MRI Brain scan 25yo male-lesion

I am so sorry you and your son are dealing with this surprise report. Of course better to talk to the neurologist. What kind of "complex migraine," what were the symptoms? My daughter has complex migraines and a seizure disorder. She has had brain surgery for another reason. I will PM you.

ps I just looked up the terms. Looks like ependymoma is an often benign tumor that may or may not mean surgery. The report seems to say that is more statistically likely. That would be good, I guess, depending on details.:
https://www.neurosurgery.columbia.edu/patient-care/conditions/ependymoma
Medulloblasoma is a cancer that seems to be located in the cerebellum . https://www.mayoclinic.org/diseases-conditions/medulloblastoma/cdc-20363524 Is he having balance or coordination issues?

Thank you for your quick and thoughtful response.
His symptoms were very bad headache, dizzy, vomiting, incoherent speech, vision problems. This is the first time recently that this has happened in such severity. He had it 2 other times in his teens. Otherwise, his migraines are managable...they come and go. He is very active and works full time while going to school. This episode shut him down for 2 weeks.

I see that your post was a year ago…I just joined this group. My son was diagnosed with medulloblastoma 4 years ago. Not sure where your at a year later but if you ever want to chat or ask me any questions please reach out.

Welcome, @renee5. I'm tagging @webbs3248 in the hopes that they will see your message to them.

May I ask how old your son was when he was diagnosed with medulloblastoma? What treatment did he have? How is he doing now? How are you doing?

My son was 20 when dx, he is now 24. He had surgery (had a stroke a day later as well to rehab from) then 6 weeks proton radiation at Mayo. A month after that got his port in and started chemo (cisplatin, etoposide and Cyclophosphamide) for 6 cycles. We scan every 4 months and are in observation mode.
He is doing pretty well…Obviously his life dreams have been derailed with a cancer diagnosis a week before his senior year of college and has changed paths in life…still not exactly sure what he will be able to do.
I’m doing ok….not great but not horrible, sometimes still finding it hard to believe. We have 2 other kids besides Matthew, it’s a tough pill to swallow when your kid is dx with cancer.

@renee5 - I know how you feel but your sons story gives me hope my son will survive this ordeal as there are survivors of this horrible disease. I know our medical team has given us great info. On survival rates and other items to look for but it still feels like a crap shoot with every chemo session, and every scan. I know my son’s dreams were derailed with his cancer diagnosis. He is still able to drive, and currently lives with me since he has two more rounds of chemo to go. His younger brother is scared for him but doing his best to be there for him in any capacity needed. I am doing well too, but it is lonely as life goes on as you try to keep your child alive. I have a few Friends who check in on me and they ask me to come hang out but I am too tired during chemo week. Other weeks I am just tired from work and trying to keep it all together. I do once a month counseling and some meditation to help with my frustrations with the diseases.

@renee5 I love the name Renee! My sister Renay ( spelled a little differently ), died from a stroke, just a couple years ago. She, like me, was elderly! I miss her! A devastating diagnosis like that, for such a young man, changing his life plans, and yours too, in such a short period of time, is not something that anybody can get used to! So, you have my heartfelt concern for your son’s well being. Did the stroke cause damage in anyway? My favorite young cousin was diagnosed with an acoustic brain tumot at a young age. He was working in the criminal justice field, and he had a very demanding job! The brain tumor changed his and his parents life plans, forever! He lost most of his hearing, permanently. It took many hours for the surgeons to remove the tumor! My cousin went back to work, on limited duty, but he finally had to retire from that line of work. Five years later, now, he has another job, that is a much better fit for him, where he is happy, and has adjusted and is able to get back to having a good life! So, it is my hope that your son will be able to adjust, after this traumatic process is resolved, where you and your son, can find that there is hope, after a brain tumor diagnosis, where, with adaption, one can achieve happiness and a positive future!

Hello! I’m sorry for the loss of your sister Renay. Strokes are just awful, my elderly uncle just passed from a stroke last month. It basically took the whole left side of his brain and left him essentially in a coma till his passing.
My son (who was 20 at the time) had an ischemic stroke. He lost his right side, ability to swallow as the flapper was stuck up or open, ability to urinate, had double vision…it was a tough go for a while! It took about 3 months but eventually, he pretty much got everything back. His balance is still awful and he has some cognitive issues but we will never know whether it was surgery, stroke or cancer treatments that caused any lasting effects. The chemo damaged his hearing so he has that issue as well.
He was going into the medical field and of all things was a part of the cancer research team at his university. Because of the brain trauma, fast paced anything does not work for him anymore. He was able to finish college but now is really only able to work about 2 1/2 -3 days a week. He gets fatigued and overwhelmed pretty easily. But he has a good outlook on things and tries to make the best of it.
Thanks for the note!

@feltesangie please follow my grandson, jordantrimble.substack.com AKA:Blankslate Endurance
He too, was dx with an ependymoma and now has MRI’s every four months.

@renee5
please follow my grandson, jordantrimble.substack.com AKA:Blankslate Endurance
He too, was dx with an ependymoma and now has MRI’s every four months.