I have smoldering Myeloma. Does anyone have this diagnosis?

@treinbold Going onto treatment for a condition, when that condition has not been diagnosed, can be very costly not to mention unneeded. There can be many side effects from the multiple myeloma treatment, some of which are very unpleasant. Personally, I wouldn't wish them on anyone!

Active surveillance of your condition, by periodic blood tests, is the accepted protocol.
Ginger

I add my welcome, @treinbold. I moved your questions to this active discussion:
- I have smoldering Myeloma. Does anyone have this diagnosis https://connect.mayoclinic.org/discussion/multiple-myeloma-i-have-smoldering-myeloma-does-anyone-have-this-diagnosis/

I did this so you can read previous posts and connect easily with fellow SMM members like @carolee888 @gingerw @richardab @lfevold

You may also be interested in this discussion:

– Newly Diagnosed with Smoldering Multiple Myeloma: Watch & wait https://connect.mayoclinic.org/discussion/newly-diagnosed-with-smoldering-multiple-myeloma/

And this video with Mayo Clinic hematologist Dr. Kumar
– Multiple Myeloma: Smoldering, disease progression, and changes in approach: https://connect.mayoclinic.org/page/hematology/newsfeed-post/smoldering-myeloma/

For some people watch and wait can be disconcerting. I prefer to call it active surveillance. How do you feel about active surveillance as your primary treatment option?

How often should you get MRi and /or bone marrow biopsies when you have Smoldering multiple myeloma?

My understanding is that it isn’t appropriate to treat a condition that only should be watched. My understanding is that the majority of mugus patients do not progress. And as a doc said to me one time “watchful waiting IS treatment”.

Yes, seems quite a few of us do. Can you search this group for “smoldering”?

My Dr, diagnosed me with Smoldering IGG kappa multiple myeloma

Yes, I was diagnosed with SMM in February, my oncologist is doing the wait and watch method for now, It is a little confusing to me, why can’t doctors treat it now instead of waiting until it turns into active MM?

@treinbold Welcome to Mayo Clinic Connect!

I am attaching several articles here that speak to your concern. While smoldering multiple myeloma can advance into multiple myeloma, it is not generally considered a cancer.

From MD Anderson: https://www.mdanderson.org/cancerwise/6-facts-about-smoldering-myeloma.h00-159538956.html
From Memorial Sloan Kettering Cancer Center: https://www.mskcc.org/cancer-care/types/multiple-myeloma/other-plasma-cell-diseases/smoldering-multiple-myeloma
And from the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/23911-smoldering-multiple-myeloma#:~:text=What%20is%20smoldering%20multiple%20myeloma,system%20mutate%20into%20abnormal%20cells.

Have you been diagnosed with smoldering multiple myeloma? Many of us are diagnosed first with MGUS during a routine labwork for another condition. If so, what is your medical team advising you at this time?
Ginger

Does anyone have SMM

Is SMM considered stage 1 MM?
Has anyone’s doctor tell them SMM is cancer