Does anyone else have MGUS?

Posted by mjlandin @mjlandin, Jun 4, 2022

I was diagnosed with MGUS last October and although I've done a lot of research, I feel there's still so much I don't know. Does anyone else have MGUS?

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2121 | @leslie2121 | Jan 28 8:44am

I take Thorne (formerly Meriva) which is well absorbed and studied. I’m sure other brands are also good. What do you take? Have you had good results? Thanks. 😃

I’ve thought about adding an Omega supplement. Which do you like?

ChefT | @cheft | Jan 28 6:48am

In reply to @pmm "Hi Leslie @leslie2121 several of our community are taking turmeric and are happy with the outcome...." + (show)

Not Tumeric. Curcumin, which is an extract from Tumeric. There is a huge difference.

Tumeric is not bioavailable and extremely hard for our bodies to absorb. Curcumin has been formulated for ease of absorption. Look for Curcumin with 95% Curcuminoids on the label. Take with Omega fatty acids for even better absorption.

slkanowitz | @slkanowitz | Jan 27 9:38am

I have had lambda light chain MGUS for 5 years. It has remained stable (fluctuating in a range but not steadily escalating). It is more common in people with connective tissue disease, which i have (lupus and rheumatoid arthritis). The sequela I have experienced related to MGUS is peripheral neuropathy which causes numbness, tingling and sometimes pain in the extremities, distal lower usually more than upper. This can progress to other problems so be sure to watch for numbness in your toes, feet and report to your physician, possibly see a neurologist, and control all other treatable causes of peripheral neuropathy. As for the MGUS itself, monitoring via blood tests is all that needs done, as it causes no symptoms and there is no treatment needed.

Patty, Volunteer Mentor | @pmm | Jan 27 9:36am

In reply to @leslie2121 "Hi! Yes I’m aware and have discussed with my doctor. He was fairly dismissive but I..." + (show)

Mine was dismissive as well when I brought it up. I’m older than dirt though and on a “delightful” mix of medications, so I’m not a good candidate.
I’m so glad you are having good outcomes. Let us know how you are doing.
Patty

2121 | @leslie2121 | Jan 27 9:24am

In reply to @pmm "Hi Leslie @leslie2121 several of our community are taking turmeric and are happy with the outcome...." + (show)

Hi!
Yes I’m aware and have discussed with my doctor. He was fairly dismissive but I wanted to try it anyway. I don’t have bleeding issues or on blood thinners and my liver tests are excellent.
Agree it may not be appropriate for everyone but for those who can try it, I wanted to share my experience. 😌

Patty, Volunteer Mentor | @pmm | Jan 27 8:35am

In reply to @leslie2121 "6 capsules daily (3gm) Thorne brand turmeric and a mug of turmeric tea with about 1/4..." + (show)

Hi Leslie @leslie2121 several of our community are taking turmeric and are happy with the outcome. Speak with your physician about any counter indication and dosage if you haven’t already. While it has great antioxidant and anti-inflammatory properties, it can interact and interferes with certain medications.
Worth the discussion.
Have a great weekend
Patty

acv1 | @acv1 | Jan 26 5:31pm

In reply to @leslie2121 "6 capsules daily (3gm) Thorne brand turmeric and a mug of turmeric tea with about 1/4..." + (show)

Thank you 🙏

2121 | @leslie2121 | Jan 26 3:30pm

In reply to @leslie2121 "I have increases in both FLCs but ratio stable. I’m also Biclonal IgG kappa and IgM..." + (show)

My FLCs decreased too!

2121 | @leslie2121 | Jan 26 3:30pm

In reply to @acv1 "Can I ask how much turmeric you are taking daily ? Thank you" + (show)

6 capsules daily (3gm) Thorne brand turmeric and a mug of turmeric tea with about 1/4 cup whole milk. I like republic of Tea single sips.

Maybe it helped!?!

mikxtr | @mikxtr | Jan 26 12:24pm

In reply to @leslie2121 "I have increases in both FLCs but ratio stable. I’m also Biclonal IgG kappa and IgM..." + (show)

Wow, biclonal! Had to look up proteinuria. Turmeric sounds interesting....

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