I have smoldering Myeloma. Does anyone have this diagnosis?

Yes, seems quite a few of us do. Can you search this group for “smoldering”?

My Dr, diagnosed me with Smoldering IGG kappa multiple myeloma

Yes, I was diagnosed with SMM in February, my oncologist is doing the wait and watch method for now, It is a little confusing to me, why can’t doctors treat it now instead of waiting until it turns into active MM?

@treinbold Welcome to Mayo Clinic Connect!

I am attaching several articles here that speak to your concern. While smoldering multiple myeloma can advance into multiple myeloma, it is not generally considered a cancer.

From MD Anderson: https://www.mdanderson.org/cancerwise/6-facts-about-smoldering-myeloma.h00-159538956.html
From Memorial Sloan Kettering Cancer Center: https://www.mskcc.org/cancer-care/types/multiple-myeloma/other-plasma-cell-diseases/smoldering-multiple-myeloma
And from the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/23911-smoldering-multiple-myeloma#:~:text=What%20is%20smoldering%20multiple%20myeloma,system%20mutate%20into%20abnormal%20cells.

Have you been diagnosed with smoldering multiple myeloma? Many of us are diagnosed first with MGUS during a routine labwork for another condition. If so, what is your medical team advising you at this time?
Ginger

Does anyone have SMM

Is SMM considered stage 1 MM?
Has anyone’s doctor tell them SMM is cancer

@2012can When I started in 2016, it was Velcade, Revlamid, and Dexmethasone. Over the years there were changes that involved dosage adjustments. We all are different and there is no "one size fits all". I hope you are finding confidence in your care team and participating in decisions with them. Peace, Nancy

Best of luck in getting your condition diagnosed. No oncologists or hematologist./oncologist experienced with MM in Vegas? Have you checked with the University of Nevada Las Vegas health system?

I have Smoldering Myeloma, begain 14 years ago. when a M spike was found, told that I would probably always have MGUS, then they detected iron deficiency anemia. Had blood transfusion (20) and a lot of iron infusions. Now, I am stable but they are reconsidering the iron defiency anemia. I am guessing it may be a form of hemolytic anemia. I was on 4 month follow-up for many years and now on 3 week follow-ups. My hemo-onc and the PAs want me for testing but are mum about what I have. I want to decide before I move in the summer to Las Vegas. They don't anyone experienced in MM there, so will try to go to CA for checkups on the MM and have local hemo/onc deal with whatever I have,

It's been a process for me. First comes lab results for tests done for a totally different issue which reveals "abnormalities". So you get the recommendation to see an oncologist. Which, for most of us, is the same as getting a death sentence. You see an oncologist, get more blood tests, and are diagnosed with Asymptomatic or Smoldering Myeloma. You're told it's not quite cancer but ... and are given information regarding SM including the big one: the % chance it might progress to Multiple Myeloma each year. So you're started on quarterly blood/urine tests, perhaps have a full body x-ray and/or a PET CT scan. Your results may be stable or show degradation. At first I obsessed that I had SM but now I live with it stress-free. It's out of my hands except for trying to live as healthy as I can. Best to you.