Does anyone else have MGUS?

@116w72ndst After your bone marrow biopsy, and consultation with your doctor, things may indeed seem clearer to you. So many of us go for a long time with no advancement of disease. We get quarterly or semi-annual checkups of bloodwork, to monitor the MGUS. My suggestion is to live your life, do not dwell on the diagnosis.

Will you let me know what your hematologist advises you after the biopsy and consultation?
Ginger

Hi @116w72ndst, I'd like to add my welcome and to let you know that I moved your post to this existing discussion:
- Does anyone else have MGUS?: https://connect.mayoclinic.org/discussion/mgus-diagnosis/

I did this so that you can read previous posts and continue to connect with @pmm and the whole MGUS gang, including @gingerw @mjlandin @deborahjb @raye @tallyteresa @ea1 and many more.

Thanks. Getting a BMB done this Wednesday. Have a hematologist and already spoke to her.

Greetings! Looks like lab work labyrinth. Do you have a Hem/onc physician who can interpret these results for you? One of the pitfalls of My Chart is that you can see lab results almost immediately and are out there fretting about it long before you see a physician.
I would encourage you to call your physician and ask for information or at least an expedited appointment. Stress and anxiety will make you feel sick and can actually kick your white blood count into gear.
Dr Google is a glass-half-full kind of guy so try to avoid his counsel.
This board is great with some practical tips on negotiating the medical systems and especially as support. I’m glad you found us.
Patty

My sedimentation ratio 36 and Ig g of 1810

Typo. Chronic kidney disease of stage 3A. Egfr 54.8.

I am new on this. I have diagnosed with MGUS and iron deficiency and cud stage 3. My kappa and lambda elevated with ratio of .69. My RBC , Hemoglobin and Hematocrit are in lower range and engraving of 54.8. Any one can shed some light on it. Thanks

@deborahjb Any of the three places you mentioned are stellar. Personally, I am not a Mayo Clinic patient. However, my oncologist was trained at Mayo Clinic Rochester [MN] and he is well respected here in my state of Oregon. I also know people who have traveled from this direction to Dana Farber for clinical trials dealing with multiple myeloma.

We have a lot to offer to fellow members here, don't we?
You can get started with Mayo Clinic by clicking here: http://mayocl.in/1mtmR63
Ginger

Hi All. I am learning so much about MGUS/SMM/MM through this discussion group. Many thanks to all who contribute. While I still have only MGUS, my blood and urine lab M-spike and FLC values are moving in the wrong direction, and I would like to consult with a specialist at a major MGUS/SMM/MM cancer center. Could anyone in this discussion group tell me whether Mayo, Dana Farber, or Memorial Sloan Kettering is the best place to go and who are some of the best doctors there? I live in the Washington, DC area, but I'm willing to travel anywhere. Thank you so much!

New MGUSers like me may find this of interest:
Via the Multiple Myeloma Research Foundation newsletter, I just learned about this FREE webinar (zoom) to be held next week on April 5, 2023.
It was "developed to help patients (and their families and caregivers) better understand the multiple myeloma precursor conditions MGUS (monoclonal gammopathy of undetermined significance) and SMM (smoldering multiple myeloma)—including what they are, how they develop, and why they’re significant. "
Register here: https://event.webcasts.com/starthere.jsp?ei=1601785&tp_key=da70931f7b&utm_source=SFMC&utm_medium=email&utm_campaign=Patient+Newsletter+March+2023+PSI+RV&utm_content=https%3a%2f%2fevent.webcasts.com%2fstarthere.jsp%3fei%3d1601785%26tp_key%3dda70931f7b