Want to talk about Multiple Myeloma: Anyone else?

Thanks!

Learn more about oncology social workers here:
- How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/

Not really.

Hi @tml, I’d like to add my welcome to Jim’s. I’d also like to bring @gingerw @wyom1998 @ancopau1998 @auntieoakley into this discussion.

I’m sorry to hear that you’re dealing with depression as well as myeloma. When you are a Mayo Clinic for your upcoming appointment you could ask about a consult with an oncology social worker. Do you know about their role on the cancer team?

I’m active after 30 years with stage 3 myeloma. Mayo second opinions were critical when my Cleveland oncology team told me I had no options left and needed hospice care. That was in 2001. Many reasons for hope with today’s myeloma treatments.

Hi! Diagnosed in April 2021 but probably had since February 2020. Had very little bone damage and was told in remission after Darzalex, Velcade and Dexamethasone. Put on Darzalex maintenance after RMD bone marrow biopsy. Had lung issue in October. Had an X-ray, said no pneumonia but a bit of something in right lung. Tried to get lung doctor appointment but no call back. Called oncologist who ended up scheduling another X-ray, then a CT scan, then PET, then lung biopsy. Told 12/27 it was back plus ended up with spine and rib damage. Very depressed and going to Mayo in 2 weeks but probably too late.

Wow, Wyom1998, your transplant is just around the corner.

I see you've downloaded @jimbond48's book to your Kindle. What's key takeaway or tip that really resonated for you? Any "a-ha" moments?

Have you also met @loribmt? You might appreciate this related discussion:
- My Bone Marrow Transplant (BMT/SCT) story: Will you share yours? https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/

What questions or thoughts do you have as you prepare for the upcoming transplant?

On my kindle!

Mayo Clinic recommended this experimental drug trial when my local oncologist told me to go to a hospice, there were no treatments left. That was 20 years ago. My book describes second opinions and our other strategies developed over 30 years. Profit goes to charities. https://arenamanbook.wordpress.com/

I thank you every week I have Valcade. Diagnosed Spring 2021
Transplant scheduled 2/21/22.