Want to talk about Multiple Myeloma: Anyone else?

You can share your story right here. To make sure @agent007 and @bscham are included, you can just use those @names in the reply. To get started, there’s a larger Comment box at the bottom of this discussion. That’s a good place to post your experience with these two members and it can become a great resource for other members facing a Stem cell transplant using their own cells.
We never know when our experiences can become someone else survival guide.
Thank you for sharing with us!

Hi @capthondo
My husband and I would also like to hear your story. My husband has MM and in on his 4th round of Chemotherapy and expecting the SCT at Mayo in late October. They tell us what the whole procedure is but it would be nice to hear it from a patients experience.

Lori
Let me know how I can share my experience with @agent007

Thank you!! This is what I love about Connect! 💕

Hi @loribmt
I’d be glad to share my SCT experience with @agent007!

Hi @agent007 (love the name and I’m sure there’s a story!)
It’s very good news that you’re responding so well to the MM treatments. Getting to a normal test result shows a reduction in the defective cells and now you’re ready for your Stem Cell Transplant.
Most often for Multiple Myeloma, you’re able to use your own stem cells in what’s called an Autologous transplant. So they want your blood as free from defective cells as possible before harvesting your stem cells, which will then be transferred back to you once you’ve gone through Conditioning.
For most MM patients, conditioning is 1 or 2 doses of chemotherapy which will clear out your bone marrow to make a squeaky clean environment for the return of your stem cells, giving you a fresh start.

One member just recently had an autologous transplant with great results. He just posted this reply to me yesterday. https://connect.mayoclinic.org/comment/746563/

While he didn’t have MM, the procedure is basically the same and the outcome is the goal. Let me introduce you to @capthondo

Where are you having the transplant done? What specifically would you like to know?

Hi all, I was diagnosed with MM back in March this year. After 5 months if immunotherapy, my MM which is stage 3 kappa light chain is under control with almost normal test result. Next step is to go thru stem cell transplant end of October. Anyone can share their experience with stem cell transplant while going thru it and how successful it has been since dine please.

@deajay Welcome to Mayo Clinic Connect. You said you have had a stem cell transplant. Congratulations! Where was this done, and how are you feeling these days?
Ginger

I was diagnosed almost 2 years ago and have go through chemo for 5 months and then a stem cell transplant in May 2021 then on maintenance chemo

I have gotten a second opinion on my ET treatment from a Dr. in a nearby city. I am following his treatment, which differs from the treatment prescribed by original provider in my city. I have a scheduled appt. with original provider coming up and I’m not sure if I should even go. It’s awkward now! I don’t want to totally cut them off, because they are closer, but I’m not following their recommended protocols. What to do?