Does anyone else have MGUS?

Yes! We have to remember that all treatment options carry risk. Personally, I prefer to embrace the least intrusive approach until such time as my oncologist/hematologist taps his foot and says “it’s time.”
It is a bit maddening to wait, for those of us who are proactive in other aspects of our lives, but you are so right that chemotherapy in particular is harsh.
We can live life well, eat healthy, exercise, take nutritional supplements (if supported by our medical team) and keep our heads in a good place. MGUS is not a pronouncement of dreadful bad things to come. We hope to beat it and die peacefully in our sleep after our 100th birthday celebrated by a gubernatorial proclamation and a party in Time Square.
Or…at least a cake at the nursing home.
😂😉

Thank you for this. Take care.

I have it too was diagnosed approx 8 months ago. Had a 6 month test and MSpike remained the same. Right now I am suffering with knee bursitis. Hope your well

It’s sad to know there are many of us who are suffering and in my opinion suffering needlessly. I can’t help but believe if we could be treated for our MGUS, our lives would be substantially improved and at the same time our chance of progression to myeloma forestalled or never occur. But I am the voice in the wilderness as far as my myeloma doctor is concerned. I hope you stay safe.

I have been falling a lot lately and actually hurting myself a couple of times. At first I thought I was just not being careful, then I realized to myself that it had to be more than that. Hearing other people having the same symptoms is comforting although sad that we have to go through it comforting to know you're not alone

I was recently diagnosed and I am about to finish or rather complete a series of amyloidosis testing but have been diagnosed with it. I have so many problems it's hard to know what's causing what but recently had renal vein angioplasty and stunts put in due to kidney breakdown. I'm not certain of what all it's doing because I do have a lot of problems but hopefully these last few tests will help determine what exactly it's affecting

I’m very sorry to hear this 😔
I agree it would be super helpful to find out the details of diagnosis; I have a colleague who was Dx’d with IgM kappa who has some form of brain vasculitis - she had 3 strokes before they figured out what was going on, and that the vascular issues were related to her unique form of MGUS (there are other sub-categories that are specific to her, however those details are not known to me).
I am in Au, otherwise I would try to help you in some way.
Having said that, I hope there is a mechanism where you can speak with a haematologist directly, who is a specialist in myeloma and MGUS, who will at the least give you all the defining test results, but will go further to inform you of the likely associated symptomatology/things to watch out for according to each type.
Wishing you the very best.

My husband was diagnosed end 2021 and I was diagnosed last week. He had a stroke early last year and, as I now know, we didn't ask enough questions about his diagnosis. We do not know which type he has and I have not had an opportunity to talk to anyone about my diagnosis, just got a letter! We are in the UK. AS you say I wish I knew what did this to us so I could avoid it or at least tell others about it, whatever "it" is.

Yes, planning on checking. I am on Prozac and baby ASA so risk of increase bleeding as well. Ty !!!

As with any other OTC supplements, make sure you check out any possible counter indications. For me, there is the potential for it to interfere with my blood sugar management as I’m on Metformin.
Ask your doc. Hope it’s okay and is helpful for those who can take it.
https://www.medicinenet.com/which_medications_not_to_take_with_turmeric/article.htm