Does anyone else have MGUS?

Thank you for your response. Have you seen a neurologist? I ask because of your description of "dropping things". My RLS and leg cramps respond to magnesium. I'll take 200mg for a day or 2 which seems to help. It's so difficult finding any info on "wooziness" as usually all that I can find is "dizziness". If my ear-nose-throat doc rules out any ear issue as the cause, then I am pretty convinced it's from the MGUS, although my nurse prac for my hematologist/oncologist says it isn't. Now my stamina has gone south too. I'm starting to be very depressed as it looks like these symptoms have no known cause, hence no known cure. I'm 75 and have always been very social and active, so this is a real blow. I live alone and recently had to euthanize my precious cat, Harley. I won't get any more pets as I can never go through euthanizing a beloved pet again. I'm finding this website very helpful as support. Prayers going out for you.

I have low blood sugar (hypoglycemia), but have had it for at least 40 years -- unrelated to MGUS, I'm sure. My meals are similar to those for diabetics. If I eat sweets, I need to accompany them with protein -- as a dessert or with a snack like nuts.

I have experienced the same issues for the last 4-5 months.I was dx with MGUS in October 2021 following back surgery. I am lately experiencing weakness, shakiness that comes on quickly.I thought it was my blood sugar as I’m pre-diabetic but my primary tested my A 1C and it was improving since my last one. I am also dropping things, plate, coffee cup, even a half gal milk. I have really bad leg cramps at nite (RSL) that we are trying to get under control and was thinking my lack of sleep might be causing my weakness. I’m even using a cane on walks “just in case”. I hate not knowing what’s going on.

I have MGUS too and have a question about your dizziness. Is it a feeling of the room spinning or a feeling like you're drunk? I've had dizziness, but the feeling I have when I stand or sit is like I'm drunk. It has slowly worsened over the past year, and I have seen many different specialists trying to figure it out. I can't get into my ENT until the end of August. I was diagnosed with MGUS in July 2022, and my bloodwork is stable. I've had vertigo (dizziness), but this is different and goes away when I lie down. I too have lost my stamina, so recently purchased a stationary bike to try to get some exercise. I sometimes stagger, so don't feel safe going outside to walk.

You are so right I have seen a lot of doctors very few listen to what I'm saying if any. I too have very bad fatigue and neuropathy with MGUS. If you look at it closely you can only determine that MGUS is the cause and they continue to say it doesn't. I would say a hundred patients out rule anything a doctor has to say.

Welcome to Connect, @ravenh. I’m happy you found this great support group with members who have MGUS and joined in the conversation! There are veteran members like @pmm, @cheft @leslie2121 @susanh824 @cherylmcg and others who were diagnosed with MGUS years ago.
Newer members to the MGUS club are @sissypuss @robinrossrn who learned more recently that they have this condition.

I hope you take the time to look through all the conversations. There are more discussions on MGUS so feel free to type in MGUS on the search box in Blood Cancers and Disorders. You’ll see quite a few different topics related to the diagnosis.
I’m posting a couple of good articles about Monoclonal Gammopathy of Undetermined Significance (MGUS) for you. Searching the internet can often lead to stress and anxiety. These are trusted sites where I think you’ll find some useful information.
https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
https://www.healthline.com/health/how-serious-is-mgus
Have you met with a hematologist?

I have it too, my white blood cell count was low so they checked it and said i have that. I used to walk several miles a day but was exhausted so i did not. I forced myself to start again. I am doing 3 miles at least 3 times a week. Much better now. but get some confusion at times, and also can become quite dizzy. UGH.

Yes, you are correct. I did get labs from my recent visit to the Mayo. I will be posting an update soon, just been consumed with work.

When I found out just 2 months ago, I felt the same as you did but I soon realized...I was depressed! I wasn't sleeping well from anxiety and I really wasn't eating all that much. I too am a very healthy and trim gal. I also have no other symptoms or blood readings out of line. I realized that I just needed to STOP looking for things that just aren't there. My entire attitude changed. I decided to be grateful, happy, and choose to be positive. I survived stage III colon cancer 20 years ago because I DECIDED to remain positive. Believe in your good health, it is a gift
Not everyone has THAT. It will protect you so keep eating well and exercising ❤️ You are already winning.

Thank you for sharing. I think I saw in another comment that you take Qunol turmeric enhanced with black pepper and I have been taking this same one on and off for a year but only 2 capsules a day so I will try a higher dose. Please keep us posted how and if the turmeric affects your lab results. I am thankful for this resource to be able to connect with those who may be walking in my shoes and I lift you all up in prayer that together we can find some answers.