Does anyone else have MGUS?

I was diagnosed in 2008 with neuropathy, later Poly Neuropathy. 2018 MGUS.
To put this in some perspective, I was a Combat Vet in Vietnam, 66-67. Patrols on the rivers and canals with the thick jungle canopies that lined both sides, gave the military their reason to use Agent Orange-aka Dioxin 2-4-D that, unfortunately, rained down on the troops with far reaching medical consequences!
Fast forward too today. the Veterans administration is now treating Vets for eighteen (18) presumptive decease's produced from the effects of contact with AO herbicide! Of that eighteen, I now have seven (6) not including the results from the lung biopsy done three (3) weeks ago and is still under review as it wasn't the specimen that they had hoped for! At seventy-seven this isn't what you were expecting from the end-days! My conclusion is that I have dealt with this long enough that I am a firm believer that there is no cure nor lessening of various malady's because they have come at us too fast and too well equipped!
Thank you,
Rick

Not sure if this would help you at all but I have a friend who has found relief from her UTIs with this product from Uquora. I’ve not tried it personally. But it may be something worth trying or running past your doctor to see if you can use the product. 🙂
https://uqora.com/

My UTIs have gone on since 2015 and fortunately, I am largely asymptomatic. I have tried antibiotic and natural treatments over the years and have given up because they have caused all sorts of chaos in my already overly sensitive digestion. I wouldn't be surprised if the UTIs were connected with my iron deficiency (treated with iron supplements) that was found in 2015 too and my MGUS diagnosis in 2021.
Heavy duty radiation and chemo treatements dating back in 1980 (for endomentrial papillary carcinoma) at age 40 probably didn't help either.
And finally being raised in my family's flower business in the 1950s when chemicals were widely used just added even more to my toxic load.
Gee, I am darn lucky just to be alive at 76 although I have my problems and the MGUS checks "freak me out" every 4-6 months. (Now, I just hope my husband recovers from whatever immune problem he must have --- I'll post about that after Monday when we see ANOTHER specialist on a more applicable thread. )

I also have MGUS, and go to hematologist/oncologist every 6 mos for follow up.
My labs are the same, no worse, and I’ll be seen again in 6 mos.
That’s all I know about MGUS.

Oh that’s so disheartening! Many years ago I had a chronic UTI as well and was on low Bactrim for over a year. But prior to that I’d gone through years of issues but no one could find the culprit.
Finally, with a new urologist, the doctor zoned in on the answer. I had a scope of my urethra and bladder to rule out any issues inside. They did a 5 day culture of my urine and a swab of my urethra.
The culture provided the answer with a bacterial growth that wouldn’t show up in a rapid test or even the 3 day culture. It was explained to me that there are microscopic folds of tissue in our urethra that can hold bacteria.
Even though I’d been on Bactrim and a plethera of other meds before, it was suggested to try this low dose for a year because it was the antibiotic that killed the samples in the Petri dish.
It work for me. Have you had a 5 day culture run?

@sjgray I am resistant to everything but nitrofurtonin (sp). The urologist did a scope to look for interstitial cystitis but said I don't have it. I was looking at the TV screen and asked what are all those red dots (covering the entire lining of my bladder) and he said cysts, probably caused by the constant infection.

No improvement at all. 3 recurrences in 5 weeks. I want to go back on the antibiotics and spare myself the pain. Cranberry supplements.

I have developed a Canker Sore on my right upper inside jaw. I have read, these can be caused by a low resistance to infections. Does the M factor have anything to do with this? Or is it a lack of Vitamins like B12? How do I get rid of it. The Trigeminal Neuralgia primarily affects the left lower Jaw. Enough! Enough!
Gina5009

Have not tried estrogen suppositories yet. I have become resistant to 7-8 antibiotics. Am taking a probiotic and off of antibiotics right now. I think that I still have an UTI, so I call next week for a pathnastics test. I will ask about low dose antibiotic, I don't know the solution to this. I also suffer from interstitial cystitis
(30 yrs.). I have tried cranberry juice and gummies. Didn't seem to work. Thank you for reaching out. It's nice to chat with a fellow mgus
er.

Thank you for sharing your experince about MGUS and the connection with UTIs, @shescomeundone! This may be very helpful for @sjgray who has recurring urinary tract infections and wondering if there’s a relationship.
Have you seen any improvement with the estrogen suppositories and cranberry? What form of cranberries…juice, supplements?