Does anyone else have MGUS?

Thanks. Getting a BMB done this Wednesday. Have a hematologist and already spoke to her.

Greetings! Looks like lab work labyrinth. Do you have a Hem/onc physician who can interpret these results for you? One of the pitfalls of My Chart is that you can see lab results almost immediately and are out there fretting about it long before you see a physician.
I would encourage you to call your physician and ask for information or at least an expedited appointment. Stress and anxiety will make you feel sick and can actually kick your white blood count into gear.
Dr Google is a glass-half-full kind of guy so try to avoid his counsel.
This board is great with some practical tips on negotiating the medical systems and especially as support. I’m glad you found us.
Patty

My sedimentation ratio 36 and Ig g of 1810

Typo. Chronic kidney disease of stage 3A. Egfr 54.8.

I am new on this. I have diagnosed with MGUS and iron deficiency and cud stage 3. My kappa and lambda elevated with ratio of .69. My RBC , Hemoglobin and Hematocrit are in lower range and engraving of 54.8. Any one can shed some light on it. Thanks

@deborahjb Any of the three places you mentioned are stellar. Personally, I am not a Mayo Clinic patient. However, my oncologist was trained at Mayo Clinic Rochester [MN] and he is well respected here in my state of Oregon. I also know people who have traveled from this direction to Dana Farber for clinical trials dealing with multiple myeloma.

We have a lot to offer to fellow members here, don't we?
You can get started with Mayo Clinic by clicking here: http://mayocl.in/1mtmR63
Ginger

Hi All. I am learning so much about MGUS/SMM/MM through this discussion group. Many thanks to all who contribute. While I still have only MGUS, my blood and urine lab M-spike and FLC values are moving in the wrong direction, and I would like to consult with a specialist at a major MGUS/SMM/MM cancer center. Could anyone in this discussion group tell me whether Mayo, Dana Farber, or Memorial Sloan Kettering is the best place to go and who are some of the best doctors there? I live in the Washington, DC area, but I'm willing to travel anywhere. Thank you so much!

New MGUSers like me may find this of interest:
Via the Multiple Myeloma Research Foundation newsletter, I just learned about this FREE webinar (zoom) to be held next week on April 5, 2023.
It was "developed to help patients (and their families and caregivers) better understand the multiple myeloma precursor conditions MGUS (monoclonal gammopathy of undetermined significance) and SMM (smoldering multiple myeloma)—including what they are, how they develop, and why they’re significant. "
Register here: https://event.webcasts.com/starthere.jsp?ei=1601785&tp_key=da70931f7b&utm_source=SFMC&utm_medium=email&utm_campaign=Patient+Newsletter+March+2023+PSI+RV&utm_content=https%3a%2f%2fevent.webcasts.com%2fstarthere.jsp%3fei%3d1601785%26tp_key%3dda70931f7b

Hi GirlRaye

I do keep my appointments, and I am probably more vulnerable (I have had breast cancer at 36, and a dermatofirosacroma in 1988, and recentely a squamous cell skin cancer), but I try to take these things in stride and just keep on going. For some reason God seems to just keep throwing me back, so I guess I have decided he will take me when he is ready, and my job is to just keep going as long as he wants me to. I have run a boarderline red cell count since I was 20 and no one seems to get very excited. Recently, a small drop in platletts. I am due to see Hematologist later this year. I feel fine, and that is quite an accomplishment at 92. So as long as I can get out of bed in the morning, It is a good day and the sun is shining to day (no rain).

Gina5009

Hi Gina.
I was diagnosed with IgM kappa MGUS 8 years ago. Now 82. I think we need to be proactive with appointment making. My wonderful hematologist advises seeing him every six months. However I make appointments to see him every three. It is my thoughtful determination that I’m more vulnerable so I consider more frequent appointments justified.

In the recent past there was a decline to below normal range in my ferritin level. “Low iron without anemia” diagnosis is sometimes of interest to oncologists. I’ll find out next Tuesday…not next June.

I suggest to follow your hunches with making appointments. Sometimes we need to be assertive. You go, Girl! Raye