Breast cancer spread to liver, skull, spine, ribs, hips etc.

Good morning, @susanne1121 .

I was diagnosed with stage 4 metastatic breast cancer this past September. I have metastasis to my skull, spine, ribs and pelvis. I also have a lesion on my liver.

This is all new to me, too. May I ask what symptoms you are having? Other than the usual pain, I am having urinary incontinence. Ugh. 🙈😩 However, a lady in another group here suggested a device that may well help me control it!

I’m taking letrozole and Ibrance.

I’m so grateful for this discussion site. Happy Thanksgiving!

Hi @susane1121 and @catlady7, I moved your discussion to the Breast Cancer group here: https://connect.mayoclinic.org/group/breast-cancer/

Here you will meet many others who are living will metastatic breast cancer like @mom23boys @miles5513 @leeann66 @meme5 @eku @mglinkhart @adanab @mssewest and others.

Here are some discussions specifically about the drugs that you've mentioned as well:
– Ribociclib: Looking for information about efficacy and side effects https://connect.mayoclinic.org/discussion/rebociclib/
– Ibrance and Liver Lesions: What's your experience? https://connect.mayoclinic.org/discussion/ibrance-and-liver-lesions/
– Ibrance and Letrozole: Newly Diagnosed Treatment https://connect.mayoclinic.org/discussion/ibrance-and-letrozole-newly-diagnosed-treatment/
– Abemaciclib (Verzenio) and fulvestrant (Falsodex) Treatment https://connect.mayoclinic.org/discussion/abemaciclib-and-falsodex-treatment/
– Deciding whether to go on abemaciclib (brand name Verzenio) https://connect.mayoclinic.org/discussion/hi-and-a-question-about-abemaciclib-brand-name-verzenio/

@susane1121, how is your mom doing? How are YOU doing? Are you her main caregiver?

Hi, I was a 11 yr. breast cancer survivor. On Halloween I was diagnosed with stage 4 metastatic cancer that has spread to my pelvis, femur and 4 places on my spine. I'm having my right hip replaced Monday, followed by radiation and oral chemo. I'm waiting to see what oral chemo I go on. How do I keep my bones from future fractures?

Sending you hugs @kimlockwood . Did you do chemotherapy and radiation 11 years ago?

Thank you - I had 5 months of chemo and 7 weeks of radiation. I was on Tomaxifen for 5 years following my treatments and thought I was in the clear. Still waiting to hear what my oral chemo will be and how to keep my bone from becoming brittle!

Are you going to take Reclast or Xgeva to protect bones?

At this time I'm looking a zomenta.

I had my first injection of Xgeva about a month ago. I do hope it helps.

Hola yo también tengo metástasis en toda la columna y la pelvis, yo estoy con palbociclib, fulvestrant y ácido zoledrónico, recién comencé a tener dolores ardorosos en la espalda y me he manchado de la cara y el cabello se me comenzó a caer ; tengo dos años con la metástasis en la columna y me siento triste porque siento que cada vez tengo menos tiempo , tengo dos hijos, uno de 20 y uno de 13 años, me gustaría contactarme con alguien para conversar, gracias.

I am in your same situation. I gave liver, bone d sad bd lymph node Mets. Started on Anastrozole,Ibrance and Zometa and am at my 3 month mark my pet scan shows the Mets are decreasing which is good news. The draw back are the side effects. The depression, fatigue and nausea are the worse but with meds are somewhat manageable. I take Claritin for my bone pain and it works well. Im 72, much older than you Cynthia but I understand what you are going thru. I had breast cancer 12 years ago so this is recurrent for me and treatable but not curable. Lots of thoughts clouding my brain these days. Praying the side effects calm down. Prayers for all of us going thru this. Maria