Muscle weakness and atrophy with severe joint pain and never goes away

Posted by 4grace @4grace, Jun 5 2:15pm

I’m 55 years old and have Muscle weakness and atrophy with severe joint pain and never goes away. Muscles won’t stretch much on left side and severe pain like torn muscles. I have sclerosis in my hands, osteoporosis in many joints, lesion on arm, and many other things. Been through many doctors and St Louis hospital refused me. Fell in 2020 which exasperated muscle weakness and tremors to a point can’t sit/ stand up for more than 20 min. It’s like my muscles move sideways and never stop even when resting, heart does at times too. Also have vocal cord fold as well. If anyone has had this or been diagnosed with similar please let me know !!

Hello @4grace, Welcome to Connect. I know it must be frustrating when you have seen so many doctors but have not been able to get to the bottom of what is causing your symptoms and pain. It is possible that there is more than one condition causing your symptoms. You might find the following article helpful.

Why do I feel shaky, weak, and tired? What can I do about it?: https://www.medicalnewstoday.com/articles/feeling-weak-and-shaky-and-tired

Have you thought about seeking help at a major teaching hospital or health facility like the Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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@johnbishop

Hello @4grace, Welcome to Connect. I know it must be frustrating when you have seen so many doctors but have not been able to get to the bottom of what is causing your symptoms and pain. It is possible that there is more than one condition causing your symptoms. You might find the following article helpful.

Why do I feel shaky, weak, and tired? What can I do about it?: https://www.medicalnewstoday.com/articles/feeling-weak-and-shaky-and-tired

Have you thought about seeking help at a major teaching hospital or health facility like the Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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Mayo doesn’t take Illinois Medicaid.
And if you get financial help from Mayo you have to self pay then they help, well I have no money to
Self pay anything.

I have exhausted my resources and my muscles are waisting away.

My ex husband took me in to caregiver for me in October 2020

I am stuck and yes I need Mayo, the hospitals in Illinois in my 2 hour radius are no help, just stuck and worn out

It’s like my muscle move so much that exhaustion is all I have left

My grandmother went to Mayo in 1983 and back then labeled her as motor neuron because they were not sure and she passed in 1984. But research has labeled it ALS now.

My NP wanted me to go To Mayo But as I said they don’t take Illinois Medicaid

Here at the doctors in Illinois no one will listen to my symptoms they just pass me off to the next person.

Just exhausted is all

Yes I will check that article out
Thanks for your answer

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@4grace

Mayo doesn’t take Illinois Medicaid.
And if you get financial help from Mayo you have to self pay then they help, well I have no money to
Self pay anything.

I have exhausted my resources and my muscles are waisting away.

My ex husband took me in to caregiver for me in October 2020

I am stuck and yes I need Mayo, the hospitals in Illinois in my 2 hour radius are no help, just stuck and worn out

It’s like my muscle move so much that exhaustion is all I have left

My grandmother went to Mayo in 1983 and back then labeled her as motor neuron because they were not sure and she passed in 1984. But research has labeled it ALS now.

My NP wanted me to go To Mayo But as I said they don’t take Illinois Medicaid

Here at the doctors in Illinois no one will listen to my symptoms they just pass me off to the next person.

Just exhausted is all

Yes I will check that article out
Thanks for your answer

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Where are you in Illinois? Perhaps someone can chime in with another resource for you to try.
Sue

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I live in a Chicago suburb. A possible suggestion is to go to a doctor at Stroger Hospital in Chicago. It is my understanding that they routinely take in people on Illinois Medicaid. And, they are very experienced, since they have “seen it all”.

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@sueinmn

Where are you in Illinois? Perhaps someone can chime in with another resource for you to try.
Sue

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Well I’ve been in Illinois sense October 2020 I am 2 hrs from St. Louis 2 hours from Indy which doesn’t take Illinois Medicaid and I’ve not tried Springfield but they would be 2.5 hours away also they could help me when had vocal fold

I’m exhausted I need Mayo my doc wants me to go and as far as chumming in there is no one
Like I said I’ve exhausted resources and only have my ex husband to help and hoped asking if someone has similar symptoms I could find some answers

2015-2018 I was severe and Washington university at Barnes in St. Louis diagnosed me with vocal cord dysfunction or also vocal fold which at that time was almost to passing out because air could get my vocal cords and asthma like attacks coughing for 20-40 minutes from irritants in the air- I literally could not breathe the very air I was breathing even carpet threw me in coughing fits and my opening was 75-80% closed but if some irritant happened then I was more closed

Now they refuse me things changed at St Louis

I possibly may try Chicago but they are 4 hours away but wouldn’t know where to start
And as far as my doctor here the NP told me to get a MD and it’s so rural here in this area there’s just no place to go especially getting a doctor to accept you and also accept Medicaid

Like I’ve mentioned I’m exhausted from even trying and hoped someone with similar symptoms would speak up

Thank you for your thought.

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@bjgwellness

I live in a Chicago suburb. A possible suggestion is to go to a doctor at Stroger Hospital in Chicago. It is my understanding that they routinely take in people on Illinois Medicaid. And, they are very experienced, since they have “seen it all”.

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Thanks I may have to do that but it’s 4 hours away and travel hurts me bad and it’s a lot to ask for my ex as well

But if all fails which has lol we may have to go that route
Thanks again for your suggestion

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