Want to talk about Multiple Myeloma: Anyone else?

Thanks so much. I hope I can get back to remission. I need to focus on that but always find my mind trying to go back and change things! Thinking having the Revlimid will help if it works quickly. That sounds wonderful but I worry I will not be able to have a transplant. My local provider said I was in remission but not a candidate for it. Mayo said I could but the longer it takes to get to remission the harder it will be. My sister warned me it would not be easy because of the chemo and I know it does not always result in remission but I sure want that chance. I worry that the damage I now have plus the second round of chemo will add to making it harder. It was 5 months to get to remission last year. Worry it will take way longer now.

@tml What milligram level of Revlimid are you being prescribed? Also, I forgot which form of multiple myeloma you have? I have IgM Kappa.
Ginger

I am in remission from AML. ☺️ Coming up on 3 years post allogenic transplant. (An unrelated donor). My doctor said that AML seldom relapses past 22 months with a successful transplant and I’m at 33 so we’re all pretty optimistic.
That’s why I’m so honored to be able to help and offer encouragement to anyone else who might be facing a blood cancer and a stem cell transplant. Every day is a gift and it’s worth fighting for. So hang in there! I’ll be with here for you every step of the way.
May I ask you a little favor? I don’t want to miss your messages to me, so when you respond to one of my replies, please tap the reply button right under my posting then I’ll get a notice directly. Or, you can simply type @loribmt in any message and I’ll get a message. That works for anyone you want to reply to in their message.
Again, I’m so happy that your new medication will arrive tomorrow! Hope it a bottle, right? 🙂

Yes I will! Cannot wait! I guess you are in remission?

Oh that’s wonderful news!!! I’m so glad you’re finally getting the meds and can get this new treatment under way! A bottle of hope coming in the mail. ☺️. That’s what I always called one of my meds. And it worked!
Let me know how you’re doing, ok?

Looks like coming tomorrow by 12. Mayo’s pharmacy is great! Hope begins to work fast as numbers going up! Finally!!!!!

Hardly saw the doctor just the PA who took all the information and he came in just to deliver his treatment plan. Not thrilled. Appointment was for 1 and saw him finally at 4. Granted doctors can be busy but 3 hours for his 15 minutes. Hmmm.

I had a script from a year ago that I did not realize was active so had to be cancelled and restarted through Mayo. That slowed everything up but hope getting through Mayo still. Went to another local doctor which I thought I would transfer to but now the next day think not a good move and prefer my original doctor. The medical and insurance bureaucracy is formidable. I wished I had understood it better as seem everything is a minefield.

@tml I'm sorry to hear you feel your appointment did not go well. Would you explain a little more about that experience?

I have been following your posts about the Revlimid and getting things set up for another battle. In my Revlimid experience, each month my oncologist has to okay that there is a need for another round, and that gets transmitted to McKesson Pharmacy in Texas, where they fill the script. Then I speak to them, and make the arrangements for delivery [confirm address, answer survey questions, etc.] It is a highly regulated medication. In fact, today we expect to see our favorite FedEx guy this afternoon as he delivers my next round, that starts tomorrow.

Keeping on top of your treatments and how to get in to a RMD stage again can be very taxing. What will you do today to take a bit of a break mentally and emotionally, to relax and gather your energy?
Ginger

No it did not go well. Hoping for some more information before I make a decision. May still be able to salvage this but not sure. Thanks for all your support!!!