Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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@cheft

Not Tumeric. Curcumin, which is an extract from Tumeric. There is a huge difference.

Tumeric is not bioavailable and extremely hard for our bodies to absorb. Curcumin has been formulated for ease of absorption. Look for Curcumin with 95% Curcuminoids on the label. Take with Omega fatty acids for even better absorption.

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Hi ChefT,
Wondering if you are still taking the Qunol form of Turmeric or have switched to Curcumin? About six months ago I reached out to the Qunol folks asking if they would provide a certificate of analysis to make sure this product was free of heavy metals etc and never got anywhere with them.
Thank you!

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Tumeric only contains a few percentage of curcumin. Good to see if tumeric interferes with any meds before taking it (antiinflammatory, thins the blood...). It is good to take curcumin supplements that contain black pepper. The pepper contains peperine, which increases GI absorption and slows breakdown of the curcumin in the liver, thereby increasing bioavailability. Absorption is also improved by eating curcumin with healthy fats (because fats tend to digest more slowly?). I read that bromelain may help bioavailability, but who knows what works in the lab and if it is effective when eaten. Bromelain is a chemical in pineapple and papaya. I use a lot of tumeric in cooking (even hot chocolate [with pepper]) because I like the taste. I'm a 69 yo female and have had MGUS about 8 years.

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I take Thorne (formerly Meriva) which is well absorbed and studied. I’m sure other brands are also good. What do you take? Have you had good results? Thanks. 😃

I’ve thought about adding an Omega supplement. Which do you like?

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@pmm

Hi Leslie @leslie2121 several of our community are taking turmeric and are happy with the outcome. Speak with your physician about any counter indication and dosage if you haven’t already. While it has great antioxidant and anti-inflammatory properties, it can interact and interferes with certain medications.
Worth the discussion.
Have a great weekend
Patty

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Not Tumeric. Curcumin, which is an extract from Tumeric. There is a huge difference.

Tumeric is not bioavailable and extremely hard for our bodies to absorb. Curcumin has been formulated for ease of absorption. Look for Curcumin with 95% Curcuminoids on the label. Take with Omega fatty acids for even better absorption.

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I have had lambda light chain MGUS for 5 years. It has remained stable (fluctuating in a range but not steadily escalating). It is more common in people with connective tissue disease, which i have (lupus and rheumatoid arthritis). The sequela I have experienced related to MGUS is peripheral neuropathy which causes numbness, tingling and sometimes pain in the extremities, distal lower usually more than upper. This can progress to other problems so be sure to watch for numbness in your toes, feet and report to your physician, possibly see a neurologist, and control all other treatable causes of peripheral neuropathy. As for the MGUS itself, monitoring via blood tests is all that needs done, as it causes no symptoms and there is no treatment needed.

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@leslie2121

Hi!
Yes I’m aware and have discussed with my doctor. He was fairly dismissive but I wanted to try it anyway. I don’t have bleeding issues or on blood thinners and my liver tests are excellent.
Agree it may not be appropriate for everyone but for those who can try it, I wanted to share my experience. 😌

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Mine was dismissive as well when I brought it up. I’m older than dirt though and on a “delightful” mix of medications, so I’m not a good candidate.
I’m so glad you are having good outcomes. Let us know how you are doing.
Patty

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@pmm

Hi Leslie @leslie2121 several of our community are taking turmeric and are happy with the outcome. Speak with your physician about any counter indication and dosage if you haven’t already. While it has great antioxidant and anti-inflammatory properties, it can interact and interferes with certain medications.
Worth the discussion.
Have a great weekend
Patty

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Hi!
Yes I’m aware and have discussed with my doctor. He was fairly dismissive but I wanted to try it anyway. I don’t have bleeding issues or on blood thinners and my liver tests are excellent.
Agree it may not be appropriate for everyone but for those who can try it, I wanted to share my experience. 😌

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@leslie2121

6 capsules daily (3gm) Thorne brand turmeric and a mug of turmeric tea with about 1/4 cup whole milk. I like republic of Tea single sips.

Maybe it helped!?!

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Hi Leslie @leslie2121 several of our community are taking turmeric and are happy with the outcome. Speak with your physician about any counter indication and dosage if you haven’t already. While it has great antioxidant and anti-inflammatory properties, it can interact and interferes with certain medications.
Worth the discussion.
Have a great weekend
Patty

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@leslie2121

6 capsules daily (3gm) Thorne brand turmeric and a mug of turmeric tea with about 1/4 cup whole milk. I like republic of Tea single sips.

Maybe it helped!?!

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Thank you 🙏

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@leslie2121

I have increases in both FLCs but ratio stable. I’m also Biclonal IgG kappa and IgM lambda so maybe that’s why?
I have my next appointment soon so I’m going to try to get more clarity.
I also have had mild, but increasing proteinuria since 2021 when first diagnosed with MGUS.
I started taking turmeric about 6 months ago and now my proteinuria is gone!
Went from 195 to 120mg/dl in the 24 hour urine test. I’m hoping the FLCs also go down- waiting on those.
I’ve had no problems tolerating the turmeric.
* I’ve also read that inflammation can be a factor so turmeric is a strong antioxidant & anti inflammatory.

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My FLCs decreased too!

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