Want to talk about Multiple Myeloma: Anyone else?

@tml I'm sorry to hear you feel your appointment did not go well. Would you explain a little more about that experience?

I have been following your posts about the Revlimid and getting things set up for another battle. In my Revlimid experience, each month my oncologist has to okay that there is a need for another round, and that gets transmitted to McKesson Pharmacy in Texas, where they fill the script. Then I speak to them, and make the arrangements for delivery [confirm address, answer survey questions, etc.] It is a highly regulated medication. In fact, today we expect to see our favorite FedEx guy this afternoon as he delivers my next round, that starts tomorrow.

Keeping on top of your treatments and how to get in to a RMD stage again can be very taxing. What will you do today to take a bit of a break mentally and emotionally, to relax and gather your energy?
Ginger

No it did not go well. Hoping for some more information before I make a decision. May still be able to salvage this but not sure. Thanks for all your support!!!

Use this waiting time to decompress. 😊 Deep, cleansing breaths and exhale. You’ve got this. Do you have notes of what you want to discuss? If not, use your phone memo pad to jot things down. 😊

That is what I am trying now. Waiting to be called into appointment but running late, I guess

Ok, don’t panic this is fixable. How about if you call the insurance company again and tell them what you just told me. They can go back and check your previous authorization and use that instead, cancelling the new request.
Honestly, don’t be so hard on yourself. You didn’t screw anything up. You are under a lot of pressure, stress and are facing the clock on treatment. So it’s understandable you’re feeling panicky. I think this little glitch will be a matter of trying to remain calm and explain this to your insurance liaison person. This will work out.
Or, with the visit to your new doctor, maybe they’ll be able to get your prescription pushed through. Did you have that appointment this morning?

Well turns out not so good. I may have screwed things up again! I had the process started over again when might have gotten in old authorization. The latter days, a new one weeks!

Oh that’s awesome!! We have to be our own advocates and it’s ok to be pushy! It’s your health at stake. I call it being respectfully assertive. You can be pushy but be nice too!! 😂 My mom said, “You get more flies with honey than vinegar.” And that has stuck with me for many decades. But I find it helps get people on your side with a little more compassion and understanding! I hope all goes well at your appointment. Will you me know how it goes?

You are wonderful! I called my insurance again and hoping to get something soon!!! Glad you encouraged me to try again!!!

Push to get faster…

No and I hate to keep asking. Called insurance who said through physicians and only had old paperwork. Nothing current. No one called me but says 4-5 days for insurance part which might be up tomorrow or Friday.,had Mayo do it but perhaps would gmjave gone faster here but thought if done one the 3rd would be faster. Maybe not as my health care provider is here. Guess will as if he can check into it or facilitate. Again perhaps in my blush to get faster I slowed it down.