Does anyone else have MGUS?

Yes, you are correct. I did get labs from my recent visit to the Mayo. I will be posting an update soon, just been consumed with work.

When I found out just 2 months ago, I felt the same as you did but I soon realized...I was depressed! I wasn't sleeping well from anxiety and I really wasn't eating all that much. I too am a very healthy and trim gal. I also have no other symptoms or blood readings out of line. I realized that I just needed to STOP looking for things that just aren't there. My entire attitude changed. I decided to be grateful, happy, and choose to be positive. I survived stage III colon cancer 20 years ago because I DECIDED to remain positive. Believe in your good health, it is a gift
Not everyone has THAT. It will protect you so keep eating well and exercising ❤️ You are already winning.

Thank you for sharing. I think I saw in another comment that you take Qunol turmeric enhanced with black pepper and I have been taking this same one on and off for a year but only 2 capsules a day so I will try a higher dose. Please keep us posted how and if the turmeric affects your lab results. I am thankful for this resource to be able to connect with those who may be walking in my shoes and I lift you all up in prayer that together we can find some answers.

Greetings! I am losing a lot of my energy as well but I attribute this to a combination of age and neuropathy…which limits my enthusiasm for walking.
My hem/onc doc says that I should not be having symptoms from MGUS so I’m assuming that my primary physiological nemesis is age (here insert expletive). I do have type 2 diabetes which is well controlled.
I try to eat healthy and do an exercise class for seniors and water aerobics. I am no longer taking those lovely, long walks, however. I miss that.
I think part of the challenge of dealing with chronic illness and an aging body is to find ways to stay engaged in life, and not throw up one’s hands and retreat to the couch. There are many, many people who complain about fatigue and neuropathy who also have MGUS. I believe that it effects each of us differently and you know your body better than any physician ever will. Make sure your doctor really hears you and what you are experiencing. Your doctor should rule out anything outside of the MG US that might be causing your fatigue. Sadly, I think that actually being heard by physicians is our biggest battle.
Let us know how you are doing.
Patty

I was suffering fatigue a lot. Not sure I could completely link it to my MGUS but I have found Curcumin in high dose (6000mg a day) to be beneficial in reducing the fatigue and have slept better and gained energy.

I was diagnosed with MGUS about 18 months ago (so far just high IGM and low IGA and IGG.) For the past 5 months I have become more and more fatigued and I have been checked for anemia, B12, Folate and iron. My hematologist says I should not be feeling fatigue from the MGUS at this point. I am starting to get worried because I have always walked 3-4 miles outside every day and this is not like me to feel so weak. I am having a stress/echo with a cardiologist next month but this feels more like anemia and yet my labs are OK. The fatigue is intermittent but so often now that I’m concerned. I am 69 years old, 125 lbs and have always been active and eat healthy. Anyone else with MGUS having a problem with fatigue and did your hematologist tell you the same thing? Thank you for any ideas.

@mgusnewbie Welcome to Mayo Clinic Connect. You have found a great group of people here, who can share their experiences. Here is a link of what Mayo Clinic has to say about MGUS.

Suffice to say that many of us find a diagnosis of MGUS while our doctors are looking for something else! I hope your doctor has referred you to a hematologist oncologist, and will initiate quarterly bloodwork to keep an eye on things. The vast majority of us never go beyond the MGUS stage. After getting the diagnosis like you have, it is important to not dwell on it, but continue to live your life as you have been doing.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362#:~:text=Monoclonal%20gammopathy%20of%20undetermined%20significance%20(MGUS)%20is%20a%20condition%20in,of%20most%20of%20your%20bones.
Ginger

I've just been diagnosed with MGUS this last week, and I wish I could find more to read about it. Being told that it doesn't have symptoms, while never being asked about any, it's rather invalidating. My doctor here in Colorado is retiring soon, and I have to wait for the new one in five months and hope she's a bit more forthcoming. Do you feel the same as you did before whatever led to your diagnosis?

@redgiles Recently, our cat climbed up in my arms while I was sitting at the table having my morning coffee. She curled up in my arms [okay, she is spoiled and I didn't want her sliding off my lap] and we both drifted off. My husband took a picture of both of us snoozing, thinking it was quite cute. I can nap almost anytime, anywhere!

I crochet, and find it relaxing to do at night.
Ginger

@gingerw

I have learned to take naps. I'm quite good at it now !! My husband is quite the comedian, he now takes pictures of me napping. I have quite a collection.

I knit & crochet.....I need to get back to some unfinished projects !