Multiple myeloma survivor: How do you live without fear of relapse?

Posted by smithsuzanne404 @smithsuzanne404, Nov 3, 2022

Hi I'm a 12 year survivor of multiple myeloma my biggest problem is arthritis and I just want to live a fulfilling life without fear of relapse and pain from arthritis

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Patty, Volunteer Mentor | @pmm | Nov 4, 2022

Congratulations! It’s hard for me to discern which symptoms are related to disease and which are symptomatic of an aging body.
I don’t know how to avoid fear of relapse but I would say that 12 years is impressive!

Patty

teedlum | @teedlum | Nov 5, 2022

Congratulations! Thank you for sharing such encouraging news. 😊💐

Colleen Young, Connect Director | @colleenyoung | Nov 6, 2022

@smithsuzanne404, multiple myeloma is such a beast when it comes to fearing relapse. The fear can be paralyzing when you just want to live your life without worrying about every out of the ordinary ache or anomoly with your health.

I think you might find the attitude and story of @ilse to be inspiring:
- A 30-year Multiple Myeloma Cancer Journey at Mayo Clinic https://connect.mayoclinic.org/blog/hematology/newsfeed-post/a-25-year-multiple-myeloma-cancer-journey-at-mayo-clinic/

Others like @teedlum @pmm @gingerw @wyom1998 @lisal64 @ancopau1998 @auntieoakley @lkzvlk will likely wish to chime in on this question.

Suzanne, how do you calm your fears when the idea of relapse comes into your head?

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