Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?
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Fifty two is young to develop arthritis in both legs. Is there a possibility of getting a second opinion for your legs? Is the pain in your leg joints?
Here are a couple of articles about arthritis, the different types, how to diagnos and some treatments including meds, PT, alternative medicine such as acupuncture, yoga, etc., to help ease the discomfort.
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https://www.mayoclinic.org/diseases-conditions/arthritis/diagnosis-treatment/drc-20350777
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https://www.aarp.org/health/conditions-treatments/info-2020/arthritis-symptoms.html?cmp=KNC-DSO-COR-Health-Arthritis-NonBrand-Phrase-29834-Bing-HEALTH-ConditionsTreatments-ConditionsTreatments-ArthritisSymptoms-Phrase-NonBrand&&msclkid=cb307bc22214148165511ea06e08d98f&utm_source=bing&utm_medium=cpc&utm_campaign=Health-Arthritis-NonBrand-Phrase&utm_term=how%20do%20you%20know%20if%20you%20have%20arthritis&utm_content=ConditionsTreatments-ArthritisSymptoms&gclid=cb307bc22214148165511ea06e08d98f&gclsrc=3p.ds
Arthritis is caused by inflammation. One way to help control flareups and further inflammation is to eat a healthy diet of anti-inflammatory foods. This is a link to just one of many articles online for curbing inflammation through diet.
https://www.verywellhealth.com/anti-inflammatory-diet-may-help-arthritis-189628?utm_campaign=686804331-1185274561803340&utm_source=bingpaid&utm_medium=paid&utm_content=74079885875429&utm_term=o-arthritis%20and%20diet-anti-inflammatory%20foods%20for%20arthritis&msclkid=989d0e8c7dec148228a76bee3673877e
Your doctors ruled out MM which is great. But when you were told it was arthritis, were there any tests run to confirm this?
Yes. Still have the bone pain, in my legs. They said it's arthritis. I'm 52
Welcome to Connect, @1deb12. Would you like to share a little bit more about yourself? When were you diagnosed with MGUS? Were you having symptoms that led to your diagnosis or was this discovered with routine blood work? Do you have any questions for other members who have MGUS?
Hello, Yes I have MGUS.
@tatajess
Greetings from Arkansas. I am glad to hear that your MRI results were “unremarkable” as they seem inclined to say.
It’s a lot to process, all the dots and likely causes and confusing information sometimes as they say they may, or may not be connected.
It was a relief to me that what they thought might be a lesion on my C2 vertebrae was attributable to arthritis upon further evaluation. Three years out from diagnosis and my MGUS just seems to be lurking. Sneaky ingrate that it is. One would think as it’s host, I would be afforded a bit more consideration.
I have neuropathy in my feet and associated bone pain. Where is your bone pain? I suppose my age is also a consideration as I will turn 72 in May.
I’m glad you don’t have bone lesions, but nag your doctor to get to the source of your bone pain. I hope you have found someone who has extensive experience treating Multiple myeloma. MGUS is not cancer, but you want to be sure that your physician is well trained, experienced, not dismissive of your questions and concerns and takes your MGUS seriously.
Let us know how you are and what you find out. Great people here who are quite helpful.
Patty
I was diagnosed with mgus a few years ago. I've stayed stable, no progression. I had several tests including a bone marrow biopsy, which showed 4 percent cells. I was going to my oncologist every 6 months for labs, then once a year because labs looked good, showing just a trace. Blood count, organs, all good. I do have a very low IGM count, which are white fighter cells for infection, so i do get sick quite often .
Next appt is the 30th and I have a few complaints this time...I get severely tired and very achey, my throat actually hurts, and even my voice gets weak. I'm very active. I look after my baby grandson, and my parents in their 90's who still live on their own, thank God! So I really struggle on those days when this fatigue hits, I must keep going for them. I started having pain in my feet if I'm standing. I actually bought a stool so I can cook and work in the kitchen...I get so exhausted and body pain , I need to sit down. I developed some type of painful hard lump on the side of my inner ankle too, so that adds to the discomfort. I do have osteoporosis, but I don't take meds for it, side effects didn't agree with me. Anyway I'll be mentioning all this next week, and we shall see. I'm not at all worried, just like some explanations.
That’s wonderful news about the MRI results, tatajess! Now you can exhale. ☺️
Are you still having the bone pain though? Will your doctor be following up with those symptoms?
Good morning. Hope you had a good Thanksgiving. Good news. My mri showed nothing of concern. Thank God. Thanks for your words
Just the mri. Scary
Don’t get ahead of yourself-very hard to wait on all the lab results to be interpreted… we’ve all been there.
Do you have evidence that is concerning yet? Lots of potential causes that could be found.