My biopsy is scheduled soon on my upper right thigh (sarcoma)

Posted by rond306 @rond306, May 2, 2023

Since cancers have been in my family and the look on the doctors face , says it all .. I am already assuming a sarcoma in my upper thigh . Of course I do not like what I read and have been emotional since my evaluation yesterday .. Has anyone had a sarcoma removed in upper thigh ? I like to know what I am in for moving forward . Please respond .. I can deal with a lot being a NYC kid at heart , my 10 year old boy is my biggest concern . This part of life is difficult . My father passed away when I was 27 of prostrate . I am now , Same age group as him and now it’s my turn .. A different event yet in the same ball park .. . Can people survive a long time getting these sarcomas removed ? I never thought I would be reaching out …. I just know something is not right …. I know my body . God Bless everyone here .. I get it …

Interested in more discussions like this? Go to the Sarcoma Support Group.

Yes, I had a sarcoma in my upper thigh removed. I first noticed a lump in my thigh in November of last year. I had an ultrasound, MRI and a biopsy that confirmed myxosarcoma. I had a CT scan and a PET scan as part of the staging in December. For me, this diagnostic phase was very trying. I met my sarcoma team in late December and I started 5 weeks of radiation in January and had surgery in March (clear margins) and again in April because of dehiscence. I am seeing my surgeon today to finally have the drain removed after 70 days. I will have my first quarterly scans in June. So I cannot speak to long term survival but having trusted doctors and a treatment plan is essential. Good luck to you and please stay in touch!

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Surgery is the first urgent treatment. It can literally save your life if early enough.

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Yes. Chondrosarcoma in right femur and knee that entered soft tissue. Femur jingle and tibia head replaced with titanium. I also lost 3 quadriceps. I managed to walk unassisted after 3 months. Unsteady. The cancer metastasised and I now have multiple Cs tumours. This is rare. Key issue is if it is dediferenciated. .

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Treatment was difficult .. thanks .. be well .. will explain this week

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@rond306

Thanks So much Jen .. hey today was first day I went outside in a week .. with my umbrella , and 100 spf protection and ordered some long light clothes …. …there was a little game …. I have to see my son , Lol Even though , was the worst day in a few years for him … So I am not sure I should have went out today ….ha! Regardless , this started my energy in the right direction … now my son knows pop is coming out to motivate the team ….. is he happy ? lol I am . … I love to see the kids playing ball …. Obvious I played for years …… One day at a time for sure … I see I only have few hours of business outside now …. Hey that is good … to all the Father god bless …. Keep tough …. This is another adjustment ! Keep adjusting till you find what works for you !

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Hello @rond306, just thinking of you and wondering how your treatment is going. Do they have plans made for surgery yet?

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Thanks So much Jen .. hey today was first day I went outside in a week .. with my umbrella , and 100 spf protection and ordered some long light clothes …. …there was a little game …. I have to see my son , Lol Even though , was the worst day in a few years for him … So I am not sure I should have went out today ….ha! Regardless , this started my energy in the right direction … now my son knows pop is coming out to motivate the team ….. is he happy ? lol I am . … I love to see the kids playing ball …. Obvious I played for years …… One day at a time for sure … I see I only have few hours of business outside now …. Hey that is good … to all the Father god bless …. Keep tough …. This is another adjustment ! Keep adjusting till you find what works for you !

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@rond306

You are both the best and the rest of the people here , from all walks of life . Chemo round one is done . Definitely amazing to be sitting there with all these bags of chemicals going through your veins. Then at some point the realization deeply sinks in , you are a Cancer patient. I am not sure how you really feel. Almost like a lepper? Again I get to feel different in life. What else is new . As I looked around at all the sick people I am actually one of them now. Strangest feeling .Another phase of life . I can see this will not be easy , I will fight mentally like a son of a B… Talk about a life style change ! God bless everyone , if you need to talk about anything , please message me .. enjoy your weekends and days … Hang in there , no on said the life was easy. Nothing new to Me !

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@rond306 I am very happy you have posted as I have been wondering how you are doing! So happy to hear round one of chemo is completed. Take one day at a time, and before you know it you will be through this phase. I remember with my son it felt like there was a total change in perspective, life before cancer (BC) and life after cancer diagnosis. It is a new life, but you are strong and can do this! Warm hugs for your journey! -Jennifer
PS. Happy Father’s Day!

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You are both the best and the rest of the people here , from all walks of life . Chemo round one is done . Definitely amazing to be sitting there with all these bags of chemicals going through your veins. Then at some point the realization deeply sinks in , you are a Cancer patient. I am not sure how you really feel. Almost like a lepper? Again I get to feel different in life. What else is new . As I looked around at all the sick people I am actually one of them now. Strangest feeling .Another phase of life . I can see this will not be easy , I will fight mentally like a son of a B… Talk about a life style change ! God bless everyone , if you need to talk about anything , please message me .. enjoy your weekends and days … Hang in there , no on said the life was easy. Nothing new to Me !

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@jennifer0726

@rond306 You have a great attitude and I am sure you will figure out how to fill your time. With my son, they gave anti-nausea meds with his in-patient chemo that can
make you sleepy, as well as IV hydration. You may want to sleep or you can do any or all of the suggestions you mentioned. They will monitor you to make sure there aren’t any reactions, but if you feel up to it, I can imagine you could do laps around the unit. Bring a book or a tablet loaded with books on the kindle app., games and Netflix, etc. The hospital where my son was treated allowed him to use vouchers for the cafeteria instead of ordering off the menu so he could eat whatever appealed to him as chemo can affect the tastebuds. Take one day at a time. Hopefully the chemo will start shrinking the tumor right away! I am doing well, thank you. An outpatient procedure in July for a different issue, but hopefully that will be all until my annual transplant testing late Nov or Dec. All good!
You may meet others to exchange ideas and make friends in the hospital or if you search online for your type of sarcoma which can help. Not everyone’s path is the same, but sharing info is helpful. Take care and keep us updated!

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Jennifer I am ready to see results .. just awaiting schedule .. let’s get this project done ! The best with you and family .. always ! This platform has helped me . Thanks Mayo

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Angela , thanks so very much . That is good to know . I am so happy I came here . Many great people who have been through much more than myself . I always feel for people going through tough times physically .In the next 24 hours I should know my treatment plan. Yes I came to grips with all of this .. i have moments of emotions , yet the major impact has sunk in. I want this shrunk , a bit large and can see it now more so . Sure it bothers me , just feels like a bad muscle pull. So I wish . We will get this project done . I actually can not wait now , so we get started .. the best to everyone from my heart .. God Bless

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