MGUS diet: Any tips on food to enjoy or prevent progression?

Welcome @red7. It can be confusing to get a new diagnosis. You must have many questions and you gather information. Allow me to tag fellow MGUS members like @gingerw @sstillwell @auntieoakley @cctoo @dazlin @momofthree1 @susangs

While we wait for others to chime in, you might be interested in reviewing this older discussion:
- MGUS https://connect.mayoclinic.org/discussion/mgus-2d464e/

Red, may I ask how you were diagnosed? What questions do you have?

I was recently diagnosed with MGUS. Was found looking for something else. Trying to get as much info I can. Certainly interested on any special diet for this.

Wyom, I think you might wish to join this discussion if you haven’t been following it already:
- My Bone Marrow Transplant (BMT/SCT) story: Will you share yours? https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/

There are MGUS patients that report an increase in their M spike post vaccine. I think your scenario for MGUS post vaccine could be possible - but also impossible to determine without doing MGUS screening pre and post vaccine - so no way to confirm the theory.

After 6 cycles, Stem cell are scheduled to harvest 12/19. Chemo big dose is scheduled for the first week in January.

Hello Deryl,
Given that MGUS is usually present for many years before it is discovered, it is unlikely the vaccine contributed in any way to a recently diagnosed case. I found the following article helpful.

"Incidence of Monoclonal Gammopathy of Undetermined Significance and Estimation of Duration Before First Clinical Recognition", Terry M. Themeau, et al. https://pubmed.ncbi.nlm.nih.gov/22883742/

Hello @deryl50 welcome to conversations about MGUS. Dr. Kyle told a group at a myeloma conference that not everyone who has MGUS gets myeloma, but every person with myeloma had MGUS. That has stuck with me all these years, and I hope it brings you hope.

Like @colleenyoung said, there isn’t a clear causality for it. There is however some understanding of it, I don’t believe knowing what I do, that the covid vaccine could have caused it, even if it could, there has not been enough time since it’s inception. As for the A Fib meds, I am not going to be able to say if they played a small a part or not, but it would require more than that in term of hits.

The truth is, there is tens of thousands of people living with MGUS, and none of them know exactly why for positive. I do believe that finding a way to move forward with it, and educating yourself in ways to keep your body strong so that you can maintain your quality of life is important.

Before I add the link, with a pretty good amount of information in a booklet from the International Myeloma Foundation. I would love if you could share more about yourself, the things I am asking can be risk factors. Profession? Age? Military status?
https://imf-d8-prod.s3.us-west-1.wasabisys.com/2021-04/U-MGUS-SMM.pdf

Hi Deryl, welcome to Mayo Clinic Connect. You'll notice that I moved your question to the Blood Cancers & Disorders group. I did this because you'll find members talking about MGUS in this group and can connect with people like @gingerw @auntieoakley @anniemaggie @susangs @momofthree1 @gmajudy @cctoo @dazlin

Here are a couple of other discussions that may interest you.
- Always run down with MGUS: https://connect.mayoclinic.org/discussion/always-run-down-with-mgus/
- MGUS https://connect.mayoclinic.org/discussion/mgus-2d464e/

I see that you are looking for a cause for your recent MGUS diagnosis and ask about the vaccine or a-fib meds being the potential culprit. The precise cause of MGUS isn't known. Genetic changes and environmental triggers appear to play a role. It may be a frustrating pursuit to seek the cause. By connecting with others here, I hope that you can turn your focus and energies to coping with the diagnosis and staying healthy.

What questions do you have? Has your doctor set up a follow-up schedule? How frequent?

Has anyone had MGUS discovered after taking the COVID vaccine?

Do any of you have afib and MGUS. I am wondering if afib meds caused blood disorder??