Does anyone else have MGUS?

Hi @kbluegrass, you are taking the bull by the horns here. I think we all could feel better and have better outcomes if we ate healthier and exercised. There is a lot of information about the benefits and efficacy of nutritional supplements. If you are taking Turmeric or curcumin, they say it might reduce blood glucose and increase the risk of hypoglycaemia, especially if you are also taking Metformin. Maybe something to watch out for. I have read about that because of my type 2 Diabetes. Maybe it wouldn’t be a concern for you.
It’s so hard to process all of the information you read (Dr Google) as some of it is contradictory, and there is some just plain bad information floating around. I’m sure my hem/onc doc has met the sainthood criteria as I have lists of written questions when I see him. He’s very patient with me. I’m three years into my MGUS diagnosis and am now seen every six months, having been seen every three months for the first two years. My “numbers” have been very stable which is a good thing.
The hardest part for me after they started throwing words like “multiple myeloma, smoldering” and “Monoclonal gammopathy of undetermined significance” around was keeping my head from exploding with raw anxiety. Thankfully, the risk of progression is low.
Everyone who participates in this forum has a unique medical profile, some with comorbidities and nobody’s situation is exactly the same. Anxiety is common among us when this is new to us. It gets easier.
I hope you have found an experienced and thorough clinician to work with. It’s important to have confidence in that relationship and be able to ask questions and discuss strategies until the two of you have a plan. If not, keep looking.
I love your positivity and see that you are very proactive. Let us know how your bone biopsy turns out. Wishing you the best possible outcome.
Patty

I believe I will be diagnosed with MGUS shortly, but I think they're ruling out MM. Stats: Male, age 50.
Monoclonal igG Lambda. M-Spike = 1.9 g/dl (Sept 2023) but then 1.67 g/dl (Nov 2023) (This decline confused me but maybe natural fluctuation???). Kappa/Lamda ratio = .18, Beta-2 Microglubulin 2.4 mg/L. IgG = 2382 mg/dl, IgM = 29, IgA= 47. From my reading this puts me at HIGH risk MGUS.

The positives are no issue in 24 hr urine test, no sign of MM in MRI. Pending a bone biopsy.

Having never heard of this 2 months ago, to now, I have decided to just do everything similar to various studies: 1) Metformin 1G daily, 2) Glucose management, so I've just cut diet to fish/veggies/med diet... I wasn't overweight per se, but losing what excess I had. 3) Curcumin x 2 and Omega 3 every day. 4) 14-16 hour intermittent fasting daily. 5) Various other things, Sauna/Ice bath. 6) Fitness/Exercise.

I don't have any idea what my pattern is yet, but if the MM doesn't get me, I suppose I'm going to be in much better shape for everything else!

Hi, what tool is this you're using to track the data? - Thanks

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@dazlin, I hope your doctor is a good communicator and takes the time to explain things. I don't know much about those proteins, yet, myself. Let us know if the doctor says anything interesting! 🧐

@nancyworld , just got some results from my primary dr...
Albumin. And alpha 1 high,
Beta absolute is low.
I've researched, and says some inflammation, or cancer...maybe liver. Just took labs this morning, so I haven't heard from Dr yet.

Absolutely a good one rates number Two I believe. From Wallmart Vital Proteins Collagen Peptides. Price reasonsbly. Does the trick it certainly saved me .

Gotcha, I do understand. I’m not familiar with the area. Hope you find someone good.

Hi @fayeraye. Thank you for responding. I have a hematologist/oncologist, but I have a few concerns with her so am looking for someone else in the DC metro area, preferably northern Virginia.

@ravenh , would you mind sharing the name/brand of collegen your taking. There are many...one I hear alot about is from a Christian dr, think it's Ancient grains...very pricey. Hes always on PBS Christian Station...