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My 84 year old mother diagnosed with Glioblastoma
Hers is wildtype grade 4, main tumor in the right frontal lobe and 2 satellite tumors nearby. Left side paralyzed and having a hard time activating core. She is doing radiation but with her mobility it is so challenging. I am the main caregiver and have hired round the clock care for her. Her cancer genetics are not great - MGMT negative. Should I be looking for clinical trials, doing more (like what?!), she is being treated at Stanford so I am assuming top care but maybe I should be researching more. Surgeon who did biopsy (wonderful and competent and highly recommended by a friend) said even a partial resection was not possible — should I get a second opinion? I just feel like I am not doing enough but am also inundated with calls, care, logistics etc. any advice appreciated. Thank you.
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Sending prayers------------- sent. i am a firm believer in prayer and prayer warriors, prayer groups and prayer chains, my case was not as bad and just a step down from your moms. wish i could help more and give better advise . this is a tough one to come back from and healing time seems like forever. but can come with strength and fight, my reason to get back to healthy is my daughter and her family, warmest wishes for you and your mother. have a blessed day.
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3 ReactionsGabrielle: You have already done everything possible to ensure your mom is getting the best care. Stanford is excellent and you are fortunate to apparently live close enough to access their health care services without too much inconvenience. (I would only get a second opinion at UCSF but feel you will be told the same thing.) You have stepped up to the plate to oversee your mom's health care during this diagnosis. You are under a lot of stress. Let the systems you have in place (Stanford care team, around-the-clock care takers) do their jobs and as your mom's primary care advocate you need to also take care of YOU.
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3 ReactionsSending prayers! Life is tough enough as one gets older, in the 80’s, so to have this diagnosis is devastating, for patient and family! Sending you positive thoughts as you deal with this!