Mighty pricey, this Prostate Cancer stuff.

Posted by sanDGuy @sandguy, 3 days ago

Well, I fnally got what I think was my final charge for my prostatectomy, etc. which cost me out-of-pocket now a total of around $500.
I was curious, though, and went through all the charges billed to Blue Cross.
All told, it seems they were billed in the neighborhood of 200 grand!
Here's a partial breakdown:
Surgery itself. (Da Vinci) including anaesthesia and pathology:
$141 grand.
MRI, inc. "3d rendering" 14 grand
PET scan including "attenuation" $38,800
Needle Biopsy + + lab biopsy + ultrasound (+ second biopsy?) 10 grand

I have no idea if this is typical, but it did surprise me. So glad I had opted for a "Silver 94" plan which gave me great benefits, and for which I have been paying about $750 monthly, with ACA/Obamacare paying the other half. Of course I'm concerned about what my premiums will shoot up to if the ACA is disabled, as is being attempted now, and over which the government is presently shut down.

It's a pretty clear insight as to why many people who are not covered or cannot afford insurance, end up on the street due to medical debt.

I find it both sobering and chilling.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Hopefully, you won’t need further medications - those monthly cots are prohibitive!

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Profile picture for survivor5280 @survivor5280

The costs you got are typical of insurance, artificially inflated to give you an artificial discount when, in reality, your deductible likely covered it.

I had long discussions with my health providers about this. My urologist told me he makes about $1,200 per surgery, a nice living, but not anywhere close to the over $100K the insurance says the whole thing cost (of course that includes everything, but at scale, surgery cost < $10K).

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@survivor5280 In dentistry there is the ‘usual and customary fee’ ie - what you would normally charge; then that number is chopped down to the ‘negotiated fee’ - the fee you’ve agreed to accept in order to be a provider…and finally the fee they actually pay you after downcoding your procedure code…which can be up to 50% LESS!
This last part of the ‘administrative process’ implies that you’ve lied, committed fraud or misrepresented what procedure you actually did. They invite you to write a narrative defending your position, but all you get back from them after resubmitting a claim with Xrays is one definitive word: REJECTED…
It was this constant war of defending my actions and being constantly whittled down financially that made me decide to retire…
Phil

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Wow where in the world are you getting these procedures? My RP was 65K insurance negotiated to 22K.

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Profile picture for heavyphil @heavyphil

@xahnegrey40 You are saying it like it is. Having been in healthcare for over 40 yrs - and having many friends scattered in different parts of it - I finally came to realize that all of our problems are caused by insurance itself.
Without going into all the complex fee systems, middlemen, etc, just close your eyes and imagine this: NO INSURANCE…
Just like everything else, the health market would find its own level. If one store charges $500 for an item, bet your life that there’s another selling the same thing for $400…and another for $300 and so on until they all charge the same lower price. People drive the market and if people are unwilling to pay X, then you have to drop your price. This domino effect would go up the chain from providers to suppliers, labs and hospitals - including exorbitant executive pay packages for those at the top.
If no one can AFFORD to buy your product then you either drop the price or go out of business…no other outcomes are possible!
The very existence of a pot of gold (insurance company $$ or literally someone else’s $$) waiting to be tapped engenders all these side hustlers (middlemen) who drive up the cost of doing business by taking their piece of the action. It’s capitalism gone wrong, twisted into its worst possibility.
And in the US it is basically illegal for a hospital or doctor to refuse to treat a patient who cannot pay; but instead of fixing THAT problem, the insurance companies bang the rest of us who DO pay…totally unfair.
An ER doc told me that a man - recently arrived in NYC and holding a suitcase - showed up in the ER with a letter from his doctor in Guatemala describing what surgical procedures he needed to mend a failing heart.
Of course the man had no $$ and no insurance.
The hospital provided over a Million $$ worth of treatment and received only a pittance from the Emergency Medicaid system…another slush fund funded by the rest of us thru some legislative sleight of hand…
Your statement is not politics - it’s reality - and I certainly offer no solution to the problem, but it seems that common sense has gone out the window.
As I write this I am listening to a congressman arguing with a talking head about the government shut down….every other word is INSURANCE!
It’s like some over arching presence in our lives and our government; everything revolves around it; and now our very legislative system is choked by it.
Our Congress should grow a pair, stop taking PAC $$, and come down hard on this industry. Drive it out of business if need be and reset the true order of things.
Charity is a noble virtue and should be practiced - but reasonably and not to the detriment of the rest of us. Patient dumping on ERs and hospitals - that’s what should be illegal - NOT the act of not treating them. Legislators should get off their butts and FIX the problem, not give insurance company execs seats in Congress…
Best,
Phil

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@heavyphil Yes, the insurance issues are challenging, and we just had a Medicare review last week, but if there’s no insurance and you can’t afford treatment, the only logical solution is to die. I just completed month 10 of Orgovyx, a pretty expensive med, but my pharmacy found a PAN Foundation grant , funded by charitable donations, to cover all my coinsurance this year. A simple solution would be great, but I don’t have one to offer.

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Profile picture for jime51 @jime51

@heavyphil Yes, the insurance issues are challenging, and we just had a Medicare review last week, but if there’s no insurance and you can’t afford treatment, the only logical solution is to die. I just completed month 10 of Orgovyx, a pretty expensive med, but my pharmacy found a PAN Foundation grant , funded by charitable donations, to cover all my coinsurance this year. A simple solution would be great, but I don’t have one to offer.

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@jime51 yeah, that’s the problem : these charitable patches are going to be running out of steam…we need a comprehensive plan for everyone who wants to pay for one; different tiers, different levels of coverage.
There’s no way to convince a healthy 26 yr old that his participation in a plan can help a 75 yr old patient - but make his plan affordable and maybe he’d understand, right?

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Profile picture for dpfbanks @dpfbanks

Hopefully, you won’t need further medications - those monthly cots are prohibitive!

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@dpfbanks If you are prescribed Orgovyx and have private (non-VA or Medicare in the U.S) you can fill out a form on the Orgovyx web site and they pay your entire copay except for $50.

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Profile picture for heavyphil @heavyphil

@jime51 yeah, that’s the problem : these charitable patches are going to be running out of steam…we need a comprehensive plan for everyone who wants to pay for one; different tiers, different levels of coverage.
There’s no way to convince a healthy 26 yr old that his participation in a plan can help a 75 yr old patient - but make his plan affordable and maybe he’d understand, right?

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@heavyphil Yes, these medical needs must be spread out among as many people as possible. As a young minister, I was part of a small area group for church staffs. One pastor's wife was diagnosed with terminal cancer and in a couple of years the premium had risen so much that the rest of us had to drop out. The more healthy young people in a plan, getting in when risks/premiums are low, the far better for the rest of us.

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I've seen a lot of positive comments here in the forum about Medicare Advantage (part C). The other night, I started watching a piece from John Oliver's show that presented a very different view, including inflated billings to government (which wouldn't affect patients) and problems getting pre-approvals or finding doctors in-network (which would).

I haven't finished watching it yet, so there might be more, but I'd be interested in hearing from American forum members, especially those who watched the piece. How well did it align with your own experience? With Medicare Advantage, have you personally had significant delays getting pre-approvals for your cancer care, or trouble with doctors (and hospitals) moving in and out of network? Or are those issues that affect only a small minority of participants?

p.s. Yes, I know about John Oliver's political alignment, and am making allowances for that.

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Profile picture for jime51 @jime51

@heavyphil Yes, the insurance issues are challenging, and we just had a Medicare review last week, but if there’s no insurance and you can’t afford treatment, the only logical solution is to die. I just completed month 10 of Orgovyx, a pretty expensive med, but my pharmacy found a PAN Foundation grant , funded by charitable donations, to cover all my coinsurance this year. A simple solution would be great, but I don’t have one to offer.

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@jime51 This isn't a simple solution, but if you're within travel distance of Canada and can find a Canadian doctor to write you a prescription (I'm not sure if that's still allowed), Orgovyx here in Ontario would cost about US $215/month *without* insurance — the same as Firmagon — so you could take a nice weekend trip to your nearest cross-border city and load up with 6 months' or a years' supply.

Note again that while this practice used to be common 10–15 years ago, I don't know if they've clamped down on it now, so a lot of research would be necessary before planning anything.

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Profile picture for northoftheborder @northoftheborder

I've seen a lot of positive comments here in the forum about Medicare Advantage (part C). The other night, I started watching a piece from John Oliver's show that presented a very different view, including inflated billings to government (which wouldn't affect patients) and problems getting pre-approvals or finding doctors in-network (which would).

I haven't finished watching it yet, so there might be more, but I'd be interested in hearing from American forum members, especially those who watched the piece. How well did it align with your own experience? With Medicare Advantage, have you personally had significant delays getting pre-approvals for your cancer care, or trouble with doctors (and hospitals) moving in and out of network? Or are those issues that affect only a small minority of participants?

p.s. Yes, I know about John Oliver's political alignment, and am making allowances for that.

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@northoftheborder I have not seen the program you mention, but I turned 65 last January and went on Medicare. In the months prior to that as I researched the various options it became clear from various reports that Medicare Advantage plans were just like most (all?) health insurance plans, less expensive and great if you're not sick. But if you actually need to use the plans you fall into the same problems with private insurance: limited provider network, having to get referrals for specialists, having to get pre-approvals for most procedures and then the possibility of denials. A year prior I may have been tempted by the considerably lower rates, but with a Pca already having been diagnosed and researching treatment options I decided traditional Medicare with the best medigap policy was the only option: very low deductible, go to the doctor of my choice (almost everywhere accepts traditional Medicare, not so with Advantage), and great coverage. I went through 28 proton treatments, and with everything that was involved with that my total bill was approximately zero ($94.08). I did have a $2,000 deductible for the Orgovyx, but that was it. I know that the billing was hundreds of thousands of dollars, as discussed earlier in the this thread.

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