MRI MRCP - Cyst (IPMN) - Newbie

Hi I am new to this .. I recently had an MRI done in the report shows IPMN. Apparently the doctor here does not seem too concerned but once again, I do not trust my medical system back home. Doctors take things very lightly here and by the time if anything bad shows up, it will be too late my sister currently have pancreatic cancer. My father passed away from pancreatic cancer. I am worried that the IPMN I have is precancerous. Seeking help.

🙏good luck--keep on their case --you want to be sure theres no "pre-cancerous" changes. We are our own health advocates.
Are you on pancreatic enzymes with meals ?
ditto
7+ years ago i was started on Gastroscopic Ultrasound plus CT then annual MRI & bi-annual Gastroscopy & CT xxx

I have a CT Pancreas scheduled tomorrow. My GI said this will show the pancreas. If this shows nothing the Endoscopic diagnostics will take place. Thank you for the encouragement. I hurt too much to give up.
Prayers my friend

Hi
Can i suggest you request an MRI ? Radiologist told me an mri is best for viewing pancreas.
Prior to 2016 my local GZps had been treating me for indigestion for almost 5 years then i took myself to the closest capital city
( melbourne au) ate the food that made my diverticular disease flare up & presented st a major hospitals emergency department !! Thank god i did as i was then sent to a
specialist clinic & the main HBP Dr ORDERED CT & MRI & Gastroscophy and began monitoring my 4 pancreatic cysts--they grew from 19mm to 30mm & last oct surgeon removed the 2 largest & part of pancreas & the whole spleen. Cysts were pre-cancerous but not blocking anything.

Keep pushing until you get answers my prsyers and sttong wishes for the best of luck to you
Cheryl

I have a follow up appointment with my new doctor/surgeon regarding the MRI scan.

I was told in June of 2022 that I have a main duct dilation of 8mm. It was also seen in 2013 but I was not told. Suggested protocol is monitoring every 6 months with MRI. My doctor thinks Whipple is inevitable so I got 2 other opinions. One doctor felt not necessarily inevitable. The other said he would recommend it because I am in good health with no underlying conditions, and that I would have a better outcome now at my age (70). At this point I will stay with monitoring. I have had no symptoms and both times it was seen was incidental to something else, kidney stone in 2013 and diverticulitis in 2022. Have you gotten other opinions about your case?

I had the Whipple surgery in 2021 for SD IPMN. Pathology report confirmed no cancer.
I recently had my second MRI post Whipple surgery. I have a history of heditary pancreatitis since 11 years of age. My MRI result confirmed main duct dilation at 8 mm though the body area. No mention of tumor or cyst. The Radiologist recommended follow up with a CT scan. Can main pancreas duct be dilated without a tumor or cyst present? I also have Lynch Syndrome. Thank you.

I’m a Newbie. I too have have battled … 40 years for me. Those of you who have a diagnosis of pancreatic cysts … Do you have any other type cysts/fatty tumors on your body or perhaps in your mouth ? My gastro wants to throw a pill at everything that occurs. I have demanded a CT abdomen with contrast. I am allergic to iodine .. never an anaphylactic reaction .. I told my daughter I’d rather die from the contrast than continue to live in the pain I’ve experienced since Aug 2022. A colonoscopy triggered my latest symptoms.
I have been fired by 4 doctors in the last 8 years because I was advocating for myself. Y’all continue to be your own best advocate.
So glad I’ve found you

Dear Skiball, thanks for replying. Actually my CA-19 was provided as a number (16). Anything under 32 was considered normal.

Regarding Whipple surgery they claim at the present time it would be more risky to do the surgery on a benign cyst specifically because it is located in the back portion of the pancreas near a few veins. Ducts have not (yet) been involved. Since there was no additional growth, they suggested that I get my next MRI in six months rather than three. Then we’ll take it from there. My best to you, as well as thoughts and prayers. Remember to trust in God‘s will.

Keep looking for doctors who will help you. My sympathy to you in your struggle to find answers. It seems to me that it is more difficult to find excellent PCP than specialists.