Mohs surgery and reconstruction: What timeline to expect?

Posted by keithl56 @keithl56, May 13 6:01am

I have been diagnosed with squamous cell carcinoma on my head. My dermatologist set up a consult with a surgeon that does Moh's surgery on 5/29 and a consult with a reconstructive surgeon on 6/10.

Can anyone provide information regarding the usual time between consult and surgery and the time between Moh's and reconstruction?

I just had a large basal cell lesion surgically removed from back last May and am not looking forward to this summer!

Interested in more discussions like this? Go to the Cancer Support Group.

@louisejewell

I just put in a long post about my scc's. the one on my hairline was a huge opening with long cuts so that it could be closed to heal smoothly. It always suprises me how relatively painless the recovery is compared to how it looks. My dermo MOHS surgeon at Mayo did an excellent job even though it required 6 passes to get it all. Took 3 months to close up enough for 20 radiation treatments. It was red for a few weeks and now almost a year later, not noticeable. My hairline is actually straighter than it was although my forehead a big higher. I'm pleased and thrilled at what was done.

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You know what they say people with high foreheads are more intelligent. LOL. Good luck glad you r doing well.

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@tamaras

Hello I had squamous cancer on my bottom lip, which was cut out back in 2007. I lost pretty much my whole lower lip and a portion below my lip too. They did a graf and flap to help with movement and actually they put too much tissue in the place where they removed my lip and it's real puffy. Almost looks like I'm chewing tobacco. Embarrassing and deformed since then. I was always told there wasn't anything they could do because they now refer to it as being cosmetic. I guess that means I would have to pay out of pocket to try to look more normal.. such a terrible thing to be told. I live my life indoors or looking down all the time. Not how anyone should be. Recently someone asked how come insurance will pay for a woman to have breast implants after she had hers removed due to cancer. I was shocked. I feel our faces is the first thing that everyone sees so I would think our faces would be covered..

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@tamaras
I am horrified after reading your post and am so sorry you had to go thru such an experience.
The surgery was I'm sure, painful enough, but then to be denied cosmetic surgery to fix your lip cosmetically. is an insult. It seems that your surgeon would be more than willing to try and repair your lip and chin. Could you see another surgeon, or have you already tried?
My lip is not as severe as yours, it is my upper lip. The scar runs from right beneath my nostril to inside my lip. This was done in Feb. and it still hurts & looks bad, it is very tight & "pulls". I am very aware of it all the time. I have other scars on my face from 2 other Moh's surgeries, but they aren't as prominent.
Keep in touch & be strong!

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@tamaras

Hello I had squamous cancer on my bottom lip, which was cut out back in 2007. I lost pretty much my whole lower lip and a portion below my lip too. They did a graf and flap to help with movement and actually they put too much tissue in the place where they removed my lip and it's real puffy. Almost looks like I'm chewing tobacco. Embarrassing and deformed since then. I was always told there wasn't anything they could do because they now refer to it as being cosmetic. I guess that means I would have to pay out of pocket to try to look more normal.. such a terrible thing to be told. I live my life indoors or looking down all the time. Not how anyone should be. Recently someone asked how come insurance will pay for a woman to have breast implants after she had hers removed due to cancer. I was shocked. I feel our faces is the first thing that everyone sees so I would think our faces would be covered..

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@tamaras

Welcome to Mayo Connect.

It is a shame that the surgeon was not willing to work with you on reconstruction. Cosmetic enhancements to improve appearance typically are not covered, whereas reconstructive surgeries to restore function and normal appearance may be covered. Establishing medical necessity plays a key role in obtaining coverage after Mohs surgery.

Your comment on breast reconstruction is correct. There was a law past in 1998, the Women's Health and Cancer Rights Act (WHCRA) that requires insurance companies that cover mastectomy to also pay for breast reconstruction surgery after mastectomy.

If you find a surgeon who considers it medically necessary to restore it may be covered.

Have you contacted your insurance company to ask about coverage?

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@sepdvm

Hello @keithl56 . I just had my elderly aunt to the surgeon for her Mohs procedure on her scalp on top of her head. It was quite superficial in the biopsy and we waited 3 months for an appointment for the surgery. It was removed in the first pass and instruction is to allow for granulation to heal this over the next 6-8 weeks. It is kept covered with antibiotic ointment and gauze and has been quite painless for her. With a 3 cm round area now open, there was no way to bring scalp edges together. At age 97, reconstructive surgery was not mentioned.
The scalp is a very vascular area so significant cautery was used to control bleeding. Granulation tissue is very vascular also so I am not concerned about blood supply for healing. Good luck to you.

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Update. I saw the Moh's surgeon last week and the reconstruction surgeon this week. While waiting for the surgeon on Monday I asked how far out they were scheduling surgeries (I am planning on heading to my Hilton Head house from Mid Aug to mid Nov) and she told me to figure on Aug-Sept (bummer). However, when the doctor came in and drew a roadmap on my head he said that the cancer could double in size in a few months and was checking my lymph nodes. He left and then the nurse took me to the scheduler. I was surprised when she said that she was trying to get my surgery scheduled for next week but couldn't get me in until 6/26.

Also surprising was he was talking about possibly having to do a skin graft and showed me on my side what he would use as a donor site, and that it wouldn't match the area around it.. He also told me not to discontinue blood thinners since he can handle the bleeding and didn't want to risk a heart attack or stroke, and also didn't want to use general anesthesia for the same reason. Kind of freaked me out. So it looks like local plus valium.

Anyone have any similar experience that can provide any input?

TIA Keith

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@keithl56

Update. I saw the Moh's surgeon last week and the reconstruction surgeon this week. While waiting for the surgeon on Monday I asked how far out they were scheduling surgeries (I am planning on heading to my Hilton Head house from Mid Aug to mid Nov) and she told me to figure on Aug-Sept (bummer). However, when the doctor came in and drew a roadmap on my head he said that the cancer could double in size in a few months and was checking my lymph nodes. He left and then the nurse took me to the scheduler. I was surprised when she said that she was trying to get my surgery scheduled for next week but couldn't get me in until 6/26.

Also surprising was he was talking about possibly having to do a skin graft and showed me on my side what he would use as a donor site, and that it wouldn't match the area around it.. He also told me not to discontinue blood thinners since he can handle the bleeding and didn't want to risk a heart attack or stroke, and also didn't want to use general anesthesia for the same reason. Kind of freaked me out. So it looks like local plus valium.

Anyone have any similar experience that can provide any input?

TIA Keith

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@keithl56 Not exactly sure where the surgery site will be, but I myself wouldn't worry if the skin graft doesn't match surrounding area.

Because I am on a chemotherapy medication that carries increased chance of stroke, I am told to not take off any doses of my baby aspirin each day, for minor procedures. All of my skin cancer surgeries have been done with a local anesthetic.

It sounds like your surgeon is proactive to get the procedure done as soon as possible, and that's a good thing! Do you have access to a dermatologist while at your house on Hilton Head, if needed?
Ginger

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@gingerw

@keithl56 Not exactly sure where the surgery site will be, but I myself wouldn't worry if the skin graft doesn't match surrounding area.

Because I am on a chemotherapy medication that carries increased chance of stroke, I am told to not take off any doses of my baby aspirin each day, for minor procedures. All of my skin cancer surgeries have been done with a local anesthetic.

It sounds like your surgeon is proactive to get the procedure done as soon as possible, and that's a good thing! Do you have access to a dermatologist while at your house on Hilton Head, if needed?
Ginger

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Thanks for the response. Unfortunately, the area that would be grafted is on my scalp/forehead area so cosmetically there will be no way to avoid disfigurement. The surgeon already warned that it will not be the same color or texture as the surrounding area. I guess I can be Frankenstein this Halloween!

Unfortunately, all of my doctors are in Delaware. Healthcare in Hilton Head isn't great with Savannah or Charleston the place to go if you need specialized care. If I move down full time I'll have to establish a new healthcare network. It looks like I'll be heading north more frequently and spending more time there as necessary. I'm trying to group my appointments so that I can knockoff multiple doctors each time.

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@keithl56

Update. I saw the Moh's surgeon last week and the reconstruction surgeon this week. While waiting for the surgeon on Monday I asked how far out they were scheduling surgeries (I am planning on heading to my Hilton Head house from Mid Aug to mid Nov) and she told me to figure on Aug-Sept (bummer). However, when the doctor came in and drew a roadmap on my head he said that the cancer could double in size in a few months and was checking my lymph nodes. He left and then the nurse took me to the scheduler. I was surprised when she said that she was trying to get my surgery scheduled for next week but couldn't get me in until 6/26.

Also surprising was he was talking about possibly having to do a skin graft and showed me on my side what he would use as a donor site, and that it wouldn't match the area around it.. He also told me not to discontinue blood thinners since he can handle the bleeding and didn't want to risk a heart attack or stroke, and also didn't want to use general anesthesia for the same reason. Kind of freaked me out. So it looks like local plus valium.

Anyone have any similar experience that can provide any input?

TIA Keith

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@keithl56 I like the way your surgeon prioritized your procedure. Some of them have a way of seeing that things get taken care of when needed. He also sounds like he is on top of your other issues to make this procedure as safe as possible for you. My aunt did not take blood thinners, but any bleeding was quickly contained by ample cautery. Not a pleasant odor, but very effective at controlling bleeding. Her 3 cm circular lesion is filling in with granulation tissue 3 weeks postop with another month or more to completely heal. No graft done and she will have a hairless area that size on top of her head. Better than cancer. I have been forced to learn that appearance isn't everything after surgery resulting in facial paralysis and synkinesis where facial muscle control is permanently changed. It can be hard to accept, but over time you learn to laugh and live with it. Maybe you will learn a good makeup technique to help? And Halloween offers so many opportunities! I carved a right sided facial paralysis pumpkin the first year!

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@keithl56

Thanks for the response. Unfortunately, the area that would be grafted is on my scalp/forehead area so cosmetically there will be no way to avoid disfigurement. The surgeon already warned that it will not be the same color or texture as the surrounding area. I guess I can be Frankenstein this Halloween!

Unfortunately, all of my doctors are in Delaware. Healthcare in Hilton Head isn't great with Savannah or Charleston the place to go if you need specialized care. If I move down full time I'll have to establish a new healthcare network. It looks like I'll be heading north more frequently and spending more time there as necessary. I'm trying to group my appointments so that I can knockoff multiple doctors each time.

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@keithl56 I have [literally] a hole in the middle of my forehead, from a squamous cell cancer removal in 2012 or thereabouts. Several Frankenstein scars, like the 32 stitch scar on right forearm from melanoma surgery. My thought is, "I've earned every scar and gray hair, every wrinkle and smile line!"

Yes, consolidating appointments onto the same day can be done. I travel 2 hours each way to my oncology and nephrology specialists, and we all manage to work a good schedule for the same day. It can be done.

As @sueinmn mentioned, perhaps some makeup? At the very least, it would be a conversation starter, and open the opportunity for you to educate people on skin cancer!
Ginger

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@sepdvm

@keithl56 I like the way your surgeon prioritized your procedure. Some of them have a way of seeing that things get taken care of when needed. He also sounds like he is on top of your other issues to make this procedure as safe as possible for you. My aunt did not take blood thinners, but any bleeding was quickly contained by ample cautery. Not a pleasant odor, but very effective at controlling bleeding. Her 3 cm circular lesion is filling in with granulation tissue 3 weeks postop with another month or more to completely heal. No graft done and she will have a hairless area that size on top of her head. Better than cancer. I have been forced to learn that appearance isn't everything after surgery resulting in facial paralysis and synkinesis where facial muscle control is permanently changed. It can be hard to accept, but over time you learn to laugh and live with it. Maybe you will learn a good makeup technique to help? And Halloween offers so many opportunities! I carved a right sided facial paralysis pumpkin the first year!

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Facial dis-figuration is very hard to accept and live with! Especially with the stares and nasty remarks that some of us have heard.
If someone knows of a make up product that covers serious scars, I'm sure that would be very helpful to many of us.

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@tamaras

Hello I had squamous cancer on my bottom lip, which was cut out back in 2007. I lost pretty much my whole lower lip and a portion below my lip too. They did a graf and flap to help with movement and actually they put too much tissue in the place where they removed my lip and it's real puffy. Almost looks like I'm chewing tobacco. Embarrassing and deformed since then. I was always told there wasn't anything they could do because they now refer to it as being cosmetic. I guess that means I would have to pay out of pocket to try to look more normal.. such a terrible thing to be told. I live my life indoors or looking down all the time. Not how anyone should be. Recently someone asked how come insurance will pay for a woman to have breast implants after she had hers removed due to cancer. I was shocked. I feel our faces is the first thing that everyone sees so I would think our faces would be covered..

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@tamaras, it is incredible how much a significant change to the face can affect one's sense of self and limit social interactions. I'm sure this is affecting your mental health too.

You may wish to join this discusion:
- Scheduled for a Vermilionectomy for premalignant lip tissue https://connect.mayoclinic.org/discussion/scheduled-for-a-vermillionectomy/

I might recommend finding out more about reconstructive options. Some reconstructive, "cosmetic" surgery is considered a part of treatment and not elective. Keep asking questions. This is your health. Your life.

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