Dealing with multiple GI issues

Posted by oliveoyl123 @oliveoyl123, Feb 7, 2024

I have been adding new diagnoses to my already numerous this past six months. My former gi dr just thru meds at me mostly. So about 11 years ago I got diagnosed with redundant colon and IBS-c (which sometimes I think is a catch-all for who knows what's wrong with you LOL) when I started following the low FODMAP diet loosely (onions and garlic are out for sure.) Two years later I had severe lower chest pain and went to ER, where I eventually diagnosed with EOE, gastritis, hiatal hernia. Put on prilosec then and still on them, top dose now. Had my colonoscopy 9 years after the first as I was having issues again and got sent to specialist colon dr as I have flat large precanerous polyps that took 3 more colonoscopies (4 in 20 months), and the last two were two day preps with two gallons prep that I could only get 1 1/4 down both times. On a yearly schedule now, sigh. I was having issues with swallowing again this past June and had another endoscopy where gi dr broke a Schatzki ring at the bottom, and showed an erosive esophagus, no EOE. I also saw a couple of ENTs shortly after as I was having vocal cord issues (from long Covid in the spring), and turns out I have LPR, and acid reflux is hitting my vocal cords. I switched to a larger practice who did three tests - ph impendence (119 weakly acidic events in 24 hours, some up to my vocal cords, on meds), esophageal motility which showed gastroparesis, and manometry which showed inefficient esophageal motility. I was too complex for them so I am being referred to a university center. I also met with a dietician who helped me figure out how to deal with these conflicting diagnoses! I am eating very little solids, granola in am (to keep me not constipated but gives me heart burn) midmorning a homemade muffin or similar, soup which I just stopped pureeing for lunch, Owyn protein drink for mid afternoon, and a smoothie for dinner. Avoiding as much acid foods and drinks as possible, only drinking alkaline water. Just wondering if anyone else has similar multiple issues. And what anyone has found that works! I am on a new med for the motility issue, bethanechol which hasn't helped much yet (bloating still bad.) And I have lost almost 30 pounds in 4 months, needed to but not sure when it will stop.

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I took every proton pump inhibitor on the market for 25 years with acid reflux getting steadily worse towards the end of the 25 years. I finally decided it wasn’t worth taking and stopped taking it. I have not had acid reflux once since then. I was not making enough stomach acid to digest my food.
I now have an occluded celiac artery caused by ligament compression MALS. I have been to Mayo Clinic 7 times this year and undergone many tests. I saw a surgeon in the advanced gastroenterology department Monday and they will do ligament release and celiac nerve plexus ablation as soon as I loose 25 pounds.

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Profile picture for oliveoyl123 @oliveoyl123

Forgot to mention GERD as diagnosis 9 years ago. And IBS was mixed not C.

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In reply to @rhodaj123 "@oliveoyl123" + (show)

@rhodaj123 - I believe you were responding to @oliveoyl123 and your message was not completed. Would you please post it again? Are you also managing multiple GI issues?

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Profile picture for susanmaria @susanmaria

I too have had multiple tests which show nothing. Have been put on Xifaxin for two weeks and I felt worse. Was told I have a fructose intolerance and to eliminate fructose-this did not resolve my problem either. I get every 1,2, or 3 days a feeling like I have appendicitis pains which last about 5 hours. This pain feels like hell on earth for me. Nothing relieves it. Have been to multiple doctors including at the Cleveland Clinic. Lost weight (50 lbs) by intermittent fasting 2.5 years ago. 1 year later, I felt good and then BOOM thought I might be hospitalized for what seemed like a severe UTI and flu combined. (Was tested and found to be covid (-) Was put on a sulfa drug and two days after finishing the sulfa drug, experienced the appendix area pains which went into my back on the opposite side and up to the waist on the right side. The pain is so bad that I have prayed to God to "take me home" at times. I asked my doc why I have lost weight and have gotten worse with blood pressure that is not lowering and increased tinnitis. He said I am just maybe just aging. Found something unusual though. When I go to visit friends in Florida, I take hormone testing at Life Extension/Fort Lauderdale. In Dec 2024, my IGF-1 was 195 (cut off for normal is 196). In March 2025, my IGF was much higher (beyond range), In Sept 2025, my IGF-1 was 90 points above range. When I contacted my primary doc's office (just walked in) my doc came out into the waiting room and said he was going to order a MRI to check the pituitary gland. Google: pituitary adenoma. This can also affect the GI system quite severely

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@susanmaria sorry for what you're going through. Some people with pain in the area of the appendix have Mobile Cecum Syndrome. The cecum is the first part of the colon, near the appendix. In some people, it's not attached in the body as it should be. If patients like this don't have symptoms, it's known as mobile cecum sign. If they have symptoms, it's mobile cecum syndrome. Radiologists may consider it a "incidental finding" when reading scans. So it may not be mentioned in a radiology report. please post again when you find out more about the pituitary issue and best of luck.

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