Mouth Sores from chemo: When do they go away?

Posted by walkingmom @walkingmom, Dec 24, 2022

Any suggestions for mouth sores? Mine started a few days after my first infusion of Taxotere and Cyclophosphamide. Am using Magic Mouthwash consisting of lidocaine, maalox and benadryl with baking soda, salt and water rinse in between. Day 4 and no relief. For those of you who've had them, do they not go away until all infusions are complete? If so, I don't think I can handle it 🙁

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@loribmt

Having cancer really tests the muster of a person, doesn’t it?
Your husband has gone through so much already but here he is, 9 weeks post treatment! It’s really positive to see that his scope showed no visible evidence of cancer, his appetite is picking up and he’s gaining weight! Those are huge milestones in the baby steps of recovery.
But I know full well the anxiety that loves to work its way into our heads when waiting scan results. We have a couple of conversations in the forum for Scanxiety. They may not be relevant to your husband’s cancer but it shows you’re not alone in the stress of waiting for good news. https://connect.mayoclinic.org/discussion/waiting-for-scan-results-is-this-part-of-scanxiety/

There’s no reason for you and your husband to feel anything but positive right now! ☺️ Though it’s really normal after something so traumatic like this to have some roller coaster emotions. It takes time to process and to feel a level of comfort that ‘this is over’ now. It happens gradually as life returns to a new, predictable rhythm and eventually the trauma fades into the background.

I wish your husband only good news on his upcoming tests in a month. Is this a PET scan?

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Thank you and we wish you all blessings and good thoughts.
Yes it is a PET-CT Full Body Scan

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I always figured 10 days for a mouth sore to heal completely. I used to use the "discs" from Walgreens for sores from braces…those helped. Licorice helps as that is a natural numbing agent. Make sure to drink very cold beverages while getting your chemo – even slushes or smoothies…the cold will help keep the chemo from causing mouth sores. I am sorry you are going through this, mouth sores are not fun. suck on cholraseptic lozenges for sore throats…popsicles…

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@blulady

Thank you so much for the articles. We found them very informative. But the best advice and guidance was that Stuff happens!!!!!
My husband is about 9 weeks out from treatment. He is doing well. Eating bigger portions and more varieties of food. Gained 5lbs! Both of us are a little nervous about the upcoming scan in 4 weeks but staying positive. He previously had a throat scope that physically showed that the tumors were gone. Now for the cellular results.
Take good care and again thank you for your help and support.

Jump to this post

Having cancer really tests the muster of a person, doesn’t it?
Your husband has gone through so much already but here he is, 9 weeks post treatment! It’s really positive to see that his scope showed no visible evidence of cancer, his appetite is picking up and he’s gaining weight! Those are huge milestones in the baby steps of recovery.
But I know full well the anxiety that loves to work its way into our heads when waiting scan results. We have a couple of conversations in the forum for Scanxiety. They may not be relevant to your husband’s cancer but it shows you’re not alone in the stress of waiting for good news. https://connect.mayoclinic.org/discussion/waiting-for-scan-results-is-this-part-of-scanxiety/

There’s no reason for you and your husband to feel anything but positive right now! ☺️ Though it’s really normal after something so traumatic like this to have some roller coaster emotions. It takes time to process and to feel a level of comfort that ‘this is over’ now. It happens gradually as life returns to a new, predictable rhythm and eventually the trauma fades into the background.

I wish your husband only good news on his upcoming tests in a month. Is this a PET scan?

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@loribmt

Hi @blulady, you’re wondering if it’s possible for another virus to activate a dormant one in the body. Yes, that can happen.

Because of the compromised state of long haulers' bodies, previously dormant viruses can potentially reactivate and become chronic infections, such as Epstein Bar Virus. It can actually occur with any illness which weakens the immune system. Similar to patients who are on immunosuppressants. We run the risk of dormant viruses such as EBV, CMV, etc., re-emerging when our immune system isn’t powerful enough to stop it from resurfacing.
The frequency might be elevated now because of the global prevalence of Covid.

Here are a few articles which may help to explain how this happens. https://www.verywellhealth.com/long-covid-latent-viral-reactivations-5205269
https://fortune.com/well/2022/12/26/is-long-covid-chronic-fatigue-syndrome-myalgic-encephalomyelitis/
Whether or not this contributed to your husband’s cancer, that’s one of those unfortunate mysteries we deal with when we’re diagnosed with the disease. Having gone through a cancer odyssey myself, I can understand the need to find out ‘how and why’. It’s as though we need answers for what went wrong so we can place a blame or take the blame for bad lifestyle, work related illness, etc. As one of my oncologists said when I was wondering how I ended up with AML, he succinctly put it in these terms “Sometimes S*** Happens”. He wasn’t being snarky! Simply put, I would drive myself crazy trying to pinpoint a cause when there was no way to do that in my case. So after a while, it’s just time let the past go and look positively toward a healthy future.

I know you and your husband have been going through the wringer on this journey…it’s hard on both of you. How is your husband doing now? Is he making a good recovery?

Jump to this post

Thank you so much for the articles. We found them very informative. But the best advice and guidance was that Stuff happens!!!!!
My husband is about 9 weeks out from treatment. He is doing well. Eating bigger portions and more varieties of food. Gained 5lbs! Both of us are a little nervous about the upcoming scan in 4 weeks but staying positive. He previously had a throat scope that physically showed that the tumors were gone. Now for the cellular results.
Take good care and again thank you for your help and support.

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@marciak9

I use mouthwash when they first start. The Dr gave me a prescription for Triamcinolone tooth paste (not tooth brushing toothpaste). It is very good for sticking to your mouth. I put it on the sores at night and they are gone the next day. I’m lost without it.

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Magic mouthwash

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I too had mouth sores during Chemo and used the Magic Mouthwash (which helped), but I changed my toothpaste. I tried several kinds of Sensodyne and gum sensitive brands and it seemed to help. Once Chemo was over, my gums healed and I have no problem now.

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@blulady

Do you know if there is any evidence of links between catching COVID or getting vaccinated for COVID and then being diagnosed for HPV related Head and Neck Cancer. It seems that many people talk about the HPV related cancer becoming non dormant after some experience with COVID. Is it possible for another virus to activate a dormant one in the body?

Jump to this post

Hi @blulady, you’re wondering if it’s possible for another virus to activate a dormant one in the body. Yes, that can happen.

Because of the compromised state of long haulers' bodies, previously dormant viruses can potentially reactivate and become chronic infections, such as Epstein Bar Virus. It can actually occur with any illness which weakens the immune system. Similar to patients who are on immunosuppressants. We run the risk of dormant viruses such as EBV, CMV, etc., re-emerging when our immune system isn’t powerful enough to stop it from resurfacing.
The frequency might be elevated now because of the global prevalence of Covid.

Here are a few articles which may help to explain how this happens. https://www.verywellhealth.com/long-covid-latent-viral-reactivations-5205269
https://fortune.com/well/2022/12/26/is-long-covid-chronic-fatigue-syndrome-myalgic-encephalomyelitis/
Whether or not this contributed to your husband’s cancer, that’s one of those unfortunate mysteries we deal with when we’re diagnosed with the disease. Having gone through a cancer odyssey myself, I can understand the need to find out ‘how and why’. It’s as though we need answers for what went wrong so we can place a blame or take the blame for bad lifestyle, work related illness, etc. As one of my oncologists said when I was wondering how I ended up with AML, he succinctly put it in these terms “Sometimes S*** Happens”. He wasn’t being snarky! Simply put, I would drive myself crazy trying to pinpoint a cause when there was no way to do that in my case. So after a while, it’s just time let the past go and look positively toward a healthy future.

I know you and your husband have been going through the wringer on this journey…it’s hard on both of you. How is your husband doing now? Is he making a good recovery?

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Mouth sores were horrible and Miracle Mouthwash plus salt/soda rinses only helped a little. My doc lowered my dosage 20% (Eribulin chemo) and that has seemed to do it. He also prescribed Acyclovir 400 mg pills, an anti-viral, but I haven’t needed them yet. You can also try a children’s toothpaste with no mint- Tom’s makes it.

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I need help with sores around my nose and mouth. They are painful and I have not found anything to help them heal. They appear after my NET monthly shot. I will be grateful for all suggestions. Bette

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@jersey3422

I had heard that also. I am not an expert by any means, but I did dismiss that idea because it seemed like a real stretch to me by anti-vaccers.

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I meant anti-vaxxers.

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