Does anyone else have MGUS?
I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?
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I’ve had it for somewhere between 10-15 years. I see a hematologist and oncologist once a year while the numbers have increased steadily, I am not at the smoldering level yet, and my oncologist says I have only a 10% chance each year of developing multiple myeloma. I’m 64.
I have it. I just found it on my chart and don’t know what to do next.
Thanks for the hugs and empathy. I do the best I can but now also find RA May be causing lung disease-I guess we all have to face our decline…..
I hear your pain the neuropathy and fatigue are horrible it changes your life !!!
cherylmcg such a valid feeling – losing out in so many activities has been an issue for me as well. My friend said it was like grieving a loss and to acknowledge those feelings. I have learned to adjust how I do sports to my changing level of ability and not worry about those super healthy women …..xo 💓
I have had MGUS for about 5 years which is low but slowly increasing. I have neuropathy and fatigue. I recently saw a number of super healthy women playing pickleball in the evening and was overcome with sadness at my disability.
My blood sugar levels are overachievers.
I'm starting to have spells my blood sugar gets really low and I'm not diabetic.
Dose any one with MGUS have a problem with low blood sugar.
Is he or she a multiple myeloma specialist? I really think that’s key. The information keeps changing all the time. Fortunately… There is much more efficient treatment now than there used to be and they really have to stay on top of that.
And I’m sorry about your shortness of breath and neuropathy.