Anybody diagnosed with microscopic colitis?

Posted by bobthebuilder54 @bobthebuilder54, Oct 12, 2011

Hi, wondering if anybody here has this for a dx. I have been having a flare for about two months, it is getting a little better with the meds but the doctor wants me to go on a short dose of steriods. I already have a muscle disease so hate to go the steriod route, (plus do not need to gain weight) lol. But if anyone has any hints for me I would appreciate it on how to control this. It is the longest flare I have had.
Susie

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

I have been on a very low dose of steroid for almost a month. This steroid is so mild. You do not have to worry about gaining weight on it. However, it is a steroid. I find it it seems to help, however, certain things will trigger the colitis for me. Caffeine, alcohol, certain supplements.

REPLY
Profile picture for mkzpony @mkzpony

I was diagnosed with Celiac 2 years ago, and have been completely free of GLUTEN, however I was just now diagnosed with Microscopic Colitis, which sometimes goes hand in hand with Celiac. So no gluten for 2 years, so some of this does not ring true. I am now going to an acupuncturist next week, that has helped me with other problems, to my amazement, I will keep you posted. I also was on prednisone 3 times after being hospitalized in Feb. and I have read articles it could contribute to MC.

Jump to this post

Please let us know how you make out with the acupuncturist! I am very interested in trying this.

REPLY

I was diagnosed in 2018 with microscopic colitis. Suffered with all of the typical symptoms until i heard the SSRI, fluoxetine (prozac) I was taking, was causing the problems with MC. Stopping the antidepressant worked! Now however, every antidepressant I’ve tried since brings back the colitis. Have any of you found treatment for depression that does not wake up the beast? Any increase in serotonin makes the colitis bad.

REPLY
Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

Jump to this post

Hello, I partially received this diagnosis. Actually, it is said to be partial, but the results showed that it was mild, I also had IBS, the doctor is not sure. Diarrhea increases these days, but turns into constipation in the afternoon. I recently had gastroenteritis and I still don't know how to resolve my diarrhea, IBS attack, or microscopic colitis. The pathology report is out and the result says this: Slightly increased levels in sections of ascending colon, colon mucosa samples, surface epithelium and crypt epithelium.
Lymphocyte entry is monitored. With trichrome, there is a slight increase in collagen in the subepithelial region. No additional findings regarding mucin were found. Although the findings are 'partial' support, if they are clinically compatible, it can be considered collagenous colitis. HK: Mucin, Trichrome. What awaits me now? The doctor prescribed Bizpomen. I am so afraid. I'm worried if it will turn into IBD.
The doctor didn't talk clearly but he said it came out once and we can't rule it out.

REPLY
Profile picture for jt55 @jt55

I have been on a very low dose of steroid for almost a month. This steroid is so mild. You do not have to worry about gaining weight on it. However, it is a steroid. I find it it seems to help, however, certain things will trigger the colitis for me. Caffeine, alcohol, certain supplements.

Jump to this post

I was given Budesonide years ago for chronic microscopic colitis. However, even though it was meant for strictly the colon, mine was absorbed into my system, and began to affect my adrenal glands. So I've had to stop, and now there is nothing else to take. I am currently taking it, low dose 3 mg every day until I can begin Remicade Infusion, which I am very wary of.
Anyone else taking this? Very eager to hear from someone who is receiving it.

REPLY

I will be starting Remicade infusion soon, and have no idea how it help, or how I'll react. Dr. says it's the next line of treatment, after Budesonide.
Comments?

REPLY
Profile picture for free73kja @free73kja

I will be starting Remicade infusion soon, and have no idea how it help, or how I'll react. Dr. says it's the next line of treatment, after Budesonide.
Comments?

Jump to this post

Hi, @free73kja - welcome to Mayo Clinic Connect. Although this discussion is about Remicade for Crohn's and not colitis, I thought it might be useful and provide some members to interact with on this medication:

- Crohn's disease: Question about Remicade (Infliximab) https://connect.mayoclinic.org/discussion/crohns-disease-2ed085/

REPLY

I was initially diagnosed about 8 years ago. Unfortunately, all of the standard treatments did not work for me. After switching GI physicians (my old GI kept telling me this was IBS, not IBD), I later found out I was born with an abnormal pancreas as well. So, a majority of the pain I was experiencing was due to PEI (or EPI) Pancreatic Enzyme Insufficiency. The PEI replacement therapy has done wonders for the pain. Unfortunately, the MC symptoms still continue. (Oh, I also have Celiac and have been GF for over 20 years as well)

REPLY
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @free73kja - welcome to Mayo Clinic Connect. Although this discussion is about Remicade for Crohn's and not colitis, I thought it might be useful and provide some members to interact with on this medication:

- Crohn's disease: Question about Remicade (Infliximab) https://connect.mayoclinic.org/discussion/crohns-disease-2ed085/

Jump to this post

I cannot view "any" replies or messages to me. I get either"403" forbidden, or asking for translation. What is going on?

REPLY

I was just diagnosed with microscopic colitis. I had diarrhea all the time. Since taking budesonide I don’t have diarrhea anymore. It’s a really good drug. My stomach pains have subsided. It’s a temporary drug. I hope the diarrhea doesn’t come back once I finish the budesonide. Ask your doctor about this drug. I hope things work out for you. Good luck

REPLY
Please sign in or register to post a reply.