Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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kbluegrass | @kbluegrass | Dec 20, 2023

I believe I will be diagnosed with MGUS shortly, but I think they're ruling out MM. Stats: Male, age 50.
Monoclonal igG Lambda. M-Spike = 1.9 g/dl (Sept 2023) but then 1.67 g/dl (Nov 2023) (This decline confused me but maybe natural fluctuation???). Kappa/Lamda ratio = .18, Beta-2 Microglubulin 2.4 mg/L. IgG = 2382 mg/dl, IgM = 29, IgA= 47. From my reading this puts me at HIGH risk MGUS.

The positives are no issue in 24 hr urine test, no sign of MM in MRI. Pending a bone biopsy.

Having never heard of this 2 months ago, to now, I have decided to just do everything similar to various studies: 1) Metformin 1G daily, 2) Glucose management, so I've just cut diet to fish/veggies/med diet... I wasn't overweight per se, but losing what excess I had. 3) Curcumin x 2 and Omega 3 every day. 4) 14-16 hour intermittent fasting daily. 5) Various other things, Sauna/Ice bath. 6) Fitness/Exercise.

I don't have any idea what my pattern is yet, but if the MM doesn't get me, I suppose I'm going to be in much better shape for everything else!

kbluegrass | @kbluegrass | Dec 20, 2023

In reply to @cheft "Here are some of my latest results. Mayo doctors still have me at MGUS stage and..." + (show)

Hi, what tool is this you're using to track the data? - Thanks

eileen703 | @eileen703 | Dec 19, 2023

In reply to @deborahjb "Hi @fayeraye. Thank you for responding. I have a hematologist/oncologist, but I have a few concerns..." + (show)

NancyWorld | @nancyworld | Dec 18, 2023

In reply to @dazlin "@nancyworld , just got some results from my primary dr... Albumin. And alpha 1 high, Beta..." + (show)

@dazlin, I hope your doctor is a good communicator and takes the time to explain things. I don't know much about those proteins, yet, myself. Let us know if the doctor says anything interesting! 🧐

dazlin | @dazlin | Dec 18, 2023

In reply to @nancyworld "@dazlin, for the MGUS labs, were they using serum electrophoresis with immunofixation (SPEP/IFE), 24-hour urine electrophoresis..." + (show)

@nancyworld , just got some results from my primary dr...
Albumin. And alpha 1 high,
Beta absolute is low.
I've researched, and says some inflammation, or cancer...maybe liver. Just took labs this morning, so I haven't heard from Dr yet.

ravenh | @ravenh | Dec 18, 2023

In reply to @dazlin "@ravenh , would you mind sharing the name/brand of collegen your taking. There are many...one I..." + (show)

Absolutely a good one rates number Two I believe. From Wallmart Vital Proteins Collagen Peptides. Price reasonsbly. Does the trick it certainly saved me .

fayeraye | @fayeraye | Dec 18, 2023

Gotcha, I do understand. I’m not familiar with the area. Hope you find someone good.

deborahjb | @deborahjb | Dec 18, 2023

In reply to @fayeraye "My PCP gave me a referral to one. Have you asked your doctor for one?" + (show)

Hi @fayeraye. Thank you for responding. I have a hematologist/oncologist, but I have a few concerns with her so am looking for someone else in the DC metro area, preferably northern Virginia.

dazlin | @dazlin | Dec 18, 2023

In reply to @ravenh "Nothing for Nothing but…I really had no ifra how to STOP the extreme fatigue. I found..." + (show)

@ravenh , would you mind sharing the name/brand of collegen your taking. There are many...one I hear alot about is from a Christian dr, think it's Ancient grains...very pricey. Hes always on PBS Christian Station...

ravenh | @ravenh | Dec 18, 2023

In reply to @ravenh "Nothing for Nothing but…I really had no ifra how to STOP the extreme fatigue. I found..." + (show)

Idea and cure. Typos sorry

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