MRI results: With Lynch syndrome is further investigation necessary?

Posted by timmc64 @timmc64, Aug 22, 2023

im a lynch syndrome genetic patient had bladder cancer 8x recent mri of abdomen came liver T1 T2 bright lesion within the liver parenchyma

pancreas heterogeneous T1 signal with volume loss in the body and tail
my family history of stomach and pancreatic cancer should this test be looked at more
primary DR said it all good want to make sure because of family history

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Good morning! So sorry to hear you are going through that. I also have lynch syndrome and in early menopause thanks to it. Did they do a CBC as well? Blood counts can tell you some things and maybe whether or not you should followup. Regardless you know your health the best and if you don't feel well I would get a second opinion. I have thymic hyperplasia which they don't know if it will turn into cancer or not but I talked to two oncologist and we just watch it for now but I feel better having gotten two opinions. Could also be because of my RA. Have you gotten an endoscopy lately? Or gone to mayo for an opinion?

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You mentioned a primary doctor. I would definitely think you would want an onogist that is very familiar with Lynch to look this over. My husband has Lynch and we were told that some cancers are actually easier for them to treat when they have identified Lynch. I don’t know about your situation, and I am not a medical professional, but you have so many things going on there that even getting a second opinion might be a good idea

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@timmc64, I agree with @nrocpop and @stlsampsondev that you may wish to get a second opinion with a specialist.

Did I understand your message correctly that you've had bladder cancer? Eight times? Were the MRI results shared with your cancer team?

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