I have smoldering Myeloma. Does anyone have this diagnosis?

@beepoop ...I also have been diagnosed with MGUS, about 2 years ago. Also Igg kappa. It seems to have stayed the same except for fluctuations in kappa/lambda ratio. Of course no treatment at these levels. What I'm surprised about your diagnosis is that many years have passed until it became smoldering. I see it can spike after a long time?? I always say, I'm gonna quit testing since it's going on close to 3 years of being stable. Well, I guess not!
I do have severe osteoporosis, and experience sudden tiredness and aches. But I'm rather active..just hits out of the blue. I also get widespread rashes, that drive me insane and cause awful side effects. Mayo continues to do biopsies and monitor everything.
I try best to eat lots of dark greens and broccoli to keep blood healthy. If my iron levels should drop(not sure if yours did) I would increase iron rich foods with vitamin C, or any citrus for better absorption. They say MGUS, or Smoldering is like a time bomb...but I say, no worries, cross that bridge if we get there. Yes, I heard treatment is promising. My best to you!

Thank you,. I just feel tired otherwise ok. Lots of new things going on in Myeloma world. Hope for the future

I am trying to learn all I can

I was diagnosed with MGUS in 2005 after my father passed away from MM. I was followed since then. Last summer I progressed to Smoldering myeloma. IGG kappa light chain.

Hello@ bepoop. I am Nancy, and have had significant history with myeloma. Can you tell me about yourself, when and where you were diagnosed? I hope you have been reassured that there is much cause for hope as you follow this diagnosis into your future. My journey started in 2002, so I want to give you all positives possible. But first, about you.

Hello @beepoop. You may be interested in checking out the following discussion on multiple myeloma as well, https://connect.mayoclinic.org/discussion/multiple-myeloma-1/.

Hi @beepoop and welcome to Connect. You may have noticed that I moved your post to the Blood Cancers & Disorders group so that you can connect with others who have multiple myeloma.

I wanted to introduce you to @1nan who has experience with multiple myeloma and may be able to offer you support.

@beepoop how have you been feeling?

Hi I have Smoldering mm since last June ,2018

hello...your story sounds almost identical to mine. I believe I have the IgA type...I would like to further talk with you if you are willing.

I have just been diagnosed with Smoldering Multiple Myeloma, I don't have any symptoms except fatigue and some back pain (I have had 2 back surgeries for other reasons) so, I don't know if the back pain is related or not. My bone x-rays and scans all are good along with my kidney function being good. Does anyone have any experience with issue, I really wonder how long it takes to go from smoldering to active. My doctor here is not treating me at all - just doing blood tests every 3 months. I am going to get a second opinion from Mayo Clinic too. Any help would be appreciate