Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?
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You are doing the right thing. Best wishes! My daughter started out with high blood pressure, low sodium which lead to a stroke most likely from the covid virus. Dr say! Everything escalated after that. Praying for answers soon.
I am 68 years old. I was referred to a nephrologist because of weight loss and declining kidney function, eGFR 30. I was diagnosed with Light Chain Deposition Disease following both kidney biopsy and bone marrow biopsy. My serum Free Kappa Light Chains was 160.67 mg/L with a 8.35 Kappa-Lambda Ratio. I hope this information may be helpful to you.
@psue4 Yes, simply click on my profile, and choose "send private message".
Doctors are not ruling out her illness from the Covid virus! She recd the J & J, 2 years ago, the virus was within 8 months? Mystery, huh?
Cytoxan, Dexamethasone, Bortezomib
All low dose, pill form.
Is it possible to be private when answering you?
You're welcome. There are many other reassuring and accurate videos on YouTube. Just be sure not to look at anything by non-doctors. MD or DO only – preferably specialists in MM, MGUS, etc.
@psue4 Please check in and let me know how that appointment goes! What chemo meds is she taking, may I ask?
My daughter is getting aggressive treatment due to test showing protein in blood and urine. She is seeing a kidney and hematology every week. Currently on 3 chemo meds. This week will be a follow up after being on the meds after 3 treatments. Hopefully it will be a good visit. 🙏
Thanks, this was very reassuring! PCB
I would also say, whenever you have to deal with any medical event ie, new specialist, ER doc or anytime you get a X-ray, CT scan etc, tell them you have MGUS. They will play more attention to your bones and will alert you of concerns.