MGUS & Thrombocytopenia

I also have the same issues. I was told a lot of thinks like it’s in my head so on kinda like I’m crazy. All my symptoms are the same except mine isn’t bleeding ulcers tho it’s diverticulitis. Lost a lot of feeling in one foot so on so forth. It has cause me to gain weight due to I can’t do my daily gym routine I use to do before getting MGUS. I wish they would quit saying there is no symptoms with it. It’s just not true. You are labeled as a hypochondriac before it’s actually found and turned to myeloma. So here is the thing they found mine only cause my dad and his 2 sisters passed from it all within 6 months. Btw they all had same symptoms for years they actually told my dad and one of my Aunts they needed to put them on depression medication. So then my son was diagnosed with stage 4 lymphoma 6montus after my Aunt passed. my doctor decided to run blood serum test. Now I see an oncologist every 4 months. Because it was caught. Some days are good some days are unbearable. As to your question definitely can inherit the mutated gene.

Hi @gingerbarnes, I'd like to add my welcome along with @debby090 's helpful post to you. I'm also bringing @hi2l into this discussion who also has MGUS and thrombocytopenia.

Ginger, have you considered genetic testing to find out more?

I haven’t been able to get on here lately I’ve been really sick. Yea they said I have diverticulitis too and I’m losing my muscle mass I’ve noticed too. I wake up feeling like poop. I have no desire to eat but I make myself eat. Yes they said I needed to be on psychiatric medication too. It’s insane it’s almost like most drs just ping pong 🏓 you around from one dr to another too. I feel like if you have a blood pressure and a pulse they think you’re fine and I’m a Christian so I pray constantly for answers or healing and it seems no one understands and lately I have withdrawn from folks and been depressed but it’s because of my health issues the upper tummy is swollen on my upper left side and sometimes I’m literally balled up in bed 3 days crying in extreme pain it’s like attacks of some kind. 🤷🏻‍♀️ I’m so sorry you are going through a lot of the same symptoms and issues I pray God will work through the drs to heal us and give us answers and give us drs that truly care in Jesus name Amen 🙏🏻

No ma’am I haven’t but I’m willing to try genetic testing to find out more and I apologize for the late response but I have not been feeling well so I hadn’t been able to get on here. Thank u 🙏🏻 for responding

@gingerbarnes hi Ginger, I apologize if I missed this piece of information earlier. I’ve had health issues myself to deal with. The swollen tummy issue on your left side… what did your hematologist/oncologist say about that?
It’s frustrating to feel as though you’re not being heard by your doctors. Hugs.

Hi Ginger ! I do understand how you feel ! I have had many episodes of feeling so bad physically and mentally that I questioned whether I wanted to continue!!
I take two antidepressants every day to keep me from getting depressed 😔
Please speak with a doctor and ask for medication to help you emotionally and mentally!!
It is not a weakness when we get medication to help us stay strong enough to fight our physical illnesses
My medication makes a huge difference how I feel mentally!!
Search for better doctors who care about a patient!!
The illnesses we have are enough to validate our need for antidepressants!!
It’s almost impossible to cope and deal with serious illnesses without being mentally and emotionally strong !! Please ! Keep looking for doctors who will help you!! There is nothing worse than being dismissed by a doctor whom you went for help ! May the GOOD LORD HELP YOU DEAL WITH ALL UOU ARE COPING YOU!!