Does anyone else have MGUS?

I fell backward last month and busted my head open. There was a snake in the wreath in my door, previously occupied by fledgling house finch. I was surprised to see five feet of rat snake, six inches from my nose when I opened the door.
I slammed the door and took a step or two backward, losing my balance and falling on my bionic hip. My head flung back and hit the molding around the opening to my dining room.
Head wounds bleed profusely so it looked like a crime scene, the sight of which nearly gave by husband a heart attack.
Fortunately, my head is hard and I was stitched up at the urgent care with no other injuries.
Anyway…
I do not feel confidence in my balance which does impact my level of activity. This has a domino effect as lack of exercise impacts muscle mass and surely increases my wobbliness. Catch 22.
And to add insult to injury, now I will have to say yes when the medical people ask about falls.

I have experienced the same issues for the last 4-5 months.I was dx with MGUS in October 2021 following back surgery. I am lately experiencing weakness, shakiness that comes on quickly.I thought it was my blood sugar as I’m pre-diabetic but my primary tested my A 1C and it was improving since my last one. I am also dropping things, plate, coffee cup, even a half gal milk. I have really bad leg cramps at nite (RSL) that we are trying to get under control and was thinking my lack of sleep might be causing my weakness. I’m even using a cane on walks “just in case”. I hate not knowing what’s going on.

Thank you for your response. Have you seen a neurologist? I ask because of your description of "dropping things". My RLS and leg cramps respond to magnesium. I'll take 200mg for a day or 2 which seems to help. It's so difficult finding any info on "wooziness" as usually all that I can find is "dizziness". If my ear-nose-throat doc rules out any ear issue as the cause, then I am pretty convinced it's from the MGUS, although my nurse prac for my hematologist/oncologist says it isn't. Now my stamina has gone south too. I'm starting to be very depressed as it looks like these symptoms have no known cause, hence no known cure. I'm 75 and have always been very social and active, so this is a real blow. I live alone and recently had to euthanize my precious cat, Harley. I won't get any more pets as I can never go through euthanizing a beloved pet again. I'm finding this website very helpful as support. Prayers going out for you.

I have experienced the same issues for the last 4-5 months.I was dx with MGUS in October 2021 following back surgery. I am lately experiencing weakness, shakiness that comes on quickly.I thought it was my blood sugar as I’m pre-diabetic but my primary tested my A 1C and it was improving since my last one. I am also dropping things, plate, coffee cup, even a half gal milk. I have really bad leg cramps at nite (RSL) that we are trying to get under control and was thinking my lack of sleep might be causing my weakness. I’m even using a cane on walks “just in case”. I hate not knowing what’s going on.

I'm starting to have spells my blood sugar gets really low and I'm not diabetic.

I have MGUS too and have a question about your dizziness. Is it a feeling of the room spinning or a feeling like you're drunk? I've had dizziness, but the feeling I have when I stand or sit is like I'm drunk. It has slowly worsened over the past year, and I have seen many different specialists trying to figure it out. I can't get into my ENT until the end of August. I was diagnosed with MGUS in July 2022, and my bloodwork is stable. I've had vertigo (dizziness), but this is different and goes away when I lie down. I too have lost my stamina, so recently purchased a stationary bike to try to get some exercise. I sometimes stagger, so don't feel safe going outside to walk.

I have it too, my white blood cell count was low so they checked it and said i have that. I used to walk several miles a day but was exhausted so i did not. I forced myself to start again. I am doing 3 miles at least 3 times a week. Much better now. but get some confusion at times, and also can become quite dizzy. UGH.

Greetings! I am losing a lot of my energy as well but I attribute this to a combination of age and neuropathy…which limits my enthusiasm for walking.
My hem/onc doc says that I should not be having symptoms from MGUS so I’m assuming that my primary physiological nemesis is age (here insert expletive). I do have type 2 diabetes which is well controlled.
I try to eat healthy and do an exercise class for seniors and water aerobics. I am no longer taking those lovely, long walks, however. I miss that.
I think part of the challenge of dealing with chronic illness and an aging body is to find ways to stay engaged in life, and not throw up one’s hands and retreat to the couch. There are many, many people who complain about fatigue and neuropathy who also have MGUS. I believe that it effects each of us differently and you know your body better than any physician ever will. Make sure your doctor really hears you and what you are experiencing. Your doctor should rule out anything outside of the MG US that might be causing your fatigue. Sadly, I think that actually being heard by physicians is our biggest battle.
Let us know how you are doing.
Patty

I have it too, my white blood cell count was low so they checked it and said i have that. I used to walk several miles a day but was exhausted so i did not. I forced myself to start again. I am doing 3 miles at least 3 times a week. Much better now. but get some confusion at times, and also can become quite dizzy. UGH.