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multiple vaginal mesh complications

Posted by schmkat01 @schmkat01, Sep 27 2:08am

I had a vaginal mesh implant 20 some years ago. It worked great for 15 years. Then, the mesh migrated into my vagina. My urologist trimmed the mesh and sutured the problem area. I continued to have incontinence and bleeding from the vagina. I then had another surgery removing the vaginal sling and replacing it. The incontinence and bleeding didn't stop. My urologist has tried Botox in my bladder, a newer bulking agent around my urethra (twice) and nothing seems to stop the now constant dribbling, frequent urgency, the inability to empty my bladder fully and vaginal bleeding. I am at the end of my rope with this constant issue. Does anyone have any further suggestions about what can be done?

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celia16 | @celia16 | Sep 27 3:55am

What did you think of the botox? My mom is struggling with almost continuous nighttime urination. She wears incontinence products, but still gets up multiple times a night. She had mesh years ago too.

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1 reply
Profile picture for Terri Thompson
Terri Thompson | @territhompson1956 | Sep 27 9:19am

I had mesh many years ago. I had rectal prolapse. That hole area needed support. My doctor decided to experiment on me and not tell me. Some docs were using orthopedic sutures. It was suppose be stronger. Well let me tell you. I was a mess! The suture started coming through into my vaginal wall. Serious drainage and odor. When I went for FU visit he sees the suture. He decides to try to pull it out pluck it out and nothing for pain. It was very traumatizing. Terrible. I’m sure I got an antibiotic for infection. I went back again for follow up and again he picked and pulled on suture. This happened 2 or 3 times. I do believe 3. After that appointment I told him “no more”! Take me back to surgery and get this stuff out! So that’s what happened. Truly one of the worst situations I’ve been in. I had an hour drive home after each appointment that I just cried It was such a painful experience. I didn’t know he “experimented” until he had to tell me. I was so angry I couldn’t see straight. Now I have urinary incontinence the worst ever (for me anyway)I did the most recent implant for urinary incontinence but it only worked about 6 months. Now I gush which soaks my close. I’m wearing this giant pad and I’m sick of it all. I’m peeing a lot that I don’t even realize. I don’t know if I have any other options. Between constantly peeing on myself and long term COVID I’m extremely frustrated and sometimes depressed. It’s awful!😞

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2 replies
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celia16 | @celia16 | Sep 27 10:57am
In reply to @territhompson1956 "I had mesh many years ago. I had rectal prolapse. That hole area needed support. My..." + (show)
Profile picture for Terri Thompson @territhompson1956

I had mesh many years ago. I had rectal prolapse. That hole area needed support. My doctor decided to experiment on me and not tell me. Some docs were using orthopedic sutures. It was suppose be stronger. Well let me tell you. I was a mess! The suture started coming through into my vaginal wall. Serious drainage and odor. When I went for FU visit he sees the suture. He decides to try to pull it out pluck it out and nothing for pain. It was very traumatizing. Terrible. I’m sure I got an antibiotic for infection. I went back again for follow up and again he picked and pulled on suture. This happened 2 or 3 times. I do believe 3. After that appointment I told him “no more”! Take me back to surgery and get this stuff out! So that’s what happened. Truly one of the worst situations I’ve been in. I had an hour drive home after each appointment that I just cried It was such a painful experience. I didn’t know he “experimented” until he had to tell me. I was so angry I couldn’t see straight. Now I have urinary incontinence the worst ever (for me anyway)I did the most recent implant for urinary incontinence but it only worked about 6 months. Now I gush which soaks my close. I’m wearing this giant pad and I’m sick of it all. I’m peeing a lot that I don’t even realize. I don’t know if I have any other options. Between constantly peeing on myself and long term COVID I’m extremely frustrated and sometimes depressed. It’s awful!😞

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@territhompson1956, omg….so sorry. What a terrible experience…..and still with issues….I wish I had more knowledge on this. What are they recommending at this point? Yours sounds much like my mom’s syndromes. I have no idea what she’s going to do.

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schmkat01 | @schmkat01 | Sep 27 11:37am
In reply to @celia16 "What did you think of the botox? My mom is struggling with almost continuous nighttime urination...." + (show)
Profile picture for celia16 @celia16

What did you think of the botox? My mom is struggling with almost continuous nighttime urination. She wears incontinence products, but still gets up multiple times a night. She had mesh years ago too.

Jump to this post

Hi Celia-- I'm sorry to say that it didn't work at all for me. My doc has tried everything except for the implant device, which we're going to discuss during our next appointment. I'm so sorry to hear about your mom. It's such a frustrating way to live.

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Profile picture for schmkat01
schmkat01 | @schmkat01 | Sep 27 11:39am
In reply to @territhompson1956 "I had mesh many years ago. I had rectal prolapse. That hole area needed support. My..." + (show)
Profile picture for Terri Thompson @territhompson1956

I had mesh many years ago. I had rectal prolapse. That hole area needed support. My doctor decided to experiment on me and not tell me. Some docs were using orthopedic sutures. It was suppose be stronger. Well let me tell you. I was a mess! The suture started coming through into my vaginal wall. Serious drainage and odor. When I went for FU visit he sees the suture. He decides to try to pull it out pluck it out and nothing for pain. It was very traumatizing. Terrible. I’m sure I got an antibiotic for infection. I went back again for follow up and again he picked and pulled on suture. This happened 2 or 3 times. I do believe 3. After that appointment I told him “no more”! Take me back to surgery and get this stuff out! So that’s what happened. Truly one of the worst situations I’ve been in. I had an hour drive home after each appointment that I just cried It was such a painful experience. I didn’t know he “experimented” until he had to tell me. I was so angry I couldn’t see straight. Now I have urinary incontinence the worst ever (for me anyway)I did the most recent implant for urinary incontinence but it only worked about 6 months. Now I gush which soaks my close. I’m wearing this giant pad and I’m sick of it all. I’m peeing a lot that I don’t even realize. I don’t know if I have any other options. Between constantly peeing on myself and long term COVID I’m extremely frustrated and sometimes depressed. It’s awful!😞

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That sounds absolutely horrifying! I'm so sorry to hear about what you're going through!

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Profile picture for celia16
celia16 | @celia16 | 6 days ago

My recommendation would be to get my mom in for an evaluation at Duke urology. We are close by. But….she’s 84 and not very mobile. She also has significant anxiety. I can’t imagine she will go for it.

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laura1970 | @laura1970 | 1 day ago

I agree with @ celia16 a large university hospital or regional center would be best

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gravity3 | @gravity3 | 1 day ago

How about a second opinion? Are you in an area with a major teaching hospital like Mayo, John's Hopkins, Stanford, ucsf, cedar sinai, etc

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