Want to talk about Multiple Myeloma: Anyone else?

Confusion concerning FDA recommendations.
Following 4 Moderna vaccines and Evusheld, is it recommended to also receive the additional booster for those immunocompromised and over age 50?

Hi @tml I was just thinking about you today and wondering how your weekend went. Some of the test results you’re waiting for can’t always be rushed. I know, waiting is the pits, especially when a prescription is dependent on the outcome. Hopefully the results will be in tomorrow. From @gingerw’s experience with the same drug, it’ll be shipped overnight. So I think they’ll arrive in a time for you. ☺️

I have to share something a fellow transplant cohort of mine, who is in a support group with me, posted this today on Facebook.
“Worry is a total waste of time. It doesn’t change anything. All it does is steal your joy and keep you busy doing nothing.”
It served as positive affirmation for me today. I would like to encourage you to focus on something positive and joyful for the rest of the evening, whether it’s a chick-flick comedy on Netflix, playing a board game, grab a new mystery to read.
You said you’re an avid reader. What’s your favorite genre?

Still not back. Will check with them early tomorrow but so worried their lab will not do them in time! This is so stressful.

It was wonderful. Good to get out and enjoy the evening. A busy weekend as having dinner out with friends tonight and our symphony tomorrow. Maybe labs up in Monday or Tuesday with hopefully some good numbers!

Focus on you! Enjoy your evening with beautiful music. Do what makes you happy!
Ginger

Gosh I hate either autocorrect or perhaps fat fingers. I do hate typos!

Yes think will get in time. Have the actual doctor appointment next week. perhaps will change to match or perhaps not. Probably does not matter if labs fine a week ahead. I am 15 minutes away from hospital so do not have a drive or need to coordinate appointments! That would stress me out for sure!

Waiting for Carmen to start. It is nice to be out, masked up! Have my N95 on! I am such an optimist as thinking I should get an opera trio as well as reupping my symphony series. Who knows. Guess I just need to focus on getting the transplant!!!

@tml I hope you enjoy the opera tonight! We also had freezing temps this morning.

Yes, we have to take on being our advocates in health. If you know there is a timeline, you have to step up and politely force the issue. Today, I waited for my dr's scheduler to call me with time for the next appt on 4/28. Because we are 2 hrs away, I schedule multiple appts with different drs on same day. They have always been real good about it all. I had 3 already set for 4/28, so called the oncology office to speak to the young man. Got that set, then set ones for May and June, also! He told me the dr's vacation schedule, so we will work around that. Being an involved patient is important, and being nice while we do it is icing on the cake!

Yep, it takes extra time to get some of the myeloma results in, but the critical ones to determine your next round should be out fairly fast. The pharmacy, from my experience, ships overnight by Fed Ex, so they could ship out as late as Wed next week for you to start on Fri.
Ginger

It is good if you can take a break! I know all this is hard on one’s body! I am hoping no issues for me between here and a transplant.

We are going to see Carmen tonight! Was actually in the 2020 schedule and we are finally able to go. Was so nice here for two days and now this morning snow!!!

You were very helpful in advising me as think they were likely to stay in their schedule. The one test they seem to do here and is posted pretty quickly but the rest of the myeloma tests seem to take a few days. I was assured that all will be shared promptly with Mayo. Just hope I can get the new round by next Friday. It should be doable. It does seem to be working.