Multiple medicine allergic responses

Posted by legeke @legeke, Jun 29, 2025

Didn't see any discussions regarding multiple medicine allergic responses. I am embarrassed to say, I am up to 24 allergic responses with medications. The allergic reactions are things I can't control such as high potassium, low sodium, noncardiac pulmonary edema. I feel like health care providers open the chart and see this, I get labeled as "crazy" and when I say I am starting to react to a medicine, noone listens. If I stop the med for my own safety, then I am causing a problem, even if my blood pressure drops due to side effects starting or I feel weak and sodium is dropping and is 130. I don't even want to use healthcare. It is exhausting advocating for myself. I was warned by a pulmonologist, my allergic reactions are dangerous because I rarely have a rash and therefore, treatment is delayed or felt not warranted.

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I have the very same problem..and the it's so frustrating.. just went thru it with antibiotics for a UTI.. I told them and then ended up back in ER 2 days later with a reaction worse that the UTI..I have learned to ask.. does this prescription go by ANY other name the hard way.. you're not alone in this!! I was shopping in Walmart and the greeting card rep (a lady about my age ..70 ..told me she was allergic to alcohol..and it was in a medication her doctor had been her on for years!! She lost all of her teeth.. what has happened to health care..?? Thank God Jesus is the Healer!! I'll pray for you!!

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How terrible for you! That must be very frightening to have to deal with. You are smart to stop taking something when it obviously affects you so badly. Sometimes medicines have instructions about how or when to stop them. I react strongly to different medications also; not quite as many as you but still it's disconcerting. One thing that I have done is try and find food that will help what I'm taking the medication for when I react to the medication. For instance, lots of water or Gatorade will help with low blood pressure. Gatorade also helps with memory problems. My husband was given the wrong medicine when he had a CT scan. It affected his memory for a while but the Gatorade helped bring it back. I just did a lot of research online to find different foods that helped one naturally instead of taking the medication.

The other thing that helps a lot is prayer. Just talk to God and tell him your problems and ask for his help. It has worked for me many times. After all, he made you and he can fix you! I'll say a prayer for you also.
I wish you the best.
PML

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