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Multiple Chemical Sensitivity

Posted by ldscott @ldscott, Dec 14, 2022

I was exposure of gasoline on my skin as a result a gas station nozzle malfunction in 2017. I experience prickling, burning tingling, redness, itching, etc regular to any scents. It has been and still is a challenge for me to wear clothes, be in certain places, or allow anything to touch my skin. I have to wash 3-4 x per days sonetimes. I'm sooooo uncomfortable, I don't want to be around people. When experiencing a flare-up- it zaps my energy and makes my immune system and week resulting in bed for days.

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Mentor
John, Volunteer Mentor | @johnbishop | Dec 15, 2022

Hello @ldscott, Welcome to Connect. I'm really sorry to hear that your exposure to gasoline on your skin as a result of gas station nozzle malfunction in 2017 has caused you so much discomfort and problems. When I was in my 30s my neighbor was into racing hydroplane boats. He needed a fill in for his refueling team and I volunteered one weekend. I was introduced to a gasoline spill from a large floating drum that drenched myself and another man. Fortunately we were in the water but even so I've never felt so bad with burning itching skin. It took a few days for me to heal but I never had any long term effects so I guess I'm lucky.

Here's an older article on contact dermatitis from the adverse effects of gasoline on the skin.
-- Adverse effects of gasoline on the skin of exposed workers:
https://pubmed.ncbi.nlm.nih.gov/11918587/
Have you seen a doctor about your symptoms?

REPLY
scentsrnotfun | @scentsrnotfun | Jan 7 7:14pm

Hello,
I have suffered with multiple chemical sensitivities for years and now my symptoms after coming into a space with fragrances or scents are becoming debilitating. I have gone from having anaphylaxis reactions to tasting these fragrances in my mouth accompanied by a terrible burning taste and inflammation in my mouth and on my lips. It happens constantly now and my standard of living is being affected. I go to church and it happens. I go to work and it happens. I never visit others homes because I have no idea what chemicals and scents, fragrances, sprays or even dryer sheets they may be using.
I contacted the Mayo Clinic in Jacksonville through the online portal. The request started in immunology or allergy department. I got a call from dermatology??? They said they couldn't help me and focused on the "burning mouth syndrome" and not my reaction to chemicals and fragrances. Dermatology sent me back to immunology/allergy and the lady said they don't deal with fragrance allergies.
It appears that everyone is missing the fact that I am in chronic pain and I don't know who to reach out to or where I can start to try to get some coordinated care. I have gone the ENT route, primary care, dental, and digestive route.
I need help.

REPLY
1 reply
lilli64 | @lilli64 | Feb 21 7:36pm
In reply to @scentsrnotfun "Hello, I have suffered with multiple chemical sensitivities for years and now my symptoms after coming..." + (show)
@scentsrnotfun

Hello,
I have suffered with multiple chemical sensitivities for years and now my symptoms after coming into a space with fragrances or scents are becoming debilitating. I have gone from having anaphylaxis reactions to tasting these fragrances in my mouth accompanied by a terrible burning taste and inflammation in my mouth and on my lips. It happens constantly now and my standard of living is being affected. I go to church and it happens. I go to work and it happens. I never visit others homes because I have no idea what chemicals and scents, fragrances, sprays or even dryer sheets they may be using.
I contacted the Mayo Clinic in Jacksonville through the online portal. The request started in immunology or allergy department. I got a call from dermatology??? They said they couldn't help me and focused on the "burning mouth syndrome" and not my reaction to chemicals and fragrances. Dermatology sent me back to immunology/allergy and the lady said they don't deal with fragrance allergies.
It appears that everyone is missing the fact that I am in chronic pain and I don't know who to reach out to or where I can start to try to get some coordinated care. I have gone the ENT route, primary care, dental, and digestive route.
I need help.

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I feel your frustration I've been dealing with the same issues since patch testing in 2018, I've since been diag with burning mouth syndrome, it is very sad that we can't get a answer to our problem.

REPLY
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