Thinking of you today, Diane! Joining along with Deb, Mary, Kat and the BMT gang in sending you hug and ‘best wishes’ for smooth sailing ahead. 💚💙 (transplant colors!!).

Just sent you a PM. Hugs!