Does anyone else have MGUS?

Thank you Leslie. I pray for all of us. 💜🙏

That’s what I was as thinking. It’s supposed to be very treatable especially when caught early. All the best to you! Let us know okay? 🥹

Many biopsies coming up at Mayo, for Amyloidosis.

I’m sorry you have pain in your back and something going on with your tongue. I guess I’d check with your doctor for those?
I don’t have those symptoms.

I have the same thing. I also have lots of pain in my back. My tongue is swollen with ridges as well.
Do you have this?

Thank you Paula! This is very interesting that MGUS can have to do with autoimmune disease. I wish more were researched and known.

Hello:
It’s been 2 years since my surprise diagnosis- I think I’ve got some mild neuropathy in my toes and fingers- I think is neuropathy. It’s also worse at times- usually morning?
Other times it’s hardly perceptible.
I’ve been taking curcumin capsules (3 gm/day) and seems to help.
Thorne brand

Search for any Peer Reviewed published research on paraneoplastic syndrome and MGUS

According to the website mymyelomateam.com “A person living with MGUS can be expected to develop peripheral neuropathy .” I have read other articles stating the same and it has been the case with me as well, (diagnosed the MGUS in 2021) although mine is very mild and intermittent.

I will be asking a lot of questions when I finally get to see someone. So far have only been give my diagnosis over the phone by the referring Dr (who knows little about MGUS) and the head nurse (she got special permission to tell me) at oncology as the Dr who did my bone marrow hadn't put my notes into the computer yet and was away when I rang.