Does anyone else have MGUS?

I had read somewhere here that it is wise for those with MGUS to consult with a doctor with expertise in MGUS. So I talked further about this with my hematologist/oncologist. Although he treats many people who have blood cancers and is affiliated with a respected hospital here in NJ, he said it was good advice to consult with a true MGUS specialist at Mt. Sinai in NYC. Why he didn't suggest this to me 4 years ago when I was first diagnosed, I don't know --- perhaps this is just one of many examples of how he is not forthcoming and an indication I should move on. Unfortunately, travelling to NYC is very difficult. Are there any NJ folks out there with MGUS who are satisfied with their hematologist/oncologist? You may communicate with me via my email if you wish.

I found some of the references here helpful and thought I would pass along.
"What is MGUS in Relation to Multiple Myeloma?" POSTED: OCT 19, 2023
https://healthtree.org/myeloma/community/articles/what-is-mgus

Thank you Leslie. I pray for all of us. 💜🙏

That’s what I was as thinking. It’s supposed to be very treatable especially when caught early. All the best to you! Let us know okay? 🥹

Many biopsies coming up at Mayo, for Amyloidosis.

I’m sorry you have pain in your back and something going on with your tongue. I guess I’d check with your doctor for those?
I don’t have those symptoms.

I have the same thing. I also have lots of pain in my back. My tongue is swollen with ridges as well.
Do you have this?

Thank you Paula! This is very interesting that MGUS can have to do with autoimmune disease. I wish more were researched and known.

Hello:
It’s been 2 years since my surprise diagnosis- I think I’ve got some mild neuropathy in my toes and fingers- I think is neuropathy. It’s also worse at times- usually morning?
Other times it’s hardly perceptible.
I’ve been taking curcumin capsules (3 gm/day) and seems to help.
Thorne brand

Search for any Peer Reviewed published research on paraneoplastic syndrome and MGUS