Anybody diagnosed with microscopic colitis?

Posted by bobthebuilder54 @bobthebuilder54, Oct 12, 2011

Hi, wondering if anybody here has this for a dx. I have been having a flare for about two months, it is getting a little better with the meds but the doctor wants me to go on a short dose of steriods. I already have a muscle disease so hate to go the steriod route, (plus do not need to gain weight) lol. But if anyone has any hints for me I would appreciate it on how to control this. It is the longest flare I have had.
Susie

Interested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.

Profile picture for Gabriella @gabriella

Hi Susie
google "microscopic colitis support" for a well established online support group related to MC. The url is http://www.perskyfarms.com. They encourage gluten-free diet and have lots of recipes and information regarding what is gluten-free and what is not. Casien, the protein in milk, is usually the #2 offender for people with MC (gluten being #1), followed by soy and then eggs. IMHO soy is more prevalent and hidden in our foods and therefore more difficult to eliminate from the diet than gluten.

Some people have good results controlling their flares using Pepto Bismol and/or Immodium. Some take Entocort. But I think, and this is just my opinion, that the drugs just mask and control the symptoms. Ultimately people who change their diet to get rid of their food sensitivities are able to get control without drugs. It can be done. But everyone has their own path to take. The first step is to control the D.

I went gluten free about 6 mos ago and it was a big adjustment, but you get used to it. And the results for me have been dramatic so I'm not tempted by bread anymore.

Best of luck. You can get your life back.

Gabby

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Hi DebE, I noticed a drastic improvement after about 6 weeks in my symptoms after going GF. From what I gather on the Potty People website (http://www.perskyfarms.com/phpBB2/index.php) everyone has a different time and path to remission. I suspect the time it takes depends on the amount of inflamation and irritation in the bowels one starts out with. Just because you don't have full blown celiac disease doesn't mean you don't have a gluten sensitivity. And there may be other foods that you are senstive to as well. Hope you get some relief soon.

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Have you tried a gluten-free diet?

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I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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I was diagnosed with Celiac 2 years ago, and have been completely free of GLUTEN, however I was just now diagnosed with Microscopic Colitis, which sometimes goes hand in hand with Celiac. So no gluten for 2 years, so some of this does not ring true. I am now going to an acupuncturist next week, that has helped me with other problems, to my amazement, I will keep you posted. I also was on prednisone 3 times after being hospitalized in Feb. and I have read articles it could contribute to MC.

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Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Kristi, I was diagnosed about 4 months ago with Lymphocytic colitis after weeks of discomfort. I was able to get it under control with probiotics, decreasing my caffeine intake and watching what I ate. Another doctor recently put me on antibiotics for another problem and now the colitis has flared up again. Like you, I am new to this, and would appreciate any help others have to offer.

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Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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<p>I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.</p>

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Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Welcome to Connect, @mjgarr. I moved your message to this existing discussion about microscopic colitis in the Digestive Health group so that you can meet other members talking about MC. According to this article from Mayo Clinic, autoimmune diseases such as rheumatoid arthritis or celiac disease may cause microscopic colitis http://mayocl.in/2bmyFqr Here's additional information from the National Institute of Health https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/microscopic-colitis/Pages/facts.aspx

Do you also have an autoimmune condition?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome to Connect, @mjgarr. I moved your message to this existing discussion about microscopic colitis in the Digestive Health group so that you can meet other members talking about MC. According to this article from Mayo Clinic, autoimmune diseases such as rheumatoid arthritis or celiac disease may cause microscopic colitis http://mayocl.in/2bmyFqr Here's additional information from the National Institute of Health https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/microscopic-colitis/Pages/facts.aspx

Do you also have an autoimmune condition?

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I don't know. I know I have Mast Cell. My nose runs all of the time. It never did that until I started having signs of MC.

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Profile picture for Kristi Motch @kristimotch

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can't wear jeans. I have fatigue. Also no period in 2 years and I'm 33. I'm seeing a reproductive endocrinologist next month to see if this is auto immune related etc .... Been dealing with this for so long! Anyone have similar distention?

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Profile picture for shosh37 @shosh37

Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can't wear jeans. I have fatigue. Also no period in 2 years and I'm 33. I'm seeing a reproductive endocrinologist next month to see if this is auto immune related etc .... Been dealing with this for so long! Anyone have similar distention?

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Hi @shosh37, welcome to Connect! Distension can be very frustrating to deal with especially when you don’t know the cause. I see you already connected with @cdicicco in another discussion. I’d also like to introduce you to other members who might be able to shed some light by sharing their experiences.

Please meet:
- @gloriaeb, @luladavis, @uneeq1, @upnorthnancy, @nicole14 and others who are talking in the discussion called - I am a relatively healthy person with a problem "bloated belly" http://mayocl.in/2biTqQF
- @jgirlatlaw who started the discussion Mystery Abdominal Distention http://mayocl.in/2bGTavb

Shosh - We'll be interested in hearing what you find out at your appointment with the reproductive endocrinologist. @mjgarr was also asking if there is an autoimmune connection to colitis. What do you do to relieve the distention?

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