Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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psue4 | @psue4 | Mar 9, 2023

My daughter has been diagnois with MGUS. I have been researching to see if it was from the Covid vaccine? Any answers are welcomed.

samraz | @samraz | Feb 26, 2023

In reply to @colleenyoung "@samraz, I thought I'd tag you on this discussion to connect you with others living with..." + (show)

Thanks 😊

Colleen Young, Connect Director | @colleenyoung | Feb 26, 2023

@samraz, I thought I'd tag you on this discussion to connect you with others living with MGUS.

omemee | @omemee | Feb 26, 2023

In reply to @mommatracy5 "Hi, I’m 49 years old and just got an Mgus diagnosis. I’ve been trying to find..." + (show)

Dear Tracy, just saw this note on this very special forum. I have Kappa light chain mgus. I don’t know if there is truth to this , but have seen it 3 or 4 times about curcumin helping to those of us with mgus. Please know you have lots of good support here. Highly intelligent folks giving wonderful advice. Take care. 🥰

gina5009 | @gina5009 | Feb 22, 2023

In reply to @missypurtee "Hello from Galveston not far from MD Anderson. Can I ask what routine test diagnosed it?..." + (show)

Immunoglobulin G 740 mg/dL
768 - 1632 mg/dL
Beta-2-Microglobulin, Serum/Plasma
Component Your Value Standard Range Flag
Beta-2-Microglobulin, Serum/Plasma 2.3 mg/L

gina5009 | @gina5009 | Feb 22, 2023

In reply to @missypurtee "Hello from Galveston not far from MD Anderson. Can I ask what routine test diagnosed it?..." + (show)

Beta-2-Microglobulin, Serum/Plasma 2.0 mg/L

raye | @raye | Feb 21, 2023

In reply to @pmm "Raye that made me spew my coffee! Can’t argue with that. Have a good day trip...." + (show)

Patty,
You started my day with a smile on my face! And I’m helping with that spewed coffee.

Sending you mutually beneficial gifts wrapped in arms: Hugs!

Cheers!

Patty, Volunteer Mentor | @pmm | Feb 21, 2023

In reply to @raye "Regarding Gina’s “life is a waiting game” Life is a sexually transmitted terminal disease. May we..." + (show)

Raye that made me spew my coffee! Can’t argue with that. Have a good day trip.
Patty

Patty, Volunteer Mentor | @pmm | Feb 21, 2023

In reply to @redgiles "I was also recently diagnosed with MGUS. I enjoyed reading response from @pmm - very good..." + (show)

Hello neighbor! I’m glad you found this group. Some very nice people and very informative. Thanks!
Patty

redgiles | @redgiles | Feb 20, 2023

In reply to @kitkat1070 "I was just diagnosed also. Very confused about the whole thing..." + (show)

I was also recently diagnosed with MGUS. I enjoyed reading response from @pmm - very good advice. I am about same age as her. Was diagnosed last August 2022. I already had my "foot in the door", so I go to MD Anderson/Houston for appointments/blood work etc.

Jackie in Texas

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