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microscopic colitis, budesonide, lower abdominal pain
Hello, I am on budesonide for the second time. This time is nothing like the first time I took it. I still have lower gut pain everyday now. I don't know what I should do? I told gastroenterology and she told me to see my main doctor. To keep it short, I keep getting bounced back and forth between the two. It is so long to wait if I want to get someone else to help. I know I have MC, but I don't know what to do about the pain. Should I change my meds? Have some other types of tests? I am on my second month of budesonide and have another month to go. My PCP had me take budesonide and Hyoscyamine together and that made everything worse with almost severe pain. I want to minimize my pain because I have pain from migraines and fibromyalgia also. What do you think?
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I haven’t experienced the same symptoms as you but had to he same diagnosis& was n the same medication. All I can say about Budesonide is that it can worsen your symptoms. I think you should tell your doc that your confused and have him or her explain their reasoning, bc that sounds strange to me too.
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1 ReactionAs a Crohn's patient for 40 yrs (now in remisson) I can tell you that Budesimide is a local steroid used for the small intestine. I had to use it often for my condition. I can't speak of using it for constipation as I never had that. I can say that Low Dose Naltrexone did heal my small intestine when nothing else would. (Hence the remission- It has been several years and I am symptom and medication free.) Look it up and read about it. Maybe it will help you too.
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1 ReactionDear fdixon,
I am sorry your problems are continuing. Two years ago, I had multiple episodes of diarrhea every day and had a colonoscopy which revealed microscopic colitis. I was prescribed Budesonide 3 mg daily (forever, I guess) and as it worked so well, I am still taking it now.
You do not specify what your Budesonide dosage was. Why was it stopped after 3 months? Was it because of the constipation? Were you on a high Budesonide dose?
The WEIRD THING thing that has worked for me is: I take 3 mg Budesonide every morning, and I also take 1 Docusate sodium 100 mg softgel every morning too. This seems to balance out the diarrhea and constipation problem as they are opposites. I am not recommending this, just telling you that it works for me!
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1 ReactionHi Margot. Thanks for your input. Are you saying you have always been only taking one 3 mg capsule a day? That is so different from what I been prescribed each time. In the past, I asked my GI doc if I could continue the Budesonide on a long tern basis and was told no. I think the reason is because it is a steroid. I'm on 3 capsules (9 mg total) in the morning for a month. There are 3 refills. The doc did not say if I should check with him at the end of the month or??? I'm not scheduled to see him again until October. The previous times I've been on it, I would take 3 every day for a month, then 2 a day for a month and 1 a day for a month and that would end the treatment period. He told me to not restrict what I ate to test the medication. On day six I ate fried fish, fried potatoes and fried hush puppies. My problems began in a couple of hours and the next day I had to take a third Imodium before the BM's would stop. In the 11 days I've been on it, there has been a mix of too many trips to the bathroom to some constipation. I have to be careful as I've had part of my colon removed. I think I need to send a portal message and ask what the doctor wants me to do at the end of the month long use. I also use Colace when my colon needs urging. I'm happy you've found a combination that works. I'll keep searching for what works for me. Thanks again.