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MRI Brain scan 25yo male-lesion

Posted by webbs3248 @webbs3248, Oct 17, 2023

Hi,
My son experienced what was called a 'complex migraine' 2 weeks ago and went to ER. CT was clean. Went to Neurologist followup and an MRI (withand without contrast) was ordered.
The MRI revealed "Lesion in the region of the right foramen of Luschka with brisk somewhat heterogeneous enhancement with a maximum diameter of 1.5 cm with some extension into the inferior fourth ventricle, suspected to be extra medullary, but potentially with an intramedullary component, which statistically most likely represents an ependymoma, with other considerations including medulloblastoma..."
Neurologist has not reviewed yet, but we will hear back tomorrow. Anyone familiar with this? He has had migraines in the past. 3 episodes in his teens that lead to a negative meningitis test.
Thank you for any light you can shine on this.

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windyshores | @windyshores | Oct 17, 2023

I am so sorry you and your son are dealing with this surprise report. Of course better to talk to the neurologist. What kind of "complex migraine," what were the symptoms? My daughter has complex migraines and a seizure disorder. She has had brain surgery for another reason. I will PM you.

ps I just looked up the terms. Looks like ependymoma is an often benign tumor that may or may not mean surgery. The report seems to say that is more statistically likely. That would be good, I guess, depending on details.:

https://www.neurosurgery.columbia.edu/patient-care/conditions/ependymoma

Medulloblasoma is a cancer that seems to be located in the cerebellum . https://www.mayoclinic.org/diseases-conditions/medulloblastoma/cdc-20363524 Is he having balance or coordination issues?

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webbs3248 | @webbs3248 | Oct 17, 2023
In reply to @windyshores "I am so sorry you and your son are dealing with this surprise report. Of course..." + (show)
@windyshores

I am so sorry you and your son are dealing with this surprise report. Of course better to talk to the neurologist. What kind of "complex migraine," what were the symptoms? My daughter has complex migraines and a seizure disorder. She has had brain surgery for another reason. I will PM you.

ps I just looked up the terms. Looks like ependymoma is an often benign tumor that may or may not mean surgery. The report seems to say that is more statistically likely. That would be good, I guess, depending on details.:

https://www.neurosurgery.columbia.edu/patient-care/conditions/ependymoma

Medulloblasoma is a cancer that seems to be located in the cerebellum . https://www.mayoclinic.org/diseases-conditions/medulloblastoma/cdc-20363524 Is he having balance or coordination issues?

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Thank you for your quick and thoughtful response.
His symptoms were very bad headache, dizzy, vomiting, incoherent speech, vision problems. This is the first time recently that this has happened in such severity. He had it 2 other times in his teens. Otherwise, his migraines are managable...they come and go. He is very active and works full time while going to school. This episode shut him down for 2 weeks.

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