Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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psue4 | @psue4 | Mar 9, 2023

In reply to @redgiles "I was recently (November 2022) diagnosed with MGUS - routine blood work from primary care -..." + (show)

My daughter was just diagnosed with MGUS. Her specialist that are treating her said she had protein in her blood which they were keeping an eye on. She did bone marrow test and scan and slight blood appeared in bone marrow. They wanted to see her back in 3 months to keep an eye on progression. We went for a second opinion at one of our University hospitals and they suggested aggressive treatment so it didn't progress. So many medicines and so much stress. Should I worry so much?

psue4 | @psue4 | Mar 9, 2023

My daughter has been diagnois with MGUS. I have been researching to see if it was from the Covid vaccine? Any answers are welcomed.

samraz | @samraz | Feb 26, 2023

In reply to @colleenyoung "@samraz, I thought I'd tag you on this discussion to connect you with others living with..." + (show)

Thanks 😊

Colleen Young, Connect Director | @colleenyoung | Feb 26, 2023

@samraz, I thought I'd tag you on this discussion to connect you with others living with MGUS.

omemee | @omemee | Feb 26, 2023

In reply to @mommatracy5 "Hi, I’m 49 years old and just got an Mgus diagnosis. I’ve been trying to find..." + (show)

Dear Tracy, just saw this note on this very special forum. I have Kappa light chain mgus. I don’t know if there is truth to this , but have seen it 3 or 4 times about curcumin helping to those of us with mgus. Please know you have lots of good support here. Highly intelligent folks giving wonderful advice. Take care. 🥰

gina5009 | @gina5009 | Feb 22, 2023

In reply to @missypurtee "Hello from Galveston not far from MD Anderson. Can I ask what routine test diagnosed it?..." + (show)

Immunoglobulin G 740 mg/dL
768 - 1632 mg/dL
Beta-2-Microglobulin, Serum/Plasma
Component Your Value Standard Range Flag
Beta-2-Microglobulin, Serum/Plasma 2.3 mg/L

gina5009 | @gina5009 | Feb 22, 2023

In reply to @missypurtee "Hello from Galveston not far from MD Anderson. Can I ask what routine test diagnosed it?..." + (show)

Beta-2-Microglobulin, Serum/Plasma 2.0 mg/L

raye | @raye | Feb 21, 2023

In reply to @pmm "Raye that made me spew my coffee! Can’t argue with that. Have a good day trip...." + (show)

Patty,
You started my day with a smile on my face! And I’m helping with that spewed coffee.

Sending you mutually beneficial gifts wrapped in arms: Hugs!

Cheers!

Patty, Volunteer Mentor | @pmm | Feb 21, 2023

In reply to @raye "Regarding Gina’s “life is a waiting game” Life is a sexually transmitted terminal disease. May we..." + (show)

Raye that made me spew my coffee! Can’t argue with that. Have a good day trip.
Patty

Patty, Volunteer Mentor | @pmm | Feb 21, 2023

In reply to @redgiles "I was also recently diagnosed with MGUS. I enjoyed reading response from @pmm - very good..." + (show)

Hello neighbor! I’m glad you found this group. Some very nice people and very informative. Thanks!
Patty

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